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Expert review of hematology, 08/2019, p. 1
: Acute pain from episodic vaso-occlusion (VOC) spans the lifespan of almost everyone with sickle cell disease (SCD), while additional chronic pain develops in... 
Journal Article
Pediatric Blood & Cancer, ISSN 1545-5009, 03/2019, Volume 66, Issue 3, pp. e27538 - n/a
Background This study aimed to evaluate the preliminary validation and application of a pain screening tool to identify biopsychosocial risk factors for... 
chronic pain | risk factors | screening | biopsychosocial | pediatric | sickle cell disease | DEPRESSION | PARENTS | PATTERNS | CHILDREN | INVENTORY | ONCOLOGY | ADOLESCENTS | PREDICTORS | VERSION | PEDIATRICS | FUNCTIONAL DISABILITY | OUTCOMES | HEMATOLOGY | Health care | Pediatrics | Pain | Risk groups | Health and safety screening | Interference | Youth | Mental depression | Sickle cell disease | Risk analysis | Risk factors
Journal Article
Quality of Life Research, ISSN 0962-9343, 9/2015, Volume 24, Issue 9, pp. 2195 - 2208
Journal Article
Pediatric Blood & Cancer, ISSN 1545-5009, 06/2016, Volume 63, Issue 6, pp. 1031 - 1037
The Patient Reported Outcomes Measurement Information System (PROMIS®) has developed pediatric self-report scales measuring several unidimensional health... 
health‐related quality of life | PROMIS | sickle cell disease | Sickle cell disease | Health-related quality of life | Anemia, Sickle Cell - complications | Humans | Self Report | Adolescent | Quality of Life | Female | Male | Surveys and Questionnaires | Patient Outcome Assessment | Child | Pediatrics | Sickle cell anemia | Children | Health aspects | Analysis | Data entry | Index Medicus
Journal Article
Quality of Life Research, ISSN 0962-9343, 1/2016, Volume 25, Issue 1, pp. 13 - 23
Journal Article
Transfusion, ISSN 0041-1132, 04/2013, Volume 53, Issue 4, pp. 704 - 709
BACKGROUND: Transfusion of red blood cells (RBCs) is frequently required for care of individuals with sickle cell disease (SCD). Alloimmunization rates are... 
TRANSFUSION MANAGEMENT | STROKE-PREVENTION TRIAL | RISK-FACTORS | ACUTE CHEST SYNDROME | ANEMIA | HEMATOLOGY | EXPRESSION | INTERLEUKIN-8 | CHILDREN | United States - epidemiology | Acute Chest Syndrome - etiology | Erythrocyte Transfusion - adverse effects | Prevalence | Blood Grouping and Crossmatching - methods | Humans | Middle Aged | Child, Preschool | Male | Blood Group Incompatibility - blood | Erythrocyte Transfusion - methods | Feasibility Studies | Patient Selection | Isoantibodies - blood | Young Adult | Early Termination of Clinical Trials | Blood Group Antigens - immunology | Blood Group Incompatibility - prevention & control | Adult | Female | Anemia, Sickle Cell - immunology | Acute Chest Syndrome - prevention & control | Child | Blood Group Incompatibility - etiology | Erythrocyte Transfusion - statistics & numerical data | Anemia, Sickle Cell - complications | Biomarkers - blood | Anemia, Sickle Cell - therapy | Blood Grouping and Crossmatching - statistics & numerical data | Adolescent | Aged | Anemia, Sickle Cell - blood | Health Care Surveys | Blood Group Incompatibility - epidemiology | Sickle cell anemia | Universities and colleges | Blood transfusion | Prevalence studies (Epidemiology) | Sickle cell disease | Blood | Feasibility studies | Index Medicus | Duffy blood group | PROACTIVE | Transfusion | Cooperative Study of Sickle Cell Disease
Journal Article