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pediatrics (4) 4
quality of life (4) 4
adolescent (3) 3
adult (3) 3
analysis (3) 3
female (3) 3
health aspects (3) 3
humans (3) 3
life sciences & biomedicine (3) 3
male (3) 3
science & technology (3) 3
young adult (3) 3
abridged index medicus (2) 2
antihypertensive agents - therapeutic use (2) 2
atenolol - therapeutic use (2) 2
cardiac and cardiovascular systems (2) 2
care and treatment (2) 2
child (2) 2
child, preschool (2) 2
children (2) 2
clinical medicine (2) 2
kardiologi (2) 2
klinisk medicin (2) 2
losartan - therapeutic use (2) 2
marfan syndrome (2) 2
marfan syndrome - complications (2) 2
marfan syndrome - drug therapy (2) 2
medical and health sciences (2) 2
medicin och hälsovetenskap (2) 2
pediatrik (2) 2
research (2) 2
surgery (2) 2
usage (2) 2
age factors (1) 1
angiotensin ii type 1 receptor blockers (1) 1
antihypertensive agents/therapeutic use (1) 1
aorta - pathology (1) 1
aorta - surgery (1) 1
aorta/pathology (1) 1
aortic diseases - epidemiology (1) 1
aortic diseases - etiology (1) 1
aortic diseases - surgery (1) 1
aortic diseases/epidemiology (1) 1
aortic root dilation (1) 1
atenolol/therapeutic use (1) 1
cardiac & cardiovascular systems (1) 1
cardiac patients (1) 1
cardiac surgery (1) 1
cardiology (1) 1
cardiovascular system (1) 1
cardiovascular system & cardiology (1) 1
congenital heart disease (1) 1
cross-sectional studies (1) 1
diagnosis (1) 1
dilatation (1) 1
echocardiography - methods (1) 1
echocardiography/methods (1) 1
follow-up studies (1) 1
fontan procedure - psychology (1) 1
genetics (1) 1
health status indicators (1) 1
heart (1) 1
humanities (1) 1
infant (1) 1
losartan/therapeutic use (1) 1
marfan syndrome - psychology (1) 1
marfan syndrome - surgery (1) 1
marfan syndrome/complications (1) 1
medicine & public health (1) 1
neurodevelopmental disorders (1) 1
no (1) 1
patient reported outcome measures (1) 1
patient-reported symptoms (1) 1
pedsql (1) 1
predictors (1) 1
psychosocial (1) 1
referral and consultation - statistics & numerical data (1) 1
referral and consultation/statistics & numerical data (1) 1
referral for aortic surgery (1) 1
risk assessment - methods (1) 1
risk assessment/methods (1) 1
risk factors (1) 1
roc curve (1) 1
severity of illness index (1) 1
surveys and questionnaires (1) 1
survivors (1) 1
united states - epidemiology (1) 1
vascular surgery (1) 1
vascular surgical procedures - statistics & numerical data (1) 1
vascular surgical procedures/statistics & numerical data (1) 1
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1. Full Text Assessment of Quality of Life in Young Patients with Single Ventricle after the Fontan Operation
by Uzark, Karen, PhD, CPNP and Zak, Victor, PhD and Shrader, Peter, MA and McCrindle, Brian W., MD, MPH and Radojewski, Elizabeth, RN and Varni, James W., PhD and Daniels, Kaitlyn, BSN, RN and Handisides, Jill, BSN and Hill, Kevin D., MD, MS and Lambert, Linda M., MSN, FNP and Margossian, Renee, MD and Pemberton, Victoria L., RNC, MS, CCRC and Lai, Wyman W., MD and Atz, Andrew M., MD and Pediatric Heart Network Investigators and Pediat Heart Network Investigators
The Journal of pediatrics, ISSN 0022-3476, 2015, Volume 170, pp. 166 - 172.e1
Pediatrics | Life Sciences & Biomedicine | Science & Technology | United States - epidemiology | Age Factors | Cross-Sectional Studies | Follow-Up Studies | Humans | Survivors | Fontan Procedure - psychology | Male | Young Adult | Adolescent | Quality of Life | Adult | Female | Surveys and Questionnaires | Health aspects | Analysis | Children | Index Medicus | Abridged Index Medicus | congenital heart disease | psychosocial | quality of life | PedsQL
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2. Full Text Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome
by Handisides, Jill C and Hollenbeck-Pringle, Danielle and Uzark, Karen and Trachtenberg, Felicia L and Pemberton, Victoria L and Atz, Teresa W and Bradley, Timothy J and Cappella, Elizabeth and De Nobele, Sylvia and Groh, Georgeann Keh-Teng and Hamstra, Michelle S and Korsin, Rosalind and Levine, Jami C and Lindauer, Bergen and Liou, Aimee and Neal, Meghan K Mac and Markham, Larry W and Morrison, Tonia and Mussatto, Kathleen A and Olson, Aaron K and Pierpont, Mary Ella M and Pyeritz, Reed E and Radojewski, Elizabeth A and Roman, Mary J and Xu, Mingfen and Lacro, Ronald V and Pediatric Heart Network Investigators
The Journal of pediatrics, ISSN 1097-6833, 01/2019, Volume 204, p. 1
Kardiologi | Clinical Medicine | Pediatrics | Cardiac and Cardiovascular Systems | Medical and Health Sciences | Medicin och hälsovetenskap | Pediatrik | Klinisk medicin
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3. Full Text Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome
by Handisides, Jill C and Hollenbeck-Pringle, Danielle and Uzark, Karen and Trachtenberg, Felicia L and Pemberton, Victoria L and Atz, Teresa W and Bradley, Timothy J and Cappella, Elizabeth and De Nobele, Sylvia and Groh, Georgeann Keh-Teng and Hamstra, Michelle S and Korsin, Rosalind and Levine, Jami C and Lindauer, Bergen and Liou, Aimee and Neal, Meghan K. Mac and Markham, Larry W and Morrison, Tonia and Mussatto, Kathleen A and Olson, Aaron K and Pierpont, Mary Ella M and Pyeritz, Reed E and Radojewski, Elizabeth A and Roman, Mary J and Xu, Mingfen and Lacro, Ronald V and Pearson, Gail and Stylianou, Mario and Mahony, Lynn and Sleeper, Lynn and Tennstedt, Sharon and Colan, Steven and Klein, Gloria and Guey, Lin and Wruck, Lisa and Travison, Thomas and Chen, Shan and Gerstenberger, Eric and Olesker, Tanya and Teitel, David F and Newburger, Jane and King, Martha and Dunbar-Masterson, Carolyn and Posa, Andrea and Nang, Quincy and Hass, Cara and Hsu, Daphne and Lai, Wyman and Hellenbrand, William and Printz, Beth and Devereux, Richard and Sherwood, Greysi and Vetter, Victoria and Paridon, Stephen and Gleason, Marie and Mirarchi, Nicole and DiLullo, Sandra and Ejembi, Agbenu and Morgan, Ruth and Benson, D. Woodrow and Border, William and Cnota, James and Heydarian, Haleh and James, Jeanne and Hogan, Kathryn and Bogenschutz, Lois and Benham, Mary Pat and Barnard, Teresa and Anderson, Page A.W and Li, Jennifer S and Wechsler, Stephanie Burns and Cook, Amanda and Sang, Charles and Covitz, Wesley and Sutton, Lori Jo and Crawford, Kari and Roberts, Summer and Palmer, Deborah and Saul, J. Philip and Atz, Andrew and Forbus, Geoffrey and Infinger, Patricia and Choudhury, Aparna and Minich, LuAnn and Williams, Richard and Yetman, Angela and Shearrow, Marian and Robinson, Michelle and Porter, June and McCrindle, Brian and Russell, Jennifer and Colman, Jack and Khaikin, Svetlana and Slater, Nancy and Dietz, Harry C and Ravekes, William J and Rykiel, Mary and Sparks, Elisabeth and MacCarrick, Gretchen and Leadroot, Jennifer and ... and New England Research Institutes and Pediatric Heart Network Investigators and Pediat Heart Network Investigators
The Journal of pediatrics, ISSN 0022-3476, 01/2019, Volume 204, pp. 250 - 255.e1
neurodevelopmental disorders | patient-reported symptoms | yes | Life Sciences & Biomedicine | Pediatrics | Science & Technology | Severity of Illness Index | Marfan Syndrome - psychology | Health Status Indicators | Humans | Child, Preschool | Male | Antihypertensive Agents - therapeutic use | Young Adult | Atenolol - therapeutic use | Marfan Syndrome - drug therapy | Adolescent | Losartan - therapeutic use | Quality of Life | Adult | Female | Marfan Syndrome - complications | Child | Patient Reported Outcome Measures | Index Medicus | Abridged Index Medicus
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4. Full Text Predictors of Rapid Aortic Root Dilation and Referral for Aortic Surgery in Marfan Syndrome
by Hoskoppal, Arvind and Menon, Shaji and Trachtenberg, Felicia and Burns, Kristin M and De Backer, Julie and Gelb, Bruce D and Gleason, Marie and James, Jeanne and Lai, Wyman W and Liou, Aimee and Mahony, Lynn and Olson, Aaron K and Pyeritz, Reed E and Sharkey, Angela M and Stylianou, Mario and Wechsler, Stephanie Burns and Young, Luciana and Levine, Jami C and Tierney, Elif Seda Selamet and Lacro, Ronald V and Bradley, Timothy J and Pediat Heart Network Investigators and Pediatric Heart Network Investigators
Pediatric cardiology, ISSN 0172-0643, 2018, Volume 39, Issue 7, pp. 1453 - 1461
no | Medicine & Public Health | Cardiac Surgery | Referral for aortic surgery | Vascular Surgery | Cardiology | Marfan syndrome | Predictors | Aortic root dilation | Cardiac & Cardiovascular Systems | Pediatrics | Life Sciences & Biomedicine | Cardiovascular System & Cardiology | Science & Technology | Risk Assessment - methods | Humans | Marfan Syndrome - surgery | Echocardiography - methods | Child, Preschool | Vascular Surgical Procedures - statistics & numerical data | Infant | Male | Young Adult | Angiotensin II Type 1 Receptor Blockers | Marfan Syndrome - drug therapy | Dilatation | Adult | Female | Marfan Syndrome - complications | Child | Aortic Diseases - epidemiology | Risk Factors | Referral and Consultation - statistics & numerical data | Antihypertensive Agents - therapeutic use | Aorta - pathology | Aortic Diseases - surgery | Atenolol - therapeutic use | Aorta - surgery | Adolescent | Losartan - therapeutic use | ROC Curve | Aortic Diseases - etiology | Cardiovascular system | Care and treatment | Usage | Surgery | Diagnosis | Research | Index Medicus | Medical and Health Sciences | Medicin och hälsovetenskap | Pediatrik | Aortic Diseases/epidemiology | Marfan Syndrome/complications | Klinisk medicin | Kardiologi | Echocardiography/methods | Aorta/pathology | Risk Assessment/methods | Losartan/therapeutic use | Vascular Surgical Procedures/statistics & numerical data | Antihypertensive Agents/therapeutic use | Clinical Medicine | Cardiac and Cardiovascular Systems | Referral and Consultation/statistics & numerical data | Atenolol/therapeutic use
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5. Full Text Quality of life in adolescents and young adults after the fontan operation: the pediatric heart network fontan follow-up study
by Uzark, Karen and Zak, Victor and Shrader, Peter and McCrindle, Brian W and Radojewski, Elizabeth and Varni, James W and Handisides, Jill and Daniels, Kaitlyn and Hill, Kevin and Lambert, Linda and Margossian, Renee and Pemberton, Victoria L and Lai, Wyman W and Atz, Andrew M
Circulation (New York, N.Y.), ISSN 0009-7322, 11/2014, Volume 130, Issue 22
Heart | Usage | Analysis | Cardiac patients | Surgery | Health aspects | Quality of life
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6. Full Text Abstract 9979: Health-Related Quality of Life in Children With Marfan Syndrome
by Handisides, Jill C and Hollenbeck-Pringle, Danielle and Uzark, Karen and Trachtenberg, Felicia L and Pemberton, Victoria L and Atz, Teresa W and Bradley, Timothy J and De Nobele, Sylvia and Groh, Georgeann K and Hamstra, Michelle S and Korsin, Rosalind and Levine, Jami C and Mac Neal, Meghan K and Markham, Larry W and Morrison, Tonia and Mussatto, Kathleen and Olson, Aaron K and Pierpont, Mary Ella M and Roman, Mary J and Pyeritz, Reed E and Radojewski, Elizabeth A and Robinson, Michelle and Sparks, Elizabeth A and Waitzman, Kathryn and Xu, Mingfen and Lacro, Ronald V
Circulation (New York, N.Y.), ISSN 0009-7322, 11/2015, Volume 132, Issue Suppl_3 Suppl 3, pp. A9979 - A9979
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7. Full Text Health-related quality of life in children with marfan syndrome
by Handisides, Jill C and Hollenbeck-Pringle, Danielle and Uzark, Karen and Trachtenberg, Felicia L and Pemberton, Victoria L and Atz, Teresa W and Bradley, Timothy J and Nobele, Sylvia De and Groh, Georgeann K and Hamstra, Michelle S and Korsin, Rosalind and Levine, Jami C and Neal, Meghan K Mac and Markham, Larry W and Morrison, Tonia and Mussatto, Kathleen and Olson, Aaron K and Pierpont, Mary Ella M and Roman, Mary J and Pyeritz, Reed E and Radojewski, Elizabeth A and Robinson, Michelle and Sparks, Elizabeth A and Waitzman, Kathryn and Xu, Mingfen and Lacro, Ronald V
Circulation (New York, N.Y.), ISSN 0009-7322, 11/2015, Volume 132, Issue 19
Care and treatment | Analysis | Genetics | Children | Research | Health aspects | Marfan syndrome | Quality of life
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