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1. Beyond myalgic encephalomyelitis/chronic fatigue syndrome: an IOM report on redefining an illness
by Clayton, Ellen W.right and Clayton, Ellen Wright
JAMA : the journal of the American Medical Association, ISSN 0098-7484, 03/2015, Volume 313, Issue 11, pp. 1101 - 1102
Medicine, General & Internal | Life Sciences & Biomedicine | General & Internal Medicine | Science & Technology | Algorithms | National Academies of Science, Engineering, and Medicine (U.S.) Health and Medicine Division | United States | Humans | Evidence-Based Medicine | Fatigue Syndrome, Chronic - diagnosis | Information Dissemination | Practice Guidelines as Topic | Encephalitis | Fatigue | Morbidity
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2. Confronting commercial sexual exploitation and sex trafficking of minors in the United States
by Clayton, Ellen Wright, editor and Krugman, Richard D., 1942- editor and Simon, Patti editor and National Research Council (U.S.) and Institute of Medicine (U.S.)
2013, ISBN 0309286557, xvi, 461 pages
Human trafficking | Child abuse | Child sexual abuse
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3. Be Ready to Talk With Parents About Direct-to-Consumer Genetic Testing
by Clayton, Ellen Wright
JAMA pediatrics, ISSN 2168-6203, 02/2020, Volume 174, Issue 2, pp. 117 - 118
Life Sciences & Biomedicine | Pediatrics | Science & Technology | Genetic screening
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4. Full Text A genetically augmented future
by Clayton, Ellen Wright
Nature (London), ISSN 0028-0836, 12/2018, Volume 564, Issue 7735, pp. S9 - S9
Policy | Ethics | Medical research | Gene therapy | Science & Technology - Other Topics | Multidisciplinary Sciences | Science & Technology | Usage | Care and treatment | Duchenne muscular dystrophy | Forecasts and trends | Genetic aspects | Ethical aspects | Dystrophin | Utrophin | Index Medicus
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5. Mandatory extended searches in all genome sequencing: "Incidental findings," patient autonomy, and shared decision making
by Ross, Lainie Friedman and Rothstein, Mark A and Clayton, Ellen Wright
JAMA : the journal of the American Medical Association, ISSN 0098-7484, 2013, Volume 310, Issue 4, pp. 367 - 368
Medicine, General & Internal | Life Sciences & Biomedicine | General & Internal Medicine | Science & Technology | Decision Making | Informed Consent | Breast Neoplasms - genetics | Humans | Incidental Findings | Physician-Patient Relations | Risk | Genetic Testing - ethics | Personal Autonomy | Mutation | Disclosure | Sequence Analysis, DNA | Genetic testing | Medical diagnosis | Decision making | Patients | Genomics | Organizations
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6. Adverse effects of vaccines
: evidence and causality
by Stratton, Kathleen R and Institute of Medicine (U.S.). Committee to Review Adverse Effects of Vaccines and Board on Population Health and Public Health Practice and Institute of Medicine and Committee to Review Adverse Effects of Vaccines and Teton Data Systems (Firm) and STAT!Ref (Online service)
2012, ISBN 9780309214360, xxvii, 865
Bacterial Infections | Complications | Vaccination | adverse effects | Vaccines | prevention & control | Causality | Virus Diseases | Prevention | Virus diseases | Bacterial diseases
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7. Why the Americans with disabilities act matters for genetics
by Clayton, Ellen Wright
JAMA : the journal of the American Medical Association, ISSN 0098-7484, 06/2015, Volume 313, Issue 22, pp. 2225 - 2226
Medicine, General & Internal | Life Sciences & Biomedicine | General & Internal Medicine | Science & Technology | Disabled Persons - legislation & jurisprudence | Social Discrimination - legislation & jurisprudence | United States | Humans | Genetic Privacy - legislation & jurisprudence | Civil Rights - legislation & jurisprudence | Employment - legislation & jurisprudence | Genetics | Americans with Disabilities Act 1990-US | Health care access | Health care policy
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8. Full Text Eliciting preferences on secondary findings: The Preferences Instrument for Genomic Secondary Results
by Brothers, Kyle B and East, Kelly M and Kelley, Whitley V and Wright, M. Frances and Westbrook, Matthew J and Rich, Carla A and Bowling, Kevin M and Lose, Edward J and Bebin, E. Martina and Simmons, Shirley and Myers, John A and Barsh, Greg and Myers, Richard M and Cooper, Greg M and Pulley, Jill M and Rothstein, Mark A and Clayton, Ellen Wright
Genetics in medicine, ISSN 1098-3600, 03/2017, Volume 19, Issue 3, pp. 337 - 344
Incidental Findings | Genomic Secondary Results | Clinical Tools | Preferences | Whole Genome Sequencing | Life Sciences & Biomedicine | Genetics & Heredity | Science & Technology | Genome - ethics | Choice Behavior | Humans | Middle Aged | Focus Groups | Genome - genetics | Male | Genetic Testing - ethics | Comprehension | Health Knowledge, Attitudes, Practice | Genetic Testing - methods | Sequence Analysis, DNA | Genetic Testing - instrumentation | Genomics - ethics | Intellectual Disability - genetics | Parents - psychology | Adult | Female | Surveys and Questionnaires | Aged | Genomics - methods | Patient Preference - psychology | Index Medicus
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9. Full Text Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes
by Howard, H.C and Knoppers, B.M and Cornel, M.C and Wright Clayton, E and Senecal, K and Borry, P and European Soci Human Genetics and PHG Fdn and P3G Int Paediat Platform and Human Genome Org and European Society of Human Genetics and Human Genome Organisation; and the PHG Foundation and P3G International Paediatric Platform and endorsed by the European Society of Human Genetics; the P3G International Paediatric Platform; the Human Genome Organisation; and the PHG Foundation
European journal of human genetics : EJHG, ISSN 1018-4813, 2015, Volume 23, Issue 12, pp. 1593 - 1600
Biochemistry & Molecular Biology | Genetics & Heredity | Life Sciences & Biomedicine | Science & Technology | Genetic Testing - standards | Humans | Health Planning Guidelines | Genetic Testing - trends | Genome-Wide Association Study - methods | Genome-Wide Association Study - standards | Genetic Testing - methods | Sequence Analysis, DNA - methods | Infant, Newborn | Pediatrics | Nucleotide sequence | Genomics | Licenses | Bioethics | Systematic review | Genomes | Research | Medical screening | Ethics | Genetics | Children | Public health | Deoxyribonucleic acid--DNA | Index Medicus | Policy
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10. Full Text What Should We Be Asking of Informed Consent?
by Clayton, Ellen Wright
The Journal of law, medicine & ethics, ISSN 1073-1105, 3/2020, Volume 48, Issue 1, pp. 185 - 187
Ethics | Social Sciences | Law | Social Sciences - Other Topics | Life Sciences & Biomedicine | Government & Law | Medical Ethics | Medicine, Legal | Legal Medicine | Science & Technology | Health technology assessment
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11. Full Text The Unbearable Requirement of Informed Consent
by Clayton, Ellen Wright
American journal of bioethics, ISSN 1526-5161, 05/2019, Volume 19, Issue 5, pp. 19 - 20
Ethics | Social Sciences | Social Sciences - Other Topics | Life Sciences & Biomedicine | Social Sciences, Biomedical | Medical Ethics | Biomedical Social Sciences | Social Issues | Science & Technology | Informed Consent | Comprehension | Biological Specimen Banks | Humans | Ethics, Research
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12. Full Text How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?
by Clayton, Ellen Wright
The Journal of law, medicine & ethics, ISSN 1073-1105, 10/2015, Volume 43, Issue 3, pp. 538 - 544
Patient Rights - legislation & jurisprudence | Minors - legislation & jurisprudence | Genetic Testing - legislation & jurisprudence | Humans | Parents | Refusal to Participate - legislation & jurisprudence | Genetic Testing - ethics | Disclosure - legislation & jurisprudence | Genomics - ethics | Access to Information - ethics | Patient Rights - ethics | Refusal to Participate - ethics | Access to Information - legislation & jurisprudence | Adolescent | Adult | Death | Disclosure - ethics | Child | Communication | Genomics - legislation & jurisprudence | Access control | Evaluation | Medical records | Youth | Teenagers | Genetic aspects | Parental consent | Genetic screening | Parents & parenting | Law | Genomics | Bioethics | Research | Genetic testing | Adolescents | Children & youth | Health technology assessment
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13. Redefining Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Reply
by Clayton, Ellen Wright
JAMA : the journal of the American Medical Association, ISSN 0098-7484, 07/2015, Volume 314, Issue 1, pp. 85 - 86
Medicine, General & Internal | Life Sciences & Biomedicine | General & Internal Medicine | Science & Technology | Humans | Fatigue Syndrome, Chronic - diagnosis | Practice Guidelines as Topic
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14. In reply
by Clayton, Ellen Wright
JAMA : the journal of the American Medical Association, ISSN 0098-7484, 07/2015, Volume 314, Issue 1, pp. 85 - 86
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15. Full Text Ethical, Legal, and Social Implications of Genomic Medicine
by Clayton, Ellen Wright
The New England journal of medicine, ISSN 0028-4793, 08/2003, Volume 349, Issue 6, pp. 562 - 569
Medicine, General & Internal | Life Sciences & Biomedicine | General & Internal Medicine | Science & Technology | Biological and medical sciences | Investigative techniques, diagnostic techniques (general aspects) | Medical sciences | Pathology. Cytology. Biochemistry. Spectrometry. Miscellaneous investigative techniques | Miscellaneous. Technology | Physician-Patient Relations - ethics | Public Health - ethics | United States | Humans | Neonatal Screening - ethics | Prejudice | Government Programs - legislation & jurisprudence | Neonatal Screening - legislation & jurisprudence | Genomics - ethics | Genetic Privacy - ethics | Government Programs - ethics | Genetic Privacy - legislation & jurisprudence | Public Health - legislation & jurisprudence | Genome, Human | Infant, Newborn | Genomics - legislation & jurisprudence | Genomics | Genetic screening | Cases | Ethical aspects | Medical diagnosis | Genetics | Index Medicus | Bioethics | Abridged Index Medicus
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16. Full Text Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations
by Wolf, Susan M and Lawrenz, Frances P and Nelson, Charles A and Kahn, Jeffrey P and Cho, Mildred K and Clayton, Ellen Wright and Fletcher, Joel G and Georgieff, Michael K and Hammerschmidt, Dale and Hudson, Kathy and Illes, Judy and Kapur, Vivek and Keane, Moira A and Koenig, Barbara A and LeRoy, Bonnie S and McFarland, Elizabeth G and Paradise, Jordan and Parker, Lisa S and Terry, Sharon F and Van Ness, Brian and Wilfond, Benjamin S
The Journal of law, medicine & ethics, ISSN 1073-1105, 6/2008, Volume 36, Issue 2, pp. 219 - 248
Biomedical Research - ethics | Biomedical Research - legislation & jurisprudence | Humans | Incidental Findings | Research Subjects | Genomics - trends | Referral and Consultation - ethics | Truth Disclosure - ethics | Self-experimentation in medicine | Human experimentation in medicine | Research | Human subjects | Medical research | Law | Researchers | Genomics | Bioethics | Genetic research | Protocol | Health technology assessment
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17. Full Text Responding to the Sexual Exploitation of Minors
by Todres, Jonathan and Clayton, Ellen Wright
The New England journal of medicine, ISSN 0028-4793, 04/2014, Volume 370, Issue 14, pp. 1282 - 1283
Medicine, General & Internal | Life Sciences & Biomedicine | General & Internal Medicine | Science & Technology | Child Abuse, Sexual - statistics & numerical data | United States | Humans | Adult Survivors of Child Abuse | Male | Child Abuse, Sexual - rehabilitation | Child Abuse, Sexual - prevention & control | Adolescent | Female | Human Trafficking | Child | Minors | Physician's Role | Human smuggling | Control | Sexual exploitation | Human trafficking | Health facilities | Physicians | Mental health | Teenagers | Children | Adolescents | Children & youth | Index Medicus | Abridged Index Medicus | Commentary | PTSD | Prevention | Medical Personnel | Health Care Policy | Interpersonal Violence | Americans | Assessment | Child Abuse
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18. Full Text Incidental Findings in Genetics Research Using Archived DNA
by Clayton, Ellen Wright
The Journal of law, medicine & ethics, ISSN 1073-1105, 6/2008, Volume 36, Issue 2, pp. 286 - 291
Ethics Committees, Research - standards | Researcher-Subject Relations - psychology | Humans | Incidental Findings | Disclosure - ethics | Informed Consent - ethics | DNA - classification | Ethics Committees, Research - ethics | Genetic Research - ethics | Researcher-Subject Relations - ethics | Genetic research | Usage | DNA testing | Analysis | Human subjects | Medical research | Law | Informed consent | Genetic testing | Disclosure | Health technology assessment
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19. Confronting commercial sexual exploitation and sex trafficking of minors in the United States
: a guide for the legal sector
and National Research Council (U.S.) and Institute of Medicine (U.S.)National Research Council (U.S.). Committee on the Commercial Sexual Exploitation and Sex Trafficking of Minors in the United States
2013, ISBN 0309313406, iv, 44
Law and legislation | Child sexual abuse | Child trafficking
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20.