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1. Full Text Editing policy to fit the genome? Framing genome editing policy requires setting thresholds of acceptability
by Isasi, R and Kleiderman, E and Knoppers, B.M
Science (American Association for the Advancement of Science), ISSN 0036-8075, 01/2016, Volume 351, Issue 6271, pp. 337 - 339
Science & Technology - Other Topics | Multidisciplinary Sciences | Science & Technology
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2. Full Text Introduction: the why and whither of genomic data sharing
by Knoppers, B M and Joly, Yann
Human genetics, ISSN 0340-6717, 8/2018, Volume 137, Issue 8, pp. 569 - 574
Human Genetics | Gene Function | Molecular Medicine | Biomedicine | Metabolic Diseases | Life Sciences & Biomedicine | Genetics & Heredity | Science & Technology | Genomics - trends | Humans | Genome, Human - genetics | Information Dissemination | Genetic aspects | Research | Laws, regulations and rules | Genomics | Index Medicus
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3. Full Text Les comités d’éthique de la recherche peuvent-ils encourager le partage de données des essais cliniques ?
by Thorogood, A and Knoppers, B.M
Ethics, medicine, and public health, 01/2017, Volume 3, Issue 1, pp. 56 - 63
Openness | Regulatory frameworks | Privacy | Data sharing | Clinical trials | Data | Research Ethics Committees
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4. Full Text Can research ethics committees enable clinical trial data sharing?
by Thorogood, A and Knoppers, B.M
Ethics, medicine, and public health, ISSN 2352-5525, 01/2017, Volume 3, Issue 1, pp. 56 - 63
Cadre réglementaire | Data sharing | Clinical trials | Publication | Data | Vie privée | Research Ethics Committees | Openness | Regulatory frameworks | Privacy | Essais cliniques | Comités d’éthique de la recherche | Données | Partage des données
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5. Trends in ethical and legal frameworks for the use of human biobanks
by Cambon-Thomsen, A and Rial-Sebbag, E and Knoppers, B.M
The European respiratory journal, ISSN 0903-1936, 08/2007, Volume 30, Issue 2, pp. 373 - 382
Bioethics | Informed consent | Human biobanks | Genetic databases | Confidentiality | Secondary use | Life Sciences & Biomedicine | Respiratory System | Science & Technology | Humans | Informed Consent - legislation & jurisprudence | Informed Consent - ethics | Physician-Patient Relations | Personal Autonomy | Genetic Privacy - ethics | Confidentiality - ethics | Bioethical Issues | Genetic Research | Biological Specimen Banks - legislation & jurisprudence | Genetic Privacy - legislation & jurisprudence | Confidentiality - legislation & jurisprudence | Biological Specimen Banks - ethics
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6. Full Text Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes
by Howard, H.C and Knoppers, B.M and Cornel, M.C and Wright Clayton, E and Senecal, K and Borry, P and European Soci Human Genetics and PHG Fdn and P3G Int Paediat Platform and Human Genome Org and European Society of Human Genetics and Human Genome Organisation; and the PHG Foundation and P3G International Paediatric Platform and endorsed by the European Society of Human Genetics; the P3G International Paediatric Platform; the Human Genome Organisation; and the PHG Foundation
European journal of human genetics : EJHG, ISSN 1018-4813, 2015, Volume 23, Issue 12, pp. 1593 - 1600
Biochemistry & Molecular Biology | Genetics & Heredity | Life Sciences & Biomedicine | Science & Technology | Genetic Testing - standards | Humans | Health Planning Guidelines | Genetic Testing - trends | Genome-Wide Association Study - methods | Genome-Wide Association Study - standards | Genetic Testing - methods | Sequence Analysis, DNA - methods | Infant, Newborn | Pediatrics | Nucleotide sequence | Genomics | Licenses | Bioethics | Systematic review | Genomes | Research | Medical screening | Ethics | Genetics | Children | Public health | Deoxyribonucleic acid--DNA | Index Medicus | Policy
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7. Full Text Data protection and consent to biomedical research: a step forward?
by Dove, Edward S and Townend, David and Knoppers, Bartha M
The Lancet (British edition), ISSN 0140-6736, 2014, Volume 384, Issue 9946, pp. 855 - 855
Internal Medicine | Medicine, General & Internal | Life Sciences & Biomedicine | General & Internal Medicine | Science & Technology | Computer Security - legislation & jurisprudence | Biomedical Research - legislation & jurisprudence | European Union | Humans | Informed Consent - legislation & jurisprudence | Privacy | Biomedical research | Public interest | Councils | Consent | Index Medicus | Abridged Index Medicus
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8. Full Text Points to consider for laboratories reporting results from diagnostic genomic sequencing
by Vears, D.F and Senecal, K and Clarke, A.J and Jackson, L.G and Laberge, A.M and Lovrecic, L and Yntema, H.G and Knoppers, B.M and Borry, P
European journal of human genetics : EJHG, ISSN 1018-4813, 2018, Volume 26, Issue 1, pp. 36 - 43
Biochemistry & Molecular Biology | Genetics & Heredity | Life Sciences & Biomedicine | Science & Technology | Sequence Analysis, DNA - standards | Reproducibility of Results | Genetic Testing - standards | Humans | Research Report - standards | Practice Guidelines as Topic | Laboratories | Index Medicus
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9. Full Text Harmonizing Global Biospecimen Consent Practices to Advance Translational Research: A Call to Action
by Warner, AW and Moore, H and Reinhard, D and Ball, LA and Knoppers, BM
Clinical pharmacology and therapeutics, ISSN 0009-9236, 03/2017, Volume 101, Issue 3, pp. 317 - 319
Life Sciences & Biomedicine | Pharmacology & Pharmacy | Science & Technology | Informed Consent | Biological Specimen Banks - organization & administration | Biomedical Research - ethics | Humans | Translational Medical Research | Specimen Handling - standards | Biomedical Research - organization & administration | Biological Specimen Banks - standards | Biological Specimen Banks - ethics | Specimen Handling - ethics | Biomedical Research - standards | Index Medicus | Abridged Index Medicus
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10. Full Text Clinical Trial Transparency and Orphan Drug Development
: Recent Trends in Data Sharing by the Pharmaceutical Industry
by D. So and Y. Joly and B.M. Knoppers
Public health genomics, ISSN 1662-4246, 1/2013, Volume 16, Issue 6, pp. 322 - 335
Further Section | Transparency | GlaxoSmithKline | Medtronic | Roche | Data sharing | Rare disease | Clinical trial | European Medicines Agency | Orphan drug | Public, Environmental & Occupational Health | Genetics & Heredity | Life Sciences & Biomedicine | Science & Technology | Orphan Drug Production | Humans | Access to Information | Clinical Trials as Topic - ethics | Drug Industry - organization & administration | Clinical Trials as Topic - standards | Disclosure | Research Design | Databases, Factual | Information Dissemination | Index Medicus
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11. Full Text Maelstrom Research guidelines for rigorous retrospective data harmonization
by Fortier, I and Raina, P and Van den Heuvel, E.R and Griffith, L.E and Craig, C and Saliba, M and Doiron, D and Stolk, R.P and Knoppers, B.M and Ferretti, V and Granda, P and Burton, P.R
International journal of epidemiology, ISSN 0300-5771, 02/2017, Volume 46, Issue 1, pp. 103 - 115
Individual participant data | Research Support, Non-U.S. Gov't | Data integration | Data processing | Medicine(all) | Data harmonization | Retrospective harmonization | Epidemiology | Journal Article | Meta-analysis
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12. Full Text Autologous bilayered self-assembled skin substitutes (SASSs) as permanent grafts: a case series of 14 severely burned patients indicating clinical effectiveness
by Germain, L and Germain, Lucie and Larouche, D and Larouche, D and Nedelec, B and Nedelec, B and Perreault, I and Perreault, I and Duranceau, L and Duranceau, L and Bortoluzzi, P and Bortoluzzi, P and Beaudoin Cloutier, C and Cloutier, C. Beaudoin and Genest, H and Genest, H and Caouette-Laberge, L and Caouette-Laberge, L and Dumas, A and Dumas, A and Bussière, A and Bussière, A and Boghossian, E and Boghossian, E and Kanevsky, J and Kanevsky, J and Leclerc, Y and Leclerc, Y and Lee, J and Lee, J and Nguyen, M.T and Nguyen, M.T and Bernier, V and Bernier, V and Knoppers, B.M and Knoppers, B.M and Moulin, V.J and Moulin, V.J and Auger, F.A and Auger, F.A
European cells & materials, ISSN 1473-2262, 09/2018, Volume 36, pp. 128 - 141
Burn | Connective tissue | Regenerative medicine | Tissue engineering | Autologous | Tissue culture | Skin | Culture techniques | Skin grafts | Tissue therapy | Cell & Tissue Engineering | Engineering | Materials Science | Life Sciences & Biomedicine | Technology | Engineering, Biomedical | Materials Science, Biomaterials | Orthopedics | Science & Technology | Cell Biology | Cell Survival | Humans | Kaplan-Meier Estimate | Elasticity | Epithelial Cells - pathology | Male | Transplantation, Autologous | Treatment Outcome | Burns - pathology | Skin, Artificial | Adult | Burns - therapy | Female | Skin Transplantation | Index Medicus | burn | skin grafts | tissue engineering | tissue therapy | connective tissue | regenerative medicine | tissue culture | skin | culture techniques
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13. Full Text Return of whole-genome sequencing results in paediatric research: a statement of the P(3)G international paediatrics platform
by Knoppers, B.M and Avard, D and Sénécal, K and Hens, K and Zawati, M.H and P3G Int Paediat Platform Members
European journal of human genetics : EJHG, ISSN 1018-4813, 01/2014, Volume 22, Issue 1, pp. 3 - 5
best interests of the child | INCIDENTAL FINDINGS | DISCLOSURE | Paediatric research | whole-genome sequencing | COMMUNICATION | Biochemistry & Molecular Biology | Genetics & Heredity | Life Sciences & Biomedicine | Science & Technology
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14. Full Text Population Genomics: The Public Population Project in Genomics (P G): a proof of concept?
by Knoppers, B.M and Fortier, I and Legault, D and Burton, P
European journal of human genetics : EJHG, ISSN 1018-4813, 06/2008, Volume 16, Issue 6, pp. 664 - 665
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15. Full Text Towards a global cancer knowledge network: dissecting the current international cancer genomic sequencing landscape
by Vis, D.J and Lewin, J and Liao, R.G and Mao, M and Andre, F and Ward, R.L and Calvo, F and Teh, B.T and Camargo, A.A and Knoppers, B.M and Sawyers, C.L and Wessels, L.F.A and Lawler, M and Siu, L.L and Voest, E and Clinical Working Grp Of The Global and Clinical Working Group of the Global Alliance for Genomics and Health
Annals of oncology, ISSN 0923-7534, 05/2017, Volume 28, Issue 5, pp. 1145 - 1151
genomics | survey | cancer | data sharing | molecular profiling | Life Sciences & Biomedicine | Oncology | Science & Technology | Genetic Predisposition to Disease | Genetic Association Studies | Neoplasms - genetics | DNA Mutational Analysis | Humans | Molecular Sequence Annotation | Databases, Genetic | Surveys and Questionnaires | Genome, Human | Whole Exome Sequencing | Index Medicus | Original
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16. Full Text Legal Liability and the Uncertain Nature of Risk Prediction
: The Case of Breast Cancer Risk Prediction Models
by L. Black and B.M. Knoppers and D. Avard and J. Simard
Public health genomics, ISSN 1662-4246, 1/2012, Volume 15, Issue 6, pp. 335 - 340
Review | Risk prediction model | Breast cancer | Law | Liability | Family history | Public, Environmental & Occupational Health | Genetics & Heredity | Life Sciences & Biomedicine | Science & Technology | Breast Neoplasms - genetics | Truth Disclosure | Risk Assessment | Humans | Female | Breast Neoplasms - diagnosis | Liability, Legal | Models, Statistical | Index Medicus
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17. Full Text Reply to Kranendonk et al
by Sénécal, K and Thys, K and Vears, D.F and Van Assche, K and Knoppers, B.M and Borry, P
European journal of human genetics : EJHG, ISSN 1018-4813, 02/2017, Volume 25, Issue 2, pp. 166 - 167
Letter
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18. Full Text Blurring lines the research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects
by Howard, H.C and Knoppers, B.M and Borry, P
EMBO reports, ISSN 1469-221X, 2010, Volume 11, Issue 8, pp. 579 - 582
Biochemistry & Molecular Biology | Life Sciences & Biomedicine | Science & Technology | Cell Biology | Genetic Privacy | Humans | Genetic Testing - ethics | Genetic Testing - economics | Research Subjects | Research - economics | Marketing | Index Medicus
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