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The Hastings Center report, ISSN 0093-0334, 2009, Volume 39, Issue 1, pp. 7 - 8
Journal Article
JAMA : the journal of the American Medical Association, ISSN 0098-7484, 12/2018, Volume 320, Issue 22, pp. 2307 - 2308
Medicine, General & Internal | Life Sciences & Biomedicine | General & Internal Medicine | Science & Technology | Academies and Institutes - ethics | Biomedical Research - ethics | Conflict of Interest - legislation & jurisprudence | Public Policy | Scientific Misconduct | Authorship | United States | Editorial Policies | Government Regulation | Disclosure - ethics | Disclosure - legislation & jurisprudence | Advisory Committees | Public concern | Medical research | Communities | Conflicts of interest | Federal policy | Disclosure | Professional misconduct | Index Medicus | Abridged Index Medicus
Journal Article
Genetics in medicine, ISSN 1098-3600, 03/2020, Volume 22, Issue 3, pp. 487 - 489
Journal Article
JAMA : the journal of the American Medical Association, ISSN 0098-7484, 12/2018, Volume 320, Issue 22, p. 2307
Journal Article
American journal of bioethics, ISSN 1526-5161, 04/2019, Volume 19, Issue 4, pp. 83 - 84
Ethics | Social Sciences | Social Sciences - Other Topics | Life Sciences & Biomedicine | Social Sciences, Biomedical | Medical Ethics | Biomedical Social Sciences | Social Issues | Science & Technology | Informed Consent | Language | Military Personnel | Ethics Committees, Research | Genetic Research | Humans | Consent Forms | Index Medicus | Bioethics
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American journal of bioethics, ISSN 1526-5161, 01/2019, Volume 19, Issue 1, pp. 72 - 73
Journal Article
American journal of human genetics, ISSN 0002-9297, 07/2015, Volume 97, Issue 1, pp. 6 - 21
Life Sciences & Biomedicine | Genetics & Heredity | Science & Technology | Microarray Analysis - methods | Pharmacogenetics - methods | Microarray Analysis - trends | Genetics - history | History, 21st Century | Genetic Testing - legislation & jurisprudence | History, 20th Century | Humans | Genetic Testing - ethics | Informed Consent By Minors - psychology | Genomics - ethics | Adolescent | Genetic Testing - trends | Genomics - methods | Child | Genetic Carrier Screening | Infant, Newborn | Laws, regulations and rules | Youth | Teenagers | Children | Management | Health aspects | Genetic screening | Ethical aspects | Medical ethics | Ethics | Genetic testing | Health education | Genomics | Index Medicus | ASHG Position Statement
Journal Article
The Hastings Center report, ISSN 0093-0334, 11/2015, Volume 45, Issue 6, pp. inside back cover - inside back cover
Ethics | Social Sciences | Social Sciences - Other Topics | Life Sciences & Biomedicine | Social Sciences, Biomedical | Health Care Sciences & Services | Medical Ethics | Biomedical Social Sciences | Science & Technology | Decision Making | Parental Consent | Humans | Informed Consent - legislation & jurisprudence | Patient Safety | Informed Consent - ethics | Personal Autonomy | Medicine, Experimental | Medical research | Informed consent (Medical law) | Laws, regulations and rules | Bioethics | Informed consent | Waivers | Decision making | Efficiency | Index Medicus
Journal Article
Nature biotechnology, ISSN 1087-0156, 08/2019, Volume 37, Issue 8, pp. 850 - 852
Life Sciences & Biomedicine | Biotechnology & Applied Microbiology | Science & Technology | Biomedical Research - ethics | Health Insurance Portability and Accountability Act - organization & administration | Confidentiality | United States | Health Insurance Portability and Accountability Act - standards | Humans | Biomedical Research - organization & administration | Health Insurance Portability and Accountability Act - ethics | Biomedical Research - standards | Access control | Medical records | Privacy, Right of | Laws, regulations and rules | Index Medicus
Journal Article
JAMA pediatrics, ISSN 2168-6203, 05/2019, Volume 173, Issue 7, pp. 617 - 618
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Qualitative health research, ISSN 1049-7323, 5/2016, Volume 26, Issue 6, pp. 734 - 740
deliberative discussion | USA | education | qualitative | focus groups | Information Science & Library Science | Social Sciences | Social Sciences, Interdisciplinary | Social Sciences - Other Topics | Technology | Social Sciences, Biomedical | Biomedical Social Sciences | Science & Technology | Muscular Atrophy, Spinal - diagnosis | Cordocentesis - psychology | Mass Screening - psychology | United States | Humans | Focus Groups | Data Collection - methods | Muscular Atrophy, Spinal - prevention & control | Cordocentesis - standards | Donor Selection - standards | Patient Selection | Pilot Projects | Parents - psychology | Biomedical Research - methods | Qualitative Research | Infant, Newborn | Electronic Health Records - standards | Patient Education as Topic | Data collection | Medical research | Opinions | Focus groups | Health education | Health technology assessment
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Secondary research uses of residual newborn screening dried bloodspots: a scoping review
Genetics in medicine, ISSN 1098-3600, 2018, Volume 21, Issue 7, pp. 1469 - 1475
dried bloodspots | evidence synthesis | newborn screening | scoping review | Life Sciences & Biomedicine | Genetics & Heredity | Science & Technology | Biomedical Research - trends | Reproducibility of Results | Dried Blood Spot Testing | Humans | Infant, Newborn | Medical screening | Index Medicus | dried blood spots
Journal Article
American journal of bioethics, ISSN 1526-5161, 09/2015, Volume 15, Issue 9, pp. 47 - 49
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The Hastings Center report, ISSN 0093-0334, 11/2015, Volume 45, Issue 6
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08/2018, Consensus study report of The National Academies of Sciences, Engineering, Medicine, ISBN 9780309475174, 398
eBook
Journal of empirical research on human research ethics, ISSN 1556-2646, 03/2010, Volume 5, Issue 1, pp. 19 - 32
Community structure | Ethical Community-Engaged Research in Translational Medicine and Other Contexts | Communities | Funding | Collaboration | Respect | Research facilities | Research ethics | Research design | Community relations | Academic communities | Data dissemination | Community-based organizations | Communitybased participatory research | Community | Memorandum of understanding | Community-academic partnerships | Community-Engaged Research | Ethics | Medical Ethics | Social Sciences | Social Sciences - Other Topics | Life Sciences & Biomedicine | Science & Technology | Models, Theoretical | Community-Based Participatory Research - organization & administration | Community-Institutional Relations | Data Interpretation, Statistical | Humans | Beneficence | Information Dissemination | Patient Selection | Research Support as Topic | Informed Consent | Negotiating | Community-Based Participatory Research - ethics | Research Design | Community action | Research | Educational partnerships | Index Medicus | Bioethics
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JAMA pediatrics, ISSN 2168-6203, 10/2019, Volume 173, Issue 12, pp. 1209 - 1210
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Journal of empirical research on human research ethics, ISSN 1556-2646, 03/2010, Volume 5, Issue 1, pp. 5 - 18
Community structure | Ethical Community-Engaged Research in Translational Medicine and Other Contexts | Biomedical research | Communities | Collaboration | Respect | Genetic research | Research ethics | Group structure | Community relations | Academic communities | Community-based participatory research | Risks | Academic-community partnerships | Human subjects protections | Community-engaged research | Moral agency | Autonomy | Community | Ethics | Medical Ethics | Social Sciences | Social Sciences - Other Topics | Life Sciences & Biomedicine | Science & Technology | Community-Institutional Relations | Human Experimentation - ethics | Risk Assessment | Humans | Human Rights | Terminology as Topic | Personal Autonomy | Community-Based Participatory Research - ethics | Human subjects | Bioethics | Community action | Research | Index Medicus
Journal Article
Annals of internal medicine, ISSN 0003-4819, 12/2009, Volume 151, Issue 12, pp. 872 - U10
Medicine, General & Internal | Life Sciences & Biomedicine | General & Internal Medicine | Science & Technology | Primary Health Care - methods | Primary Health Care - trends | Outcome Assessment (Health Care) | Risk Assessment | Humans | Family Health | Health Status | Forecasting | Primary Health Care - standards | Medical History Taking - standards | Families & family life | Heredity | Genetic disorders | Genetic testing | Family medical history
Journal Article
Annals of internal medicine, ISSN 0003-4819, 04/2003, Volume 138, Issue 7, pp. 571 - 575
Medicine, General & Internal | Life Sciences & Biomedicine | General & Internal Medicine | Science & Technology | General aspects. Genetic counseling | Biological and medical sciences | Medical sciences | Medical genetics | Ethics, Medical | Genetic Predisposition to Disease - psychology | Genetic Testing | Genetic Privacy | Humans | Genetic Techniques - psychology | Family | Prejudice | Stress, Psychological - etiology | Medical screening | Genetic screening | Ethical aspects | Medical research | Genetics | Disease | Genes | Medical immunity | Index Medicus | Bioethics | Abridged Index Medicus
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