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1. Full Text Trajectories of Psychological Distress in Adolescent and Young Adult Patients With Cancer: A 1-Year Longitudinal Study
by Minyoung Kwak and Brad J. Zebrack and Kathleen A. Meeske and Leanne Embry and Christine Aguilar and Rebecca Block and Brandon Hayes-Lattin and Yun Li and Melissa Butler and Steven Cole
Journal of Clinical Oncology, ISSN 0732-183X, 06/2013, Volume 31, Issue 17, pp. 2160 - 2166
Purpose To examine prevalence and changes in symptoms of psychological distress over 1 year after initial cancer diagnosis in adolescent and young adult (AYA)... 
BREAST-CANCER | DEPRESSION | CHILDHOOD-CANCER | ONCOLOGY | PSYCHOSOCIAL INTERVENTIONS | ANXIETY | QUALITY-OF-LIFE | POSTTRAUMATIC-STRESS | HEALTH | SURVIVORS | CARE | Prevalence | Prospective Studies | Humans | Survivors | Male | Neoplasms - psychology | Young Adult | Adolescent | Quality of Life | Adult | Female | Longitudinal Studies | Stress, Psychological - etiology
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2. Full Text Psychological distress and unsatisfied need for psychosocial support in adolescent and young adult cancer patients during the first year following diagnosis
by Zebrack, Brad J and Corbett, Virginia and Embry, Leanne and Aguilar, Christine and Meeske, Kathleen A and Hayes‐Lattin, Brandon and Block, Rebecca and Zeman, David T and Cole, Steven
Psycho‐Oncology, ISSN 1057-9249, 11/2014, Volume 23, Issue 11, pp. 1267 - 1275
Purpose Identifying at‐risk adolescent and young adult (AYA) cancer patients and referring them to age‐appropriate psychosocial support services may be... 
distress | adolescent | young adult | psychosocial | SERVICE NEEDS | INFORMATION | SOCIAL SCIENCES, BIOMEDICAL | TRAJECTORIES | RESILIENCE | ADJUSTMENT | CARE | PSYCHOLOGY | PSYCHOLOGY, MULTIDISCIPLINARY | CHILDHOOD-CANCER | ONCOLOGY | HEALTH | SURVIVORS | BRIEF SYMPTOM INVENTORY-18 | Stress, Psychological - therapy | Multivariate Analysis | Prospective Studies | Humans | Anxiety - psychology | Social Support | Logistic Models | Male | Neoplasms - psychology | Stress, Psychological - psychology | Young Adult | Anxiety - therapy | Adolescent | Depression - psychology | Adult | Female | Mental Health Services - utilization | Resilience, Psychological | Depression - therapy | Longitudinal Studies | Adaptation, Psychological | Cohort Studies | Needs Assessment | Psychological aspects | Cancer patients | Care and treatment | Analysis | Youth | Teenagers | Diagnosis | Stress (Psychology) | Mental health care | Emotional disorders | Young adults | At risk youth | Counseling | Cancer | Social support
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3. Full Text Prevalence and predictors of post‐traumatic stress symptoms in adolescent and young adult cancer survivors: a 1‐year follow‐up study
by Kwak, Minyoung and Zebrack, Brad J and Meeske, Kathleen A and Embry, Leanne and Aguilar, Christine and Block, Rebecca and Hayes‐Lattin, Brandon and Li, Yun and Butler, Melissa and Cole, Steven
Psycho‐Oncology, ISSN 1057-9249, 08/2013, Volume 22, Issue 8, pp. 1798 - 1806
Objectives Post‐traumatic stress symptoms (PTSS) have been identified as a meaningful indicator of distress in cancer survivors. Distinct from young adult... 
adolescent | cancer | post‐traumatic stress symptoms | young adults | oncology | post‐traumatic stress disorder | post-traumatic stress disorder | post-traumatic stress symptoms | SOCIAL SCIENCES, BIOMEDICAL | OLDER | PARENTS | MAJOR DEPRESSION | CARE | PSYCHOLOGY | CHILDREN | BREAST-CANCER | PSYCHOLOGY, MULTIDISCIPLINARY | CHILDHOOD-CANCER | FAMILIES | MENTAL-DISORDERS | PSYCHOSOCIAL IMPACT | Severity of Illness Index | Stress Disorders, Post-Traumatic - etiology | Prevalence | Prospective Studies | Follow-Up Studies | Humans | Risk Factors | Stress Disorders, Post-Traumatic - epidemiology | Male | Neoplasms - psychology | Stress Disorders, Post-Traumatic - psychology | Socioeconomic Factors | Young Adult | Neoplasms - complications | Regression Analysis | Stress Disorders, Post-Traumatic - diagnosis | Adolescent | Quality of Life | Adult | Female | Survivors - psychology | Health Status | Neoplasms - epidemiology | Adaptation, Psychological | Intervention | Emotional disorders | Post traumatic stress disorder | Survivor | Oncology | Regression analysis | Cancer | Young Adults | Survivors | Americans | Longitudinal Study | Reexperiencing | Males | Epidemiology | PTSD (DSM-IV) | Predisposition | Arousal | Adults | Adolescents | Females | Avoidance
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4. Full Text Sexual functioning among young adult cancer patients: A 2‐year longitudinal study
by Acquati, Chiara and Zebrack, Brad J and Faul, Anna C and Embry, Leanne and Aguilar, Christine and Block, Rebecca and Hayes‐Lattin, Brandon and Freyer, David R and Cole, Steve
Cancer, ISSN 0008-543X, 01/2018, Volume 124, Issue 2, pp. 398 - 405
BACKGROUND Cancer‐related sexual dysfunction has been reported among adolescents and young adults (AYAs); however, its prevalence over time has not been... 
sexual functioning | adolescents and young adults (AYAs) | cancer | adolescents | young adults | MIDDLE-INCOME COUNTRIES | COST-EFFECTIVENESS | TREATMENT ABANDONMENT | CHILDREN | CHILDHOOD-CANCER | THERAPY | ONCOLOGY | PREDICTORS | LEUKEMIA | LATE MORTALITY | SURVIVORS | Young Adult | Sexual Dysfunctions, Psychological - epidemiology | Humans | Adolescent | Probability | Adult | Female | Male | Sexual Dysfunction, Physiological - epidemiology | Neoplasms - psychology | Longitudinal Studies | Sexual Behavior - psychology | Cancer patients | Analysis | Sex | Diagnosis | Social aspects | Health aspects | Cancer | Adolescence | Young adults | Comorbidity | Sexual behavior | Reporting | Patients | Demographic variables | Problems | Chemotherapy | Demographics | Social interactions | Correlation analysis | Adults | Adolescents
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5. Full Text The relationship between posttraumatic stress and posttraumatic growth among adolescent and young adult (AYA) cancer patients
by Zebrack, Brad and Kwak, Minyoung and Salsman, John and Cousino, Melissa and Meeske, Kathleen and Aguilar, Christine and Embry, Leanne and Block, Rebecca and Hayes‐Lattin, Brandon and Cole, Steve
Psycho‐Oncology, ISSN 1057-9249, 02/2015, Volume 24, Issue 2, pp. 162 - 168
ABSTRACT Objective Theories of posttraumatic growth suggest that some degree of distress is necessary to stimulate growth; yet, investigations of the... 
posttraumatic stress | posttraumatic growth | psychosocial | adolescent | young adult | Psychosocial | Posttraumatic growth | Posttraumatic stress | Adolescent | Young adult | SERVICE USE | DISTRESS | SOCIAL SCIENCES, BIOMEDICAL | SYMPTOMS | PREVALENCE | PSYCHOLOGY | BREAST-CANCER | PSYCHOLOGY, MULTIDISCIPLINARY | CHILDHOOD-CANCER | ONCOLOGY | PREDICTORS | HEALTH | SURVIVORS | TRAUMA | Severity of Illness Index | Young Adult | Regression Analysis | Humans | Adult | Female | Male | Neoplasms - psychology | Stress Disorders, Post-Traumatic - psychology | Stress, Psychological - psychology | Adaptation, Psychological | Cancer patients | Care and treatment | Child development | Growth | Post-traumatic stress disorder | Youth | Teenagers | Post traumatic stress disorder | Psychopathology | Patients | Stress | Children & youth | Cancer | Cognitive Processes | Self Efficacy | Followup Study | Young Adults | Americans | Survivors | Adaptability | Reexperiencing | PTSD (DSM-IV) | Optimism | Positive Effects | Adults | Adolescents
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6. Full Text Standard of Care for Neuropsychological Monitoring in Pediatric Neuro‐Oncology: Lessons From the Children's Oncology Group (COG)
by Walsh, Karin S and Noll, Robert B and Annett, Robert D and Patel, Sunita K and Patenaude, Andrea F and Embry, Leanne
Pediatric Blood & Cancer, ISSN 1545-5009, 02/2016, Volume 63, Issue 2, pp. 191 - 195
As the mortality of pediatric cancers has decreased, focus on neuropsychological morbidities of treatment sequelae have increased. Neuropsychological... 
pediatric oncology | psychology | late effects | Pediatric oncology | Late effects | Psychology | ADULT SURVIVORS | LONG-TERM SURVIVORS | COST-EFFECTIVENESS | CHILDHOOD-CANCER SURVIVOR | NEUROCOGNITIVE STATUS | BRAIN-TUMORS | ONCOLOGY | ACUTE LYMPHOBLASTIC-LEUKEMIA | PEDIATRICS | OUTCOMES | HEALTH | HEMATOLOGY | MEDULLOBLASTOMA | Standard of Care | United States | Humans | Neuropsychological Tests - standards | Central Nervous System Neoplasms - therapy | Pediatrics - economics | Neurology - economics | Medical Oncology - economics | Neurology - standards | Medical Oncology - standards | Pediatrics - standards | Survivors - psychology | Central Nervous System Neoplasms - psychology | Child | Medical care | Pediatrics | Children | Health aspects | Analysis | Quality management
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7. Full Text Neurocognitive Dysfunction in Survivors of Childhood Brain Tumors
by Ullrich, Nicole J., MD, PhD and Embry, Leanne, PhD
Seminars in Pediatric Neurology, ISSN 1071-9091, 2012, Volume 19, Issue 1, pp. 35 - 42
Newer treatments have resulted in increasing numbers of survivors of childhood cancer, for whom neurological and neurocognitive toxicity directly impacts... 
Pediatrics | Neurology | ADULT SURVIVORS | LONG-TERM SURVIVORS | CONFORMAL RADIATION-THERAPY | PEDIATRIC-PATIENTS | CANCER SURVIVOR | CHILDRENS ONCOLOGY | DEVELOPMENTAL MODEL | PEDIATRICS | CENTRAL-NERVOUS-SYSTEM | QUALITY-OF-LIFE | COGNITIVE FUNCTION | CLINICAL NEUROLOGY | Neurosurgical Procedures - adverse effects | Antineoplastic Agents - adverse effects | Cognition Disorders - etiology | Humans | Brain Neoplasms - therapy | Survivors | Adult | Radiotherapy - adverse effects | Brain Neoplasms - complications | Child | Brain tumors | Tumors
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8. Full Text Systematic review and meta‐analysis of health‐related quality of life in pediatric CNS tumor survivors
by Schulte, Fiona and Russell, K. Brooke and Cullen, Patricia and Embry, Leanne and Fay‐McClymont, Taryn and Johnston, Donna and Rosenberg, Abby R and Sung, Lillian
Pediatric Blood & Cancer, ISSN 1545-5009, 08/2017, Volume 64, Issue 8, p. n/a
Background Pediatric central nervous system (CNS) tumor survivors are at high risk for numerous late effects including decreased health‐related quality of life... 
psychosocial | pediatric oncology | quality of life | CNS tumors | late effects of cancer treatment | ADULT SURVIVORS | ADOLESCENT SURVIVORS | LONG-TERM COMPLICATIONS | HEAD-START-I | FOLLOW-UP | CANCER | CHILDREN | ONCOLOGY | CRANIOPHARYNGIOMA | PEDIATRICS | CHILDHOOD BRAIN-TUMOR | HEMATOLOGY | MEDULLOBLASTOMA | Humans | Survivors | Quality of Life | Female | Male | Health Status | Central Nervous System Neoplasms - complications | Child | Pediatrics | Analysis | Cancer | Therapy | Reviews | Health | Central nervous system | Health risks | Tools | Risk | Diagnosis | Age | Quality of life
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9. Full Text Psychosocial service use and unmet need among recently diagnosed adolescent and young adult cancer patients
by Zebrack, Brad J and Block, Rebecca and Hayes‐Lattin, Brandon and Embry, Leanne and Aguilar, Christine and Meeske, Kathleen A and Li, Yun and Butler, Melissa and Cole, Steven
Cancer, ISSN 0008-543X, 01/2013, Volume 119, Issue 1, pp. 201 - 214
BACKGROUND: Adolescents and young adults (AYAs) with cancer demonstrate biomedical risks and psychosocial issues distinct from those of children or older... 
psychosocial | young adult | adolescent | supportive care | LONG-TERM SURVIVORS | METAANALYSIS | PROTOCOLS | INFORMATION | CARE | EXERCISE | CHILDHOOD-CANCER | ONCOLOGY | ACUTE LYMPHOBLASTIC-LEUKEMIA | QUALITY-OF-LIFE | Prospective Studies | Humans | Social Support | Male | Adolescent Health Services | Neoplasms - psychology | Young Adult | Neoplasms - therapy | Adolescent | Adult | Female | Mental Health Services - utilization | Needs Assessment | Patient Education as Topic | Cancer patients | Care and treatment | Usage | Research | Demographic aspects | Youth services
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10. Full Text Health-Related Quality of Life in Adolescent and Young Adult Patients With Cancer: A Longitudinal Study
by Husson, O and Zebrack, B.J and Block, R and Embry, L and Aguilar, C and Hayes-Lattin, B and Cole, S
Journal of Clinical Oncology, ISSN 0732-183X, 2017, Volume 35, Issue 6, pp. 652 - 659
Purpose To examine changes in health-related quality of life (HRQoL) and its predictors during the first 2 years after initial cancer diagnosis in adolescent... 
UNITED-STATES | CHILDHOOD-CANCER | IMPACT | ONCOLOGY | DISTRESS | OUTCOMES | SURVIVORS | CHILDREN | Prospective Studies | Age Factors | Humans | Self Report | Male | Neoplasms - psychology | Young Adult | Neoplasms - therapy | Adolescent | Quality of Life | Adult | Female | Neoplasms - physiopathology | Longitudinal Studies
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11. Full Text A Review of Chronic Leukoencephalopathy among Survivors of Childhood Cancer
by Partap, Sonia and Russo, Suzanne and Esfahani, Bijan and Yeom, Kristen and Mazewski, Claire and Embry, Leanne and Wheeler, Greg and Ullrich, Nicole J and Bowers, Daniel C
Pediatric Neurology, ISSN 0887-8994, 12/2019, Volume 101, pp. 2 - 10
Currently, there are an estimated 400,000 long-term survivors of childhood cancer in the United States. Chronic leukoencephalopathy is a potential devastating... 
Chemotherapy | Radiation therapy | Stem cell transplant | Survivorship | Chronic leukoencephalopathy | Childhood cancer
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12. Full Text Receipt of a survivorship care plan and self-reported health behaviors among cancer survivors
by Shay, L Aubree and Schmidt, Susanne and Dioun, Shayda I and Grimes, Allison and Embry, Leanne
Journal of Cancer Survivorship, ISSN 1932-2259, 4/2019, Volume 13, Issue 2, pp. 180 - 186
Our study aims to determine whether receipt of a written survivorship care plan (SCP) is associated with five self-reported health behaviors known to be... 
Survivorship care plan | Public Health | Exercise | Medicine & Public Health | Health Promotion and Disease Prevention | Quality of Life Research | Oncology | Health Informatics | Primary Care Medicine | Health behaviors | Cancer screening | Smoking | SOCIAL SCIENCES, BIOMEDICAL | FOLLOW-UP | BARRIERS | PREVALENCE | BREAST | EXPERIENCES | ONCOLOGY | DISEASE | BURDEN | Cancer survivors | Analysis | Oncology, Experimental | Colorectal cancer | Mammography | Information management | Research | Diagnosis | Risk factors | Cancer | Data analysis | Health promotion | Health | Colorectal carcinoma | Health risks | Data processing | Risk taking | Regression analysis | Medical screening | Risk analysis | Survival | Screening | Regression models | Health behavior
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13. Full Text QOL-24. NEUROCOGNITIVE STATUS IN SUPRATENTORIAL PNET TREATED ON COG ACNS0332 WITHIN THE FIRST 30 MONTHS FROM DIAGNOSIS: A REPORT FROM THE CHILDREN’S ONCOLOGY GROUP
by Walsh, Karin and Hwang, Eugene and Hardy, Kristina and Embry, Leanne and Gioia, Anthony and Kennedy, Tess and Billups, Catherine and Li, Yimei and Packer, Roger and Olson, James
Neuro-Oncology, ISSN 1522-8517, 06/2018, Volume 20, Issue suppl_2, pp. i162 - i162
Abstract Supratentorial primitive neuroectodermal tumors (sPNETs) in children are aggressive tumors that require intensive chemotherapy and craniospinal... 
Abstracts
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14. Full Text Neuropsychological functioning of children treated for acute lymphoblastic leukemia: impact of whole brain radiation therapy
by Annett, Robert D and Hile, Sarah and Bedrick, Edward and Kunin‐Batson, Alicia S and Krull, Kevin R and Embry, Leanne and MacLean, Willliam E and Noll, Robert B
Psycho‐Oncology, ISSN 1057-9249, 02/2015, Volume 24, Issue 2, pp. 181 - 189
Objectives To provide one of the first prospective reports examining neuropsychological outcomes for children treated with 1800 cGy whole brain radiotherapy... 
neuropsychological outcomes | children | Leukemia | late effects | whole brain radiotherapy | Late effects | Children | Neuropsychological outcomes | Whole brain radiotherapy | LONG-TERM SURVIVORS | VISUAL-MOTOR INTEGRATION | SOCIAL SCIENCES, BIOMEDICAL | CHILDHOOD LEUKEMIA | CHEMOTHERAPY | PSYCHOLOGY | PSYCHOLOGY, MULTIDISCIPLINARY | INTRATHECAL METHOTREXATE | DEVELOPMENTAL TEST | ONCOLOGY | NEUROCOGNITIVE FUNCTION | CRANIAL RADIATION | NORMATIVE DATA | YOUNG-CHILDREN | Brain | Prospective Studies | Humans | Precursor Cell Lymphoblastic Leukemia-Lymphoma - psychology | Child, Preschool | Memory - radiation effects | Male | Attention - radiation effects | Neuropsychological Tests | Young Adult | Adolescent | Psychomotor Performance - radiation effects | Female | Executive Function - radiation effects | Achievement | Child | Longitudinal Studies | Cognition - radiation effects | Precursor Cell Lymphoblastic Leukemia-Lymphoma - radiotherapy | Chemotherapy | Acute lymphocytic leukemia | Radiotherapy | Radiation | Cancer | Child psychology | Neuropsychology | Radiation therapy | Medical diagnosis | Index Medicus
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15. Full Text Long‐term evidence that a pediatric oncology mentorship program for young investigators is feasible and beneficial in the cooperative group setting: A report from the Children's Oncology Group
by Esbenshade, Adam J and Pierson, Christopher R and Thompson, Amanda L and Reed, Damon and Gupta, Abha and Levy, Adam and Kahalley, Lisa S and Harker‐Murray, Paul and Schore, Reuven and Muscal, Jodi A and Embry, Leanne and Maloney, Kelly and Horton, Terzah and Zweidler‐Mckay, Patrick and Dhall, Girish
Pediatric Blood & Cancer, ISSN 1545-5009, 03/2018, Volume 65, Issue 3, pp. e26878 - n/a
Background Mentorship of junior faculty is an integral component of career development. The Children's Oncology Group (COG) Young Investigator (YI) Committee... 
pediatric oncology | career development | mentorship | ACADEMIC MEDICINE | MENTORING PROGRAM | ONCOLOGY | PEDIATRICS | HEMATOLOGY | Career development | Pediatrics | Mentors | Authoring | Leadership | Research & development--R&D | Committees | Careers | Oncology | Children | Reporting | Professional development | Career development planning
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