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1. Full Text Applying PRO Reference Values to Communicate Clinically Relevant Information at the Point-of-care
by Jensen, Roxanne E and Bjorner, Jakob B
Medical Care, ISSN 0025-7079, 05/2019, Volume 57 Suppl 5 Suppl 1, Issue 5, pp. S24 - S30
INTRODUCTION:The inclusion of reference values for common patient-reported outcomes (PROs) measures in clinical care settings provides a clinically relevant... 
SYSTEM | patient-reported outcomes | reference values | PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH | QUALITY | health communication | HEALTH CARE SCIENCES & SERVICES | HEALTH POLICY & SERVICES | HEALTH | delivery of health care | SEVERITY | LIFE | Medical personnel | Medical care | Practice | Treatment outcome | Analysis
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2. Full Text Beyond methods to applied research: Realizing the vision of PROMIS
by Smith, Ashley Wilder and Jensen, Roxanne E
Health psychology : official journal of the Division of Health Psychology, American Psychological Association, ISSN 0278-6133, 05/2019, Volume 38, Issue 5, pp. 347 - 350
Patients' perspectives about their health are critical to improving health outcomes. Patient reported outcomes (PRO) are emerging as a standard way to capture... 
Biomedical Research - methods | Humans | Patient Reported Outcome Measures | Measurement | Medical research | Health status | Life course | Clinical research | Research | Care delivery | Clinical outcomes | Applied research
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3. Full Text Electronic patient‐reported outcome systems in oncology clinical practice
by Bennett, Antonia V and Jensen, Roxanne E and Basch, Ethan
CA: A Cancer Journal for Clinicians, ISSN 0007-9235, 09/2012, Volume 62, Issue 5, pp. 336 - 347
Answer questions and earn CME/CNE Patient‐reported outcome (PRO) questionnaires assess topics a patient can report about his or her own health. This includes... 
medical oncology | health outcomes | health communication | palliative care | chemotherapy | CHEMOTHERAPY-RELATED TOXICITY | TASK-FORCE REPORT | SYMPTOMS | RANDOMIZED CONTROLLED-TRIAL | PRO INSTRUMENTS | EQUIVALENCE | EXPERIENCES | ONCOLOGY | QUALITY-OF-LIFE | COMMUNICATION | PERCEPTIONS | Surveys | Practice | Treatment outcome | Oncology | Cancer patients | Palliative treatment | Clinical medicine | Patients | Quality of care | Questionnaires | Mental health
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4. Full Text Nonlinear Predictive Models for Multiple Mediation Analysis: With an Application to Explore Ethnic Disparities in Anxiety and Depression Among Cancer Survivors
by Yu, Qingzhao and Medeiros, Kaelen L and Wu, Xiaocheng and Jensen, Roxanne E
Psychometrika, ISSN 0033-3123, 12/2018, Volume 83, Issue 4, pp. 991 - 1006
Mediation analysis allows the examination of effects of a third variable (mediator/confounder) in the causal pathway between an exposure and an outcome. The... 
ethnic disparity | Psychology | Assessment, Testing and Evaluation | Psychometrics | Statistical Theory and Methods | health-related quality of life | MY-Health study | Statistics for Social Sciences, Humanities, Law | nonlinear models | mediation/confounding analysis | OLDER AMERICANS | DECOMPOSITION | IMPACT | MATHEMATICS, INTERDISCIPLINARY APPLICATIONS | confounding analysis | SOCIAL SCIENCES, MATHEMATICAL METHODS | PSYCHOLOGY, MATHEMATICAL | mediation | QUALITY-OF-LIFE | Data Interpretation, Statistical | Follow-Up Studies | Anxiety - ethnology | Humans | Middle Aged | Male | Cancer Survivors - psychology | Models, Statistical | Depression - ethnology | Hispanic Americans - psychology | Socioeconomic Factors | Young Adult | Aged, 80 and over | Quality of Life | Adult | Female | Aged | Nonlinear Dynamics | Cancer survivors | Prevention | Depression, Mental | Anxiety | Social aspects | Mediation | Cancer | Social interactions | Anxieties | Mental depression | Cultural differences | Hispanics
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5. Full Text Physical function metric over measure: An illustration with the Patient-Reported Outcomes Measurement Information System (PROMIS) and the Functional Assessment of Cancer Therapy (FACT)
: Linking PROMIS PF and FACT-G PWB
by Kaat, Aaron J and Schalet, Benjamin D and Rutsohn, Joshua and Jensen, Roxanne E and Cella, David
Cancer, ISSN 0008-543X, 01/2018, Volume 124, Issue 1, pp. 153 - 160
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6. Full Text You have free access to this content Physical function metric over measure: An illustration with the Patient-Reported Outcomes Measurement Information System (PROMIS) and the Functional Assessment of Cancer Therapy (FACT)
by Kaat, Aaron J and Schalet, Benjamin D and Rutsohn, Joshua and Jensen, Roxanne E and Cella, David
Cancer, ISSN 0008-543X, 01/2018, Volume 124, Issue 1, p. 153
Clinical trials | Cancer patients | Care and treatment | Usage | Analysis | Cancer
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7. Full Text PRO-cision Medicine: Personalizing patient care using patient-reported outcomes
by Jensen, Roxanne E and Snyder, Claire F
Journal of Clinical Oncology, ISSN 0732-183X, 02/2016, Volume 34, Issue 6, pp. 527 - 529
Humans | Self Report | Symptom Assessment | Quality of Life | Female | Male | Neoplasms - drug therapy
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8. Full Text Effects of gender and depressive symptoms on quality of life among colorectal and lung cancer patients and their family caregivers
: Dyadic quality of life
by Kim, Youngmee and van Ryn, Michelle and Jensen, Roxanne E and Griffin, Joan M and Potosky, Arnold and Rowland, Julia
Psycho-Oncology, ISSN 1057-9249, 01/2015, Volume 24, Issue 1, pp. 95 - 105
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9. Full Text Quality of life (QOL) measurement in patients receiving neoadjuvant therapy in the I-SPY 2 trial
by Hwang, Michael and Jensen, Roxanne E and Lyandres, Julia and Perlmutter, Jane and Coordinators and Research Nurses, I–SPY Two Trial and Esserman, Laura and Melisko, Michelle E
Journal of Clinical Oncology, ISSN 0732-183X, 05/2014, Volume 32, Issue 15_suppl, pp. TPS9656 - TPS9656
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10. Leveraging emerging technologies and the "Internet of Things" to improve the quality of cancer care
by Chung, Arlene E and Jensen, Roxanne E and Basch, Ethan M
Journal of Oncology Practice, ISSN 1554-7477, 10/2016, Volume 12, Issue 10, pp. 863 - 866
ONCOLOGY | Equipment and Supplies | Biomedical Technology - trends | Humans | Wearable Electronic Devices | Biomedical Technology - standards | Neoplasms - therapy | Patient-Centered Care - methods | Quality Improvement | Electronic Health Records - trends | Patient-Centered Care - trends | Quality of Health Care - standards | Internet | Biomedical Technology - instrumentation
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11. Full Text Patient-reported Outcomes (PROs): Putting the Patient Perspective in Patient-centered Outcomes Research
by Claire F. Snyder and Roxanne E. Jensen and Jodi B. Segal and Albert W. Wu
Medical Care, ISSN 0025-7079, 8/2013, Volume 51, Issue 8, pp. S73 - S79
Patient-centered outcomes research (PCOR) aims to improve care quality and patient outcomes by providing information that patients, clinicians, and family... 
Learning Health System | Health outcomes | Medication administration | Health care outcome assessment | Questionnaires | Data collection | Electronics | Clinical trials | Research studies | Research methods | Quality of life | patient-centered outcomes research | patient-reported outcomes | electronic data methods | PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH | CANCER CLINICAL-TRIALS | DISEASE | HEALTH CARE SCIENCES & SERVICES | HEALTH POLICY & SERVICES | QUALITY-OF-LIFE | PATIENTVIEWPOINT | HEALTH-STATUS | Outcome Assessment (Health Care) - methods | Policy | Health Services Research - organization & administration | Humans | Comparative Effectiveness Research - organization & administration | Data Collection | Patient-Centered Care - organization & administration | Electronic Health Records | Patient Satisfaction
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12. Full Text Health-related quality of life among survivors of aggressive non-Hodgkin lymphoma
: HRQOL Among Survivors of Aggressive NHL
by Jensen, Roxanne E and Arora, Neeraj K and Bellizzi, Keith M and Rowland, Julia H and Hamilton, Ann S and Aziz, Noreen M and Potosky, Arnold L
Cancer, ISSN 0008-543X, 02/2013, Volume 119, Issue 3, pp. 672 - 680
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13. Full Text Electronic patient-reported outcome systems in oncology clinical practice
by Bennett, Antonia V and Jensen, Roxanne E and Basch, Ethan
CA: a cancer journal for clinicians, 09/2012, Volume 62, Issue 5, pp. 337 - 347
Patient-reported outcome (PRO) questionnaires assess topics a patient can report about his or her own health. This includes symptoms (eg, nausea, fatigue,... 
Computers | Outcome Assessment (Health Care) - methods | Humans | Neoplasms - psychology | Patient Satisfaction | Medical Oncology | Neoplasms - complications | Neoplasms - therapy | Quality of Life | Surveys and Questionnaires | Cell Phone | Health Status | Needs Assessment
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14. Review of electronic patient-reported outcomes systems used in cancer clinical care
by Jensen, Roxanne E and Snyder, Claire F and Abernethy, Amy P and Basch, Ethan and Potosky, Arnold L and Roberts, Aaron C and Loeffler, Deena R and Reeve, Bryce B
Journal of Oncology Practice, ISSN 1554-7477, 07/2013, Volume 10, Issue 4, pp. e215 - e222
The use of electronic patient-reported outcomes (PRO) systems is increasing in cancer clinical care settings. This review comprehensively identifies existing... 
Neoplasms - therapy | Data Collection | Patient Outcome Assessment | Electronic Health Records | Humans
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15. Full Text Validation of the PROMIS physical function measures in a diverse US population-based cohort of cancer patients
by Roxanne E. Jensen and Arnold L. Potosky and Bryce B. Reeve and Elizabeth Hahn and David Cella and James Fries and Ashley Wilder Smith and Theresa H. M. Keegan and Xiao-Cheng Wu and Lisa Paddock and Carol M. Moinpour
Quality of Life Research, ISSN 0962-9343, 10/2015, Volume 24, Issue 10, pp. 2333 - 2344
Purpose To evaluate the validity of the Patient-Reported Outcomes Measurement Information System (PROMIS) physical function measures in a diverse,... 
Health outcomes | Health care administration | INSTRUMENT DEVELOPMENT | Wellbeing | Psychometrics | Mathematical functions | Bed rest | Epidemiology | Age | Cancer | Quality of life | Public Health | Medicine & Public Health | Quality of Life Research | Oncology | Patient-reported outcomes | Sociology, general | Physical function | Validation studies | RESPONSIVENESS | CARE | INFORMATION-SYSTEM PROMIS | IMPACT | FLOOR | PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH | FUNCTION ITEM BANK | HEALTH CARE SCIENCES & SERVICES | HEALTH POLICY & SERVICES | KARNOFSKY PERFORMANCE STATUS | QUALITY-OF-LIFE | SCALE | SURVIVORS | United States | Humans | Middle Aged | Male | Socioeconomic Factors | Young Adult | Ethnic Groups | Aged, 80 and over | Lymphoma, Non-Hodgkin - psychology | Adult | Female | Surveys and Questionnaires | Reproducibility of Results | Sickness Impact Profile | Treatment Outcome | Fatigue - diagnosis | Health Behavior | Lymphoma, Non-Hodgkin - therapy | Quality of Life | Patients - psychology | Aged | Cohort Studies | Lymphoma, Non-Hodgkin - diagnosis | Pain - diagnosis | Measurement | Care and treatment | Cancer patients | Lymphomas | Comorbidity | Analysis | Health | Validation Studies | Patient-Reported Outcomes | Physical Function
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16. Full Text Effects of gender and depressive symptoms on quality of life among colorectal and lung cancer patients and their family caregivers
by Kim, Youngmee and Ryn, Michelle and Jensen, Roxanne E and Griffin, Joan M and Potosky, Arnold and Rowland, Julia
Psycho‐Oncology, ISSN 1057-9249, 01/2015, Volume 24, Issue 1, pp. 95 - 105
Objective Cancer patients and their family caregivers often report elevated levels of depressive symptoms, along with poorer mental and physical health... 
dyadic adjustment | cancer | gender | quality of life | depressive symptoms | oncology | Depressive symptoms | Oncology | Gender | Dyadic adjustment | Cancer | Quality of life | METAANALYSIS | PSYCHOSOCIAL CARE | SOCIAL SCIENCES, BIOMEDICAL | TRAJECTORIES | PSYCHOLOGY | COMORBIDITY | PSYCHOLOGY, MULTIDISCIPLINARY | PSYCHOLOGICAL DISTRESS | HEALTH | OUTCOMES | BURDEN | WIVES | Colorectal Neoplasms - nursing | Colorectal Neoplasms - psychology | Caregivers - psychology | Humans | Middle Aged | Male | Sex Factors | Aged, 80 and over | Depression - psychology | Female | Aged | Lung Neoplasms - nursing | Quality of Life - psychology | Lung Neoplasms - psychology | Longitudinal Studies | Cohort Studies | Caregivers | Care and treatment | Cancer patients | Lung cancer | Depression, Mental | Colorectal cancer | Effects | Mental depression | Patients | Quality of Life | Depressive Symptoms | Dyadic Adjustment
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17. Full Text The Role of Technical Advances in the Adoption and Integration of Patient-reported Outcomes in Clinical Care
by Jensen, Roxanne E and Rothrock, Nan E and DeWitt, Esi M and Spiegel, Brennan and Tucker, Carole A and Crane, Heidi M and Forrest, Christopher B and Patrick, Donald L and Fredericksen, Rob and Shulman, Lisa M and Cella, David and Crane, Paul K
Medical Care, ISSN 0025-7079, 02/2015, Volume 53, Issue 2, pp. 153 - 159
BACKGROUND:Patient-reported outcomes (PROs) are gaining recognition as key measures for improving the quality of patient care in clinical care settings. Three... 
quality of care | clinical decision-making | Patient-reported outcomes | patient-reported outcomes | ROUTINE | RANDOMIZED CONTROLLED-TRIAL | PRIME-MD | EXPERIENCES | INFORMATION-SYSTEM PROMIS | IMPACT | PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH | CHRONIC ILLNESS | HEALTH CARE SCIENCES & SERVICES | HEALTH POLICY & SERVICES | QUALITY-OF-LIFE | ITEM RESPONSE THEORY | COMMUNICATION | Outcome Assessment (Health Care) - methods | Delivery of Health Care, Integrated - organization & administration | United States | Humans | Self Report | Quality of Health Care - standards | Internet | Patient Outcome Assessment | Data Collection - methods | Electronic Health Records | Organizational Case Studies | Patient Satisfaction
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18. Full Text United States population-based estimates of patient-reported outcomes measurement information system symptom and functional status reference values for individuals with cancer
by Jensen, Roxanne E and Potosky, Arnold L and Moinpour, Carol M and Lobo, Tania and Cella, David and Hahn, Elizabeth A and Thissen, David and Smith, Ashley Wilder and Ahn, Jaeil and Luta, George and Reeve, Bryce B
Journal of Clinical Oncology, ISSN 0732-183X, 06/2017, Volume 35, Issue 17, pp. 1913 - 1920
PurposeTo estimate cancer population-based reference values in the United States for eight PROMIS (Patient-Reported Outcomes Measurement Information System)... 
PROMIS MEASURES | TRIALS | ONCOLOGY | SURVEILLANCE | QUALITY-OF-LIFE | MINIMALLY IMPORTANT DIFFERENCES | HEALTH | PREVALENCE | GENERALIZABILITY | EPIDEMIOLOGY | Outcome Assessment (Health Care) - methods | United States - epidemiology | SEER Program | Humans | Self Report | Information Systems | Male | Reference Values | Patient Outcome Assessment | Aged, 80 and over | Female | Aged | Neoplasms - epidemiology | Quality of Life | Quality of Care | Outcomes Research | ORIGINAL REPORTS
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19. A computerized adaptive version of the SF-36 is feasible for clinic and Internet administration in adults with HIV
by Turner-Bowker, Diane M and Saris-Baglama, Renee N and DeRosa, Michael A and Giovannetti, Erin R and Jensen, Roxanne E and Wu, Albert W
AIDS care, ISSN 0954-0121, 07/2012, Volume 24, Issue 7, pp. 886 - 896
DYNHA SF-36 is a computerized adaptive test version of the SF-36 Health Survey. The feasibility of administering a modified DYNHA SF-36 to adults with HIV was... 
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20. Full Text Physical function metric over measure: An illustration with the Patient‐Reported Outcomes Measurement Information System (PROMIS) and the Functional Assessment of Cancer Therapy (FACT)
by Kaat, Aaron J and Schalet, Benjamin D and Rutsohn, Joshua and Jensen, Roxanne E and Cella, David
Cancer, ISSN 0008-543X, 01/2018, Volume 124, Issue 1, pp. 153 - 160
BACKGROUND Measuring patient‐reported outcomes (PROs) is becoming an integral component of quality improvement initiatives, clinical care, and research studies... 
Functional Assessment of Cancer Therapy (FACT) | Patient‐Reported Outcomes Measurement Information System (PROMIS) | item response theory | Physical Function | linking | Patient-Reported Outcomes Measurement Information System (PROMIS) | VALIDATION | SYMPTOMS | SUBSCALE | ONCOLOGY | SCORES | FUNCTION ITEM BANK | CLINICAL-TRIALS | SCALE | Reproducibility of Results | Prospective Studies | Humans | Surveys and Questionnaires | Neoplasms - physiopathology | Cohort Studies | Patient Reported Outcome Measures | Studies | Therapy | Physical training | Health | Identification methods | Research & development--R&D | Quality control | Cancer therapies | Information systems | Cancer | Functional Assessment of Cancer Therapy | PROMIS | Linking | Item Response Theory
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