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CRISPR journal, ISSN 2573-1599, 10/2019, Volume 2, Issue 5, pp. 249 - 252
Journal Article
2015, Routledge handbooks, ISBN 0203796187, xi, 480 pages
"Increasingly globalization has meant that decisions made regarding medical care and health in one country may influence health and disease outcomes in other... 
Medical ethics | Medical laws and legislation | Ethics - Jurisprudence | Legal Aspects of Medicine | Medical Ethics | Ethics Philosophy | Medical & Healthcare Law | Medical Sociology | MEDICAL / Ethics
Book
by Green, Robert C and Goddard, Katrina A.B and Jarvik, Gail P and Amendola, Laura M and Appelbaum, Paul S and Berg, Jonathan S and Bernhardt, Barbara A and Biesecker, Leslie G and Biswas, Sawona and Blout, Carrie L and Bowling, Kevin M and Brothers, Kyle B and Burke, Wylie and Caga-anan, Charlisse F and Chinnaiyan, Arul M and Chung, Wendy K and Clayton, Ellen W and Cooper, Gregory M and East, Kelly and Evans, James P and Fullerton, Stephanie M and Garraway, Levi A and Garrett, Jeremy R and Gray, Stacy W and Henderson, Gail E and Hindorff, Lucia A and Holm, Ingrid A and Lewis, Michelle Huckaby and Hutter, Carolyn M and Janne, Pasi A and Joffe, Steven and Kaufman, David and Knoppers, Bartha M and Koenig, Barbara A and Krantz, Ian D and Manolio, Teri A and McCullough, Laurence and McEwen, Jean and McGuire, Amy and Muzny, Donna and Myers, Richard M and Nickerson, Deborah A and Ou, Jeffrey and Parsons, Donald W and Petersen, Gloria M and Plon, Sharon E and Rehm, Heidi L and Roberts, J. Scott and Robinson, Dan and Salama, Joseph S and Scollon, Sarah and Sharp, Richard R and Shirts, Brian and Spinner, Nancy B and Tabor, Holly K and Tarczy-Hornoch, Peter and Veenstra, David L and Wagle, Nikhil and Weck, Karen and Wilfond, Benjamin S and Wilhelmsen, Kirk and Wolf, Susan M and Wynn, Julia and Yu, Joon-Ho and Amaral, Michelle and Amendola, Laura and Aronson, Samuel J and Arora, Shubhangi and Azzariti, Danielle R and Barsh, Greg S and Bebin, E.M and Biesecker, Barbara B and Brown, Brian L and Burt, Amber A and Byers, Peter H and Calikoglu, Muge G and Carlson, Sara J and Chahin, Nizar and Christensen, Kurt D and Chung, Wendy and Cirino, Allison L and Clayton, Ellen and Conlin, Laura K and Cooper, Greg M and Crosslin, David R and Davis, James V and Davis, Kelly and Deardorff, Matthew A and Devkota, Batsal and De Vries, Raymond and Diamond, Pamela and Dorschner, Michael O and Dugan, Noreen P and Dukhovny, Dmitry and Dulik, Matthew C and East, Kelly M and Rivera-Munoz, Edgar A and Evans, Barbara and Everett, Jessica and Exe, Nicole and ... and the CSER Consortium and CSER Consortium
American journal of human genetics, ISSN 0002-9297, 2016, Volume 98, Issue 6, pp. 1051 - 1066
Journal Article
EMBO Molecular Medicine, ISSN 1757-4676, 05/2015, Volume 7, Issue 5, pp. 507 - 509
Sharing genomic research data through controlled‐access databases has increased in recent years. Policymakers and funding organizations endorse genomic data... 
MEDICINE, RESEARCH & EXPERIMENTAL | Guidelines as Topic | Information Dissemination - ethics | Genomics - methods | Humans | Genomics - standards | Information Dissemination - methods | Consortia | Studies | Databases | Researchers | Funding | Principles | Genomics | Information sharing | Research
Journal Article
PloS one, ISSN 1932-6203, 2017, Volume 12, Issue 9, p. e0184491
... http://orcid.org/0000-0002-8211-3222 Bartha M. Knoppers Roles Conceptualization, Methodology, Project administration, Resources, Supervision, Writing – original... 
Access to Information - ethics | Surveys and Questionnaires | Information Dissemination - ethics | Clinical Trials as Topic - ethics | Research Personnel | Humans | Medical research | Platforms | Genomics | Clinical trials | Data processing | Regulatory approval | Studies | Ethics | Researchers | Collaboration | Information sharing | Data retrieval | Internet | Pharmaceutical industry | Cancer
Journal Article
Nature reviews. Genetics, ISSN 1471-0064, 2005, Volume 6, Issue 1, pp. 75 - 79
Genetic research has moved from Mendelian genetics to sequence maps to the study of natural human genetic variation at the level of the genome. This past... 
Ethics, Medical | Genetics, Population | Confidentiality - ethics | Choice Behavior | Computational Biology - ethics | Humans | Databases as Topic - ethics | Genetic Research - ethics | Genome, Human | Insurance, Health
Journal Article
Nature reviews. Genetics, ISSN 1471-0064, 2015, Volume 16, Issue 9, pp. 553 - 559
Genetic testing based on whole-genome sequencing (WGS) often returns results that are not directly clinically actionable as well as raising the possibility of... 
STATEMENT | INCIDENTAL FINDINGS | COLLEGE | GENETICS & HEREDITY | CHILDREN | Animals | Genetic Testing - legislation & jurisprudence | Humans | Genetic Testing - ethics | High-Throughput Nucleotide Sequencing | Genetic Testing - trends | Genome, Human | Genome-wide association studies | Genetic screening | Methods | Innovations
Journal Article
by C Yuen, Ryan K and Merico, Daniele and Bookman, Matt and L Howe, Jennifer and Thiruvahindrapuram, Bhooma and Patel, Rohan V and Whitney, Joe and Deflaux, Nicole and Bingham, Jonathan and Wang, Zhuozhi and Pellecchia, Giovanna and Buchanan, Janet A and Walker, Susan and Marshall, Christian R and Uddin, Mohammed and Zarrei, Mehdi and Deneault, Eric and D'Abate, Lia and Chan, Ada J S and Koyanagi, Stephanie and Paton, Tara and Pereira, Sergio L and Hoang, Ny and Engchuan, Worrawat and Higginbotham, Edward J and Ho, Karen and Lamoureux, Sylvia and Li, Weili and MacDonald, Jeffrey R and Nalpathamkalam, Thomas and Sung, Wilson W L and Tsoi, Fiona J and Wei, John and Xu, Lizhen and Tasse, Anne-Marie and Kirby, Emily and Van Etten, William and Twigger, Simon and Roberts, Wendy and Drmic, Irene and Jilderda, Sanne and Modi, Bonnie MacKinnon and Kellam, Barbara and Szego, Michael and Cytrynbaum, Cheryl and Weksberg, Rosanna and Zwaigenbaum, Lonnie and Woodbury-Smith, Marc and Brian, Jessica and Senman, Lili and Iaboni, Alana and Doyle-Thomas, Krissy and Thompson, Ann and Chrysler, Christina and Leef, Jonathan and Savion-Lemieux, Tal and Smith, Isabel M and Liu, Xudong and Nicolson, Rob and Seifer, Vicki and Fedele, Angie and Cook, Edwin H and Dager, Stephen and Estes, Annette and Gallagher, Louise and Malow, Beth A and Parr, Jeremy R and Spence, Sarah J and Vorstman, Jacob and Frey, Brendan J and Robinson, James T and Strug, Lisa J and Fernandez, Bridget A and Elsabbagh, Mayada and Carter, Melissa T and Hallmayer, Joachim and Knoppers, Bartha M and Anagnostou, Evdokia and Szatmari, Peter and Ring, Robert H and Glazer, David and Pletcher, Mathew T and Scherer, Stephen W
Nature neuroscience, ISSN 1546-1726, 2017, Volume 20, Issue 4, pp. 602 - 611
Journal Article
The New England Journal of Medicine, ISSN 0028-4793, 11/2014, Volume 371, Issue 22, pp. 2052 - 2054
Journal Article
PLoS biology, ISSN 1545-7885, 2008, Volume 6, Issue 3, pp. e73 - 0435
...Citation: Caulfield T, McGuire AL, Cho M, Buchanan JA, Burgess MM, et al. (2008) Research Ethics Recommendations for Whole-Genome Research: Consensus Statement... 
ISSUES | BIOCHEMISTRY & MOLECULAR BIOLOGY | BIOLOGY | BIOBANKS | SCIENCE | CHALLENGES | SOCIETY | Databases, Genetic | Genome, Human | Humans | Consensus | Ethics, Research | Genomics - ethics | Medical research | Databases | Public access | Consent | Genomics | Information sharing | Genomes
Journal Article