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1. Adverse effects of vaccines
: evidence and causality
by Stratton, Kathleen R and Institute of Medicine (U.S.). Committee to Review Adverse Effects of Vaccines and Board on Population Health and Public Health Practice and Institute of Medicine and Committee to Review Adverse Effects of Vaccines and Teton Data Systems (Firm) and STAT!Ref (Online service)
2012, STAT!Ref electronic medical library, ISBN 9780309214360, xxvii, 865
In 1900, for every 1,000 babies born in the United States, 100 would die before their first birthday, often due to infectious diseases. Today, vaccines exist... 
Bacterial Infections | Complications | Vaccination | adverse effects | Vaccines | prevention & control | Causality | Virus Diseases | Prevention | Virus diseases | Bacterial diseases
Book
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2. Confronting commercial sexual exploitation and sex trafficking of minors in the United States
by Clayton, Ellen Wright, editor and Krugman, Richard D., 1942- editor and Simon, Patti editor and National Research Council (U.S.) and Institute of Medicine (U.S.)
2013, ISBN 0309286557, xvi, 461 pages
Human trafficking | Child abuse | Child sexual abuse
Book
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3. A Review of the HHS family planning program
: mission, management, and measurement of results
by Butler, Adrienne Stith and Clayton, Ellen Wright and Institute of Medicine (U.S.). Committee on a Comprehensive Review of the HHS Office of Family Planning Title X Program
2009, ISBN 0309131170, xvii, 179
"A Review of the HHS Family Planning Program provides a broad evaluation of the Title X family planning program since its establishment in 1970. The program... 
Evaluation | Title X Family Planning Program (U.S.) | United States. Department of Health and Human Services | Family planning services
Book
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4. Full Text Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An IOM Report on Redefining an Illness
by Clayton, Ellen Wright
JAMA, ISSN 0098-7484, 03/2015, Volume 313, Issue 11, pp. 1101 - 1102
Clayton talks about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which is a multisystem and often long-lasting disorder, with manifestations... 
MEDICINE, GENERAL & INTERNAL | Algorithms | National Academies of Science, Engineering, and Medicine (U.S.) Health and Medicine Division | United States | Humans | Evidence-Based Medicine | Fatigue Syndrome, Chronic - diagnosis | Information Dissemination | Practice Guidelines as Topic | Symptomatology | Care and treatment | Usage | Periodic health examinations | Physicians | Analysis | Physical diagnosis | Practice | Diagnosis | Chronic fatigue syndrome | Risk factors | Encephalitis | Fatigue | Morbidity
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5. Confronting commercial sexual exploitation and sex trafficking of minors in the United States
: a guide for the legal sector
and National Research Council (U.S.) and Institute of Medicine (U.S.)National Research Council (U.S.). Committee on the Commercial Sexual Exploitation and Sex Trafficking of Minors in the United States
2013, ISBN 0309313406, iv, 44
"Every day in the United States, children and adolescents are victims of commercial sexual exploitation and sex trafficking. These are not only illegal... 
Law and legislation | Child sexual abuse | Child trafficking
Book
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6. Genomics and society
: ethical, legal, cultural and socioeconomic implications
by Kumar, Dhavendra, editor and Chadwick, Ruth, editor
2016, ISBN 9780127999210, xxiii, 413 pages
Genomics and Society; Ethical, Legal-Cultural, and Socioeconomic Implications is the first book to address the vast and thorny web of ELSI topics identified as... 
Moral and ethical aspects | Social aspects | Genomics | Medical genetics | Biology, life sciences
Book
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7. Full Text In reply
by Clayton, Ellen Wright
JAMA - Journal of the American Medical Association, ISSN 0098-7484, 07/2015, Volume 314, Issue 1, pp. 85 - 86
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8. Full Text Mandatory extended searches in all genome sequencing: "Incidental findings," patient autonomy, and shared decision making
by Ross, Lainie Friedman and Rothstein, Mark A and Clayton, Ellen Wright
JAMA - Journal of the American Medical Association, ISSN 0098-7484, 2013, Volume 310, Issue 4, pp. 367 - 368
Ross et al object that incidental findings discovered with whole-genome sequencing or testing be sought and reported to ordering clinicians and to patients (or... 
MEDICINE, GENERAL & INTERNAL | HEALTH | Decision Making | Informed Consent | Breast Neoplasms - genetics | Humans | Incidental Findings | Physician-Patient Relations | Risk | Genetic Testing - ethics | Personal Autonomy | Mutation | Disclosure | Sequence Analysis, DNA | Genetic testing | Medical diagnosis | Decision making | Patients | Genomics | Organizations
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9. Why the Americans With Disabilities Act Matters for Genetics
by Clayton, Ellen Wright
JAMA: Journal of the American Medical Association, ISSN 0098-7484, 06/2015, Volume 313, Issue 22, pp. 2225 - 2225
The Americans with Disabilities Act (ADA) is arguably the most effective law in the United States protecting people from misuse of genetic information. Before... 
Journal Article
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10. Full Text The Unbearable Requirement of Informed Consent
by Clayton, Ellen Wright
The American Journal of Bioethics, ISSN 1526-5161, 05/2019, Volume 19, Issue 5, pp. 19 - 20
MEDICAL ETHICS | SOCIAL ISSUES | SOCIAL SCIENCES, BIOMEDICAL | ETHICS | Informed Consent | Comprehension | Biological Specimen Banks | Humans | Ethics, Research
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11. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An IOM Report on Redefining an Illness
by Clayton, Ellen Wright
JAMA: Journal of the American Medical Association, ISSN 0098-7484, 03/2015, Volume 313, Issue 11, pp. 1101 - 1101
Clayton talks about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which is a multisystem and often long-lasting disorder, with manifestations... 
Journal Article
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12. Full Text Redefining Myalgic Encephalomyelitis/Chronic Fatigue Syndrome—Reply
by Clayton, Ellen Wright
JAMA, ISSN 0098-7484, 07/2015, Volume 314, Issue 1, pp. 85 - 86
MEDICINE, GENERAL & INTERNAL | Humans | Fatigue Syndrome, Chronic - diagnosis | Practice Guidelines as Topic
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13. Childhood Vaccine Exemptions: A Broader Perspective Is Required
by Carrie L Byington and Ellen Wright Clayton and Kathryn M Edwards
Pediatrics, ISSN 0031-4005, 04/2016, Volume 137, Issue 4, p. 1
  A selective view of childhood vaccine exemption policy is presented by Opel et al. Their primary premise is that recent attempts to restrict nonmedical... 
Exemptions | Vaccines | Children & youth
Journal Article
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14. Childhood Vaccine Exemptions: A Broader Perspective Is Required
by Byington, Carrie L and Clayton, Ellen Wright and Edwards, Kathryn M
Pediatrics, ISSN 0031-4005, 04/2016, Volume 137, Issue 4, pp. 1 - 1
A selective view of childhood vaccine exemption policy is presented by Opel et al. Their primary premise is that recent attempts to restrict nonmedical vaccine... 
Journal Article
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15. Full Text State-offered ethnically targeted reproductive genetic testing
by Clayton, Ellen Wright and Brothers, Kyle B
Genetics in Medicine, ISSN 1098-3600, 02/2016, Volume 18, Issue 2, pp. 126 - 127
GENETICS & HEREDITY | Ethnic Groups | Genetic Testing | Genetic Counseling | Humans
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16. Full Text A genetically augmented future
by Clayton, Ellen Wright
Nature, ISSN 0028-0836, 12/2018, Volume 564, Issue 7735, pp. S9 - S9
Policy | Ethics | Medical research | Gene therapy | MULTIDISCIPLINARY SCIENCES | Usage | Care and treatment | Duchenne muscular dystrophy | Forecasts and trends | Genetic aspects | Ethical aspects | Dystrophin | Utrophin
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17. Full Text Commercial Interests, the Technological Imperative, and Advocates: Three Forces Driving Genomic Sequencing in Newborns
by Pereira, Stacey and Clayton, Ellen Wright
Hastings Center Report, ISSN 0093-0334, 07/2018, Volume 48, Issue S2, pp. S43 - S44
While the NSIGHT program was driven by a desire to define and gather data about both the benefits and harms of introducing genomic sequencing into the care of... 
MEDICAL ETHICS | SOCIAL SCIENCES, BIOMEDICAL | HEALTH CARE SCIENCES & SERVICES | ETHICS | Infants (Newborn) | Technology application | Nucleotide sequence | Genetic aspects | Research | Medical screening | Pediatric research | Health aspects
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18. Full Text Improving recommendations for genomic medicine: building an evolutionary process from clinical practice advisory documents to guidelines
by Burke, Wylie and Clayton, Ellen Wright and Wolf, Susan M and Berry, Susan A and Evans, Barbara J and Evans, James P and Hall, Ralph and Korngiebel, Diane and Laberge, Anne-Marie and LeRoy, Bonnie S and McGuire, Amy L
Genetics in Medicine, ISSN 1098-3600, 2019
Genomic sequencing and multigene panel tests are moving rapidly into clinical practice for a range of indications, but the evidence to guide appropriate use is... 
clinical practice guidelines | genomic medicine | genomics | practice advice | evidence
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19. Confronting commercial sexual exploitation and sex trafficking of minors in the United States
: a guide for the legal sector
by Clayton, Ellen Wright and Krugman, Richard D., 1942 and Simon, Patti and National Research Council (U.S.). Committee on Law and Justice and Institute of Medicine (U.S.) and National Research Council (U.S.). Board on Children, Youth, and Families and National Research Council (U.S.). Committee on the Commercial Sexual Exploitation and Sex Trafficking of Minors in the United States
2013, ISBN 0309286557
"Every day in the United States, children and adolescents are victims of commercial sexual exploitation and sex trafficking. Despite the serious and long-term... 
Human trafficking | Child trafficking
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20. Full Text It's all in the timing: Calibrating temporal penalties for biomedical data sharing
by Xia, Weiyi and Wan, Zhiyu and Yin, Zhijun and Gaupp, James and Liu, Yongtai and Clayton, Ellen Wright and Kantarcioglu, Murat and Vorobeychik, Yevgeniy and Malin, Bradley A
Journal of the American Medical Informatics Association, ISSN 1067-5027, 01/2018, Volume 25, Issue 1, pp. 25 - 31
Biomedical science is driven by datasets that are being accumulated at an unprecedented rate, with ever-growing volume and richness. There are various... 
Policy | Biomedical data science | Data sharing | Genomics | Economics of data | COMPUTER SCIENCE, INTERDISCIPLINARY APPLICATIONS | MEDICAL INFORMATICS | BIG DATA | HEALTH CARE SCIENCES & SERVICES | INFORMATION SCIENCE & LIBRARY SCIENCE | COMPUTER SCIENCE, INFORMATION SYSTEMS | genomics | economics of data | data sharing | GENOME | biomedical data science | policy
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