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by Gatta, Gemma and Capocaccia, Riccardo and Botta, Laura and Mallone, Sandra and De Angelis, Roberta and Ardanaz, Eva and Comber, Harry and Dimitrova, Nadya and Leinonen, Maarit K and Siesling, Sabine and van der Zwan, Jan M and Van Eycken, Liesbet and Visser, Otto and Žakelj, Maja P and Anderson, Lesley A and Bella, Francesca and Kaire, Innos and Otter, Renée and Stiller, Charles A and Trama, Annalisa and Hackl, Monika and Henau, Kris and Van Damme, Nancy and Valerianova, Zdravka and Sekerija, Mario and Dušek, Ladislav and Mägi, Margit and Paapsi, Keiu and Malila, Nea and Velten, Michel and Troussard, Xavier and Bouvier, Veronique and Bouvier, Anne-Marie and Guizard, Anne-Valérie and Arveux, Patrick and Maynadié, Marc and Woronoff, Anne-Sophie and Robaszkiewicz, Michel and Baldi, Isabelle and Monnereau, Alain and Tretarre, Brigitte and Colonna, Marc and Molinié, Florence and Bara, Simona and Schvartz, Claire and Lapôtre-Ledoux, Bénédicte and Grosclaude, Pascale and Stabenow, Roland and Luttmann, Sabine and Nennecke, Alice and Engel, Jutta and SchubertFritschle, Gabriele and Heidrich, Jan and Holleczek, Bernd and Jónasson, Jón Gunnlaugur and Clough-Gorr, Kerri and Mazzoleni, Guido and Giacomin, Adriano and Sardo, Antonella Sutera and Barchielli, Alessandro and Serraino, Diego and Collarile, Paolo and Pannozzo, Fabio and Ricci, Paolo and Autelitano, Mariangela and Spagnoli, Gianbattista and Fusco, Mario and Usala, Mario and Vitale, Francesco and Michiara, Maria and Tumino, Rosario and Mangone, Lucia and Falcini, Fabio and Ferretti, Stefano and Filiberti, Rosa Angela and Marani, Enza and Caiazzo, Anna Luisa and Iannelli, Arturo and Sensi, Flavio and Piffer, Silvano and Gentilini, Maria and Madeddu, Anselmo and Colanino, Antonino Ziino and Maspero, Sergio and Candela, Pina and Stracci, Fabrizio and Tagliabue, Giovanna and Rugge, Massimo and Baili, Paolo and Minicozzi, Pamela and Sant, Milena and Tereanu, Carmen and Francisci, Silvia and Tavilla, Andrea and Pierannunzio, Daniela and Rossi, Silvia and Santaquilani, Mariano and Knijn, Arnold and Pildava, Santa and Smailyte, Giedre and ... and RARECAREnet Working Grp and RARECAREnet working group
The Lancet Oncology, ISSN 1470-2045, 08/2017, Volume 18, Issue 8, pp. 1022 - 1039
Journal Article
by Lykoudis, Panagis M and Partelli, Stefano and Muffatti, Francesca and Caplin, Martyn and Falconi, Massimo and Fusai, Giuseppe K and Hackl, Monika and Van Eycken, Elizabeth and Henau, Kris and Dimitrova, Nadya and Sekerija, Mario and Dušek, Ladislav and Mägi, Margit and Malila, Nea and Leinonen, Maarit and Velten, Michel and Troussard, Xavier and Bouvier, Anne-Marie and Bouvier, Veronique and Guizard, Anne-Valérie and Arveux, Patrick and Maynadié, Marc and Woronoff, Anne-Sophie and Robaszkiewicz, Michel and Baldi, Isabelle and Monnereau, Alain and Tretarre, Brigitte and Colonna, Marc and Molinié, Florence and Bara, Simona and Schvartz, Claire and Lapôtre-Ledoux, Bénédicte and Grosclaude, Pascale and Stabenow, Roland and Luttmann, Sabine and Nennecke, Alice and Engel, Jutta and Schubert-Fritschle, Gabriele and Heidrich, Jan and Holleczek, Bernd and Jónasson, Jón Gunnlaugur and Clough-Gorr, Kerri and Comber, Harry and Mazzoleni, Guido and Giacomin, Adriano and Sardo, Antonella Sutera and Barchielli, Alessandro and Serraino, Diego and De Angelis, Roberta and Mallone, Sandra and Tavilla, Andrea and Pierannunzio, Daniela and Rossi, Silvia and Santaquilani, Mariano and Knijn, Arnold and Pannozzo, Fabio and Gennaro, Valerio and Benfatto, Lucia and Ricci, Paolo and Autelitano, Mariangela and Spagnoli, Gianbattista and Fusco, Mario and Usala, Mario and Vitale, Francesco and Michiara, Maria and Tumino, Rosario and Mangone, Lucia and Falcini, Fabio and Ferretti, Stefano and Filiberti, Rosa Angela and Marani, Enza and Iannelli, Arturo and Sensi, Flavio and Piffer, Silvano and Gentilini, Maria and Madeddu, Anselmo and Ziino, Antonio and Maspero, Sergio and Candela, Pina and Stracci, Fabrizio and Tagliabue, Giovanna and Rugge, Massimo and Trama, Annalisa and Gatta, Gemma and Botta, Laura and Capocaccia, Riccardo and Pildava, Santa and Smailyte, Giedre and Calleja, Neville and Johannesen, Tom Børge and Rachtan, Jadwiga and Góźdź, Stanisław and Błaszczyk, Jerzy and Kępska, Kamila and de Lacerda, Gonçalo Forjaz and Bento, Maria José and Miranda, Ana and Diba, Chakameh Safaei and Almar, Enrique and Larrañaga, Nerea and ... and RARECARENet Working Grp and RARECARENet Working Group
European Journal of Surgical Oncology, ISSN 0748-7983, 01/2019, Volume 45, Issue 1, pp. 46 - 51
Pancreatic Neuroendocrine Neoplasms comprise a group of rare tumours with special biology, an often indolent behaviour and particular diagnostic and... 
Rare cancers | Liver metastases | Neuroendocrine tumours | Pancreas | SURGERY | MANAGEMENT | NEOPLASMS | ENETS CONSENSUS GUIDELINES | FLUOROURACIL | STREPTOZOCIN | CENTRALIZATION | ONCOLOGY | GRADE | RESECTIONS | Life Sciences
Journal Article
PLoS genetics, ISSN 1553-7390, 10/2010, Volume 6, Issue 10, pp. 1 - 11
Journal Article
by Gatta, Gemma and Gatta, G and Trama, A and Trama, Annalisa and Capocaccia, R and Capocaccia, Riccardo and Hackl, Monika and Eycken, Elizabeth Van and Henau, Kris and Dimitrova, Nadya and Sekerija, Mario and Dušek, Ladislav and Mägi, Margit and Malila, Nea and Leinonen, Maarit and Velten, Michel and Troussard, Xavier and Bouvier, Anne-Marie and Bouvier, Veronique and Guizard, Anne-Valérie and Arveux, Patrick and Maynadié, Marc and Woronoff, Anne-Sophie and Robaszkiewicz, Michel and Baldi, Isabelle and Monnereau, Alain and Tretarre, Brigitte and Colonna, Marc and Molinié, Florence and Bara, Simona and Schvartz, Claire and Lapôtre-Ledoux, Bénédicte and Grosclaude, Pascale and Stabenow, Roland and Luttmann, Sabine and Nennecke, Alice and Engel, Jutta and Schubert-Fritschle, Gabriele and Heidrich, Jan and Holleczek, Bernd and Jónasson, Jón Gunnlaugur and Clough-Gorr, Kerri and Comber, Harry and Mazzoleni, Guido and Giacomin, Adriano and Sardo, Antonella Sutera and Barchielli, Alessandro and Serraino, Diego and De Angelis, Roberta and Mallone, Sandra and Tavilla, Andrea and Pierannunzio, Daniela and Rossi, Silvia and Santaquilani, Mariano and Knijn, Arnold and Pannozzo, Fabio and Gennaro, Valerio and Benfatto, Lucia and Ricci, Paolo and Autelitano, Mariangela and Spagnoli, Gianbattista and Fusco, Mario and Usala, Mario and Vitale, Francesco and Michiara, Maria and Tumino, Rosario and Mangone, Lucia and Falcini, Fabio and Ferretti, Stefano and Filiberti, Rosa Angela and Marani, Enza and Iannelli, Arturo and Sensi, Flavio and Piffer, Silvano and Gentilini, Maria and Madeddu, Anselmo and Ziino, Antonio and Maspero, Sergio and Candela, Pina and Stracci, Fabrizio and Tagliabue, Giovanna and Rugge, Massimo and Botta, Laura and Pildava, Santa and Smailyte, Giedre and Calleja, Neville and Johannesen, Tom Børge and Rachtan, Jadwiga and Góźdź, Stanisław and Błaszczyk, Jerzy and Kępska, Kamila and de Lacerda, Forjaz and Bento, Maria José and Miranda, Ana and Diba, Chakameh Safaei and Almar, Enrique and Larrañaga, Nerea and de Munain, Arantza Lopez and Torrella-Ramos, Ana and Díaz García, José María and ... and RARECARENet Working Grp and RARECARENet Working Group
European Journal of Surgical Oncology, ISSN 0748-7983, 01/2019, Volume 45, Issue 1, pp. 3 - 11
Rare cancers epidemiology is better known compared to the other rare diseases. Thanks to the long history of the European population-based cancer registries... 
Rare cancers | Europe | Population-based cancer registry | SURGERY | ONCOLOGY | BURDEN | Life Sciences
Journal Article
by Imbimbo, Martina and Maury, Jean-Michel and Garassino, Marina and Girard, Nicolas and Hackl, Monika and Eycken, Elizabeth Van and Henau, Kris and Dimitrova, Nadya and Sekerija, Mario and Dušek, Ladislav and Mägi, Margit and Malila, Nea and Leinonen, Maarit and Velten, Michel and Troussard, Xavier and Bouvier, Anne-Marie and Bouvier, Veronique and Guizard, Anne-Valérie and Arveux, Patrick and Maynadié, Marc and Woronoff, Anne-Sophie and Robaszkiewicz, Michel and Baldi, Isabelle and Monnereau, Alain and Tretarre, Brigitte and Colonna, Marc and Molinié, Florence and Bara, Simona and Schvartz, Claire and Lapôtre-Ledoux, Bénédicte and Grosclaude, Pascale and Stabenow, Roland and Luttmann, Sabine and Nennecke, Alice and Engel, Jutta and Schubert-Fritschle, Gabriele and Heidrich, Jan and Holleczek, Bernd and Jónasson, Jón Gunnlaugur and Clough-Gorr, Kerri and Comber, Harry and Mazzoleni, Guido and Giacomin, Adriano and Sardo, Antonella Sutera and Barchielli, Alessandro and Serraino, Diego and De Angelis, Roberta and Mallone, Sandra and Tavilla, Andrea and Pierannunzio, Daniela and Rossi, Silvia and Santaquilani, Mariano and Knijn, Arnold and Pannozzo, Fabio and Gennaro, Valerio and Benfatto, Lucia and Ricci, Paolo and Autelitano, Mariangela and Spagnoli, Gianbattista and Fusco, Mario and Usala, Mario and Vitale, Francesco and Michiara, Maria and Tumino, Rosario and Mangone, Lucia and Falcini, Fabio and Ferretti, Stefano and Angela Filiberti, Rosa and Marani, Enza and Iannelli, Arturo and Sensi, Flavio and Piffer, Silvano and Gentilini, Maria and Madeddu, Anselmo and Ziino, Antonio and Maspero, Sergio and Candela, Pina and Stracci, Fabrizio and Tagliabue, Giovanna and Rugge, Massimo and Trama, Annalisa and Gatta, Gemma and Botta, Laura and Capocaccia, Riccardo and Pildava, Santa and Smailyte, Giedre and Calleja, Neville and Johannesen, Tom Børge and Rachtan, Jadwiga and Góźdź, Stanisław and Błaszczyk, Jerzy and Kępska, Kamila and de Lacerda, Gonçalo Forjaz and Bento, Maria José and Miranda, Ana and Diba, Chakameh Safaei and Almar, Enrique and Larrañaga, Nerea and de Munain, Arantza Lopez and Torrella-Ramos, Ana and ... and RARECAREnet Working Grp and RARECAREnet Working Group
European Journal of Surgical Oncology, ISSN 0748-7983, 01/2019, Volume 45, Issue 1, pp. 75 - 80
The management of patients with mesothelioma and thymic malignancy requires continuous multidisciplinary expertise at any step of the disease. A dramatic... 
CLINICAL-PRACTICE GUIDELINES | SURGERY | DEFINITIONS | CARBOPLATIN | THERAPY | ONCOLOGY | EXTRAPLEURAL PNEUMONECTOMY | EPITHELIAL TUMORS | PHASE-II | THYMOMA | CHEMOTHERAPY | MALIGNANT-PLEURAL-MESOTHELIOMA
Journal Article
by Orlandi, Ester and Alfieri, Salvatore and Simon, Christian and Trama, Annalisa and Licitra, Lisa and Hackl, Monika and Eycken, Elizabeth Van and Henau, Kris and Dimitrova, Nadya and Sekerija, Mario and Dušek, Ladislav and Mägi, Margit and Malila, Nea and Leinonen, Maarit and Velten, Michel and Troussard, Xavier and Bouvier, Anne-Marie and Bouvier, Veronique and Guizard, Anne-Valérie and Arveux, Patrick and Maynadié, Marc and Woronoff, Anne-Sophie and Robaszkiewic, Michel and Baldi, Isabelle and Monnereau, Alain and Tretarre, Brigitte and Colonna, Marc and Molinié, Florence and Bara, Simona and Schvartz, Claire and Lapôtre-Ledoux, Bénédicte and Grosclaude, Pascale and Stabenow, Roland and Luttmann, Sabine and Nennecke, Alice and Engel, Jutta and Schubert-Fritschle, Gabriele and Heidrich, Jan and Holleczek, Bernd and Jónasson, Jón Gunnlaugur and Clough-Gorr, Kerri and Comber, Harry and Mazzoleni, Guido and Giacomin, Adriano and Sutera Sardo, Antonella and Barchielli, Alessandr and Serraino, Diego and De Angelis, Roberta and Mallone, Sandra and Tavilla, Andrea and Pierannunzio, Daniela and Rossi, Silvia and Santaquilani, Mariano and Knijn, Arnold and Pannozzo, Fabio and Gennaro, Valerio and Benfatto, Lucia and Ricci, Paolo and Autelitano, Mariangela and Spagnoli, Gianbattista and Fusco, Mario and Usala, Mario and Vitale, Francesco and Michiara, Maria and Tumino, Rosario and Mangone, Lucia and Falcini, Fabio and Ferretti, Stefano and Filiberti, Rosa Angela and Marani, Enza and Iannelli, Arturo and Sensi, Flavio and Piffer, Silvano and Gentilini, Maria and Madeddu, Anselmo and Ziino, Antonio and Maspero, Sergio and Candela, Pina and Stracci, Fabrizio and Tagliabue, Giovanna and Rugge, Massimo and Gatta, Gemma and Botta, Laura and Capocaccia, Riccardo and Pildava, Santa and Smailyte, Giedre and Calleja, Neville and Johannesen, Tom Børge and Rachtan, Jadwiga and Góźdź, Stanisław and Błaszczyk, Jerzy and Kępska, Kamila and de Lacerda, Gonçalo Forjaz and Bento, Maria José and Miranda, Ana and Diba, Chakameh Safaei and Almar, Enrique and Larrañaga, Nerea and de Munain, Arantza Lopez and Torrella-Ramos, Ana and ... and RARECARENet Working Grp and RARECAREnet Working Group
European Journal of Surgical Oncology, ISSN 0748-7983, 01/2019, Volume 45, Issue 1, pp. 40 - 45
Head and neck cancer (HNC) is a rare disease that can affect different sites and is characterized by variable incidence and 5-year survival rates across... 
Head and neck cancer | Multidisciplinary team | European reference networks joint action of rare cancers | Rare disease | SURVIVAL | SURGERY | RISK | MULTIDISCIPLINARY TEAM MANAGEMENT | CHEMOTHERAPY | CARE | IMPACT | ONCOLOGY | SQUAMOUS-CELL CARCINOMA | PATIENT | RADIOTHERAPY
Journal Article
by Pasquali, Sandro and Bonvalot, Sylvie and Tzanis, Dimitri and Casali, Paolo G and Trama, Annalisa and Gronchi, Alessandro and Hackl, Monika and Van Eycken, Elizabeth and Henau, Kris and Dimitrova, Nadya and Sekerija, Mario and Dušek, Ladislav and Mägi, Margit and Malila, Nea and Leinonen, Maarit and Velten, Michel and Troussard, Xavier and Bouvier, Anne-Marie and Bouvier, Veronique and Guizard, Anne-Valérie and Arveux, Patrick and Maynadié, Marc and Woronoff, Anne-Sophie and Robaszkiewicz, Michel and Baldi, Isabelle and Monnereau, Alain and Tretarre, Brigitte and Colonna, Marc and Molinié, Florence and Bara, Simona and Schvartz, Claire and Lapôtre-Ledoux, Bénédicte and Grosclaude, Pascale and Stabenow, Roland and Luttmann, Sabine and Nennecke, Alice and Engel, Jutta and Schubert-Fritschle, Gabriele and Heidrich, Jan and Bernd Holleczek and Jónasson, Jón Gunnlaugur and Clough-Gorr, Kerri and Comber, Harry and Mazzoleni, Guido and Giacomin, Adriano and Sardo, Antonella Sutera and Barchielli, Alessandro and Serraino, Diego and De Angelis, Roberta and Mallone, Sandra and Tavilla, Andrea and Pierannunzio, Daniela and Rossi, Silvia and Santaquilani, Mariano and Knijn, Arnold and Pannozzo, Fabio and Gennaro, Valerio and Benfatto, Lucia and Ricci, Paolo and Autelitano, Mariangela and Spagnoli, Gianbattista and Fusco, Mario and Usala, Mario and Vitale, Francesco and Michiara, Maria and Tumino, Rosario and Mangone, Lucia and Falcini, Fabio and Ferretti, Stefano and Filiberti, Rosa Angela and Marani, Enza and Iannelli, Arturo and Sensi, Flavio and Piffer, Silvano and Gentilini, Maria and Madeddu, Anselmo and Ziino, Antonio and Maspero, Sergio and Candela, Pina and Stracci, Fabrizio and Tagliabue, Giovanna and Rugge, Massimo and Gatta, Gemma and Botta, Laura and Capocaccia, Riccardo and Pildava, Santa and Smailyte, Giedre and Calleja, Neville and Johannesen, Tom Børge and Rachtan, Jadwiga and Góźdź, Stanisław and Błaszczyk, Jerzy and Kępska, Kamila and de Lacerda, Gonçalo Forjaz and Bento, Maria José and Miranda, Ana and Diba, Chakameh Safaei and Almar, Enrique and Larrañaga, Nerea and de Munain, Arantza Lopez and ... and RARECARENet Working Grp and RARECARENet Working Group
European Journal of Surgical Oncology, ISSN 0748-7983, 01/2019, Volume 45, Issue 1, pp. 31 - 39
Patients with soft tissue sarcoma (STS) experienced better outcomes when treated according to existing clinical practice guidelines either at reference... 
Referral centre | Treatment | Sarcoma | Network | Guidelines | SURGERY | DIAGNOSIS | MANAGEMENT | QUALITY | MULTIDISCIPLINARY CANCER TEAMS | CLINICAL-PRACTICE GUIDELINES | EUROPE | DECISION-MAKING | ONCOLOGY | RETROPERITONEAL SARCOMA | RARE CANCERS | SCANDINAVIAN SARCOMA | Life Sciences
Journal Article