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pediatrics (18) 18
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humans (11) 11
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quality of life (5) 5
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1. Full Text Longitudinal Outcomes of Patients With Single Ventricle After the Fontan Procedure
by Atz, Andrew M., MD and Zak, Victor, PhD and Mahony, Lynn, MD and Uzark, Karen, PhD and D’agincourt, Nicholas, MS and Goldberg, David J., MD and Williams, Richard V., MD and Breitbart, Roger E., MD and Colan, Steven D., MD and Burns, Kristin M., MD and Margossian, Renee, MD and Henderson, Heather T., MD and Korsin, Rosalind, RN and Marino, Bradley S., MD and Daniels, Kaitlyn, RN and McCrindle, Brian W., MD, MPH and Pediatric Heart Network Investigators and Pediat Heart Network Investigators
Journal of the American College of Cardiology, ISSN 0735-1097, 2017, Volume 69, Issue 22, pp. 2735 - 2744
Cardiovascular | Internal Medicine | functional health status | exercise | adult congenital heart disease | Fontan procedure | single ventricle | Cardiac & Cardiovascular Systems | Life Sciences & Biomedicine | Cardiovascular System & Cardiology | Science & Technology | United States - epidemiology | Echocardiography | Survival Rate - trends | Cross-Sectional Studies | Follow-Up Studies | Heart Defects, Congenital - surgery | Humans | Risk Factors | Male | Treatment Outcome | Fontan Procedure - methods | Forecasting | Heart Ventricles - diagnostic imaging | Young Adult | Heart Ventricles - abnormalities | Adolescent | Ontario - epidemiology | Quality of Life | Female | Heart Defects, Congenital - diagnosis | Heart Defects, Congenital - mortality | Retrospective Studies | Health Status | Child | Medical colleges | Children's hospitals | Research institutes | Heart | Medical research | Genetic disorders | Patient outcomes | Analysis | Medicine, Experimental | Congenital heart disease | Transplantation | Heart diseases | Natriuretic peptides | Pediatrics | Physical training | Syngeneic grafts | Heart surgery | Cardiovascular disease | Risk factors | Clinical outcomes | Exercise | Allografts | Functional anatomy | Risk assessment | Xenografts | Age | Brain natriuretic peptide | Oxygen | Congenital diseases | Health | Mortality | Heart transplantation | Test procedures | Time measurement | Regression analysis | Oxygen uptake | Risk analysis | Patients | Survival | Quality of life | Physical fitness | Morphology | Death | Ventricle | Index Medicus | Abridged Index Medicus
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2. Full Text Variation in Feeding Practices following the Norwood Procedure
by Lambert, Linda M., MSN-FNP and Pike, Nancy A., PhD, CPNP-AC and Medoff-Cooper, Barbara, RN, PhD, FAAN and Zak, Victor, PhD and Pemberton, Victoria L., RN, MS and Young-Borkowski, Lisa, MSN, RN and Clabby, Martha L., MD and Nelson, Kathryn N., DNP, CPNP and Ohye, Richard G., MD and Trainor, Bethany, RN, BSN and Uzark, Karen, PhD, CPNP and Rudd, Nancy, CPNP-AC/PC and Bannister, Louise, RD and Korsin, Rosalind, RN, BSN and Cooper, David S., MD, MPH and Pizarro, Christian, MD and Zyblewski, Sinai C., MD and Bartle, Bronwyn H., MSN-CPNP and Williams, Richard V., MD and Pediatric Heart Network Investigators and Pediat Heart Network Investigators
The Journal of pediatrics, ISSN 0022-3476, 2014, Volume 164, Issue 2, pp. 237 - 242.e1
Pediatrics | Gastrostomy or gastrojejunostomy tube | WAZ | Weight-for-age z score | G-tube | Hypoplastic left heart syndrome | Nasojejunal or nasogastric tube | N-tube | Pediatric Heart Network Single Ventricle Reconstruction Trial | Principal investigator | HLHS | SVR | Life Sciences & Biomedicine | Science & Technology | Enteral Nutrition - methods | Follow-Up Studies | Humans | Hypoplastic Left Heart Syndrome - surgery | Male | Treatment Outcome | Norwood Procedures | Gastrostomy - methods | Length of Stay - trends | Female | Retrospective Studies | Patient Discharge - trends | Weight Gain | Infant, Newborn | Medical colleges | Children's hospitals | Genetic disorders | Index Medicus | Abridged Index Medicus | nutrition | growth | practice variation | hypoplastic left heart syndrome
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3. Full Text Recruitment, retention, and adherence in a clinical trial: The Pediatric Heart Network’s Marfan Trial experience
by Hamstra, Michelle S and Pemberton, Victoria L and Dagincourt, Nicholas and Hollenbeck-Pringle, Danielle and Trachtenberg, Felicia L and Cnota, James F and Atz, Andrew M and Cappella, Elizabeth and De Nobele, Sylvia and Grima, Josephine and King, Martha and Korsin, Rosalind and Lambert, Linda M and MacNeal, Meghan K and Markham, Larry W and MacCarrick, Gretchen and Sylvester, Donna M and Walter, Patricia and Xu, Mingfen and Lacro, Ronald V and for the Pediatric Heart Network Investigators
Clinical trials (London, England), ISSN 1740-7745, 12/2020, Volume 17, Issue 6, pp. 684 - 695
Life Sciences & Biomedicine | Medicine, Research & Experimental | Science & Technology | Research & Experimental Medicine | EKG | Drugs | Pediatrics | Schedules | Marfan's syndrome | Young adults | Calendars | Clinical trials | Atenolol | Retention | Minority & ethnic groups | Patient compliance | Recruitment | Collaboration | Questionnaires | Electrocardiography | Aorta | Adults | Children | Age | Index Medicus | clinical trial | recruitment | adherence | Marfan syndrome | retention
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4. Full Text Associated Symptoms in the Ten Days Before Diagnosis of Kawasaki Disease
by Baker, Annette L., MSN, PNP and Lu, Minmin, MS and Minich, L. LuAnn, MD and Atz, Andrew M., MD and Klein, Gloria L., MS, RD and Korsin, Rosalind, RN and Lambert, Linda, MSN and Li, Jennifer S., MD and Mason, Wilbert, MD and Radojewski, Elizabeth, RN and Vetter, Victoria L., MD and Newburger, Jane W., MD, MPH and Pediatric Heart Network Investigators and Pediat Heart Network Investigators
The Journal of pediatrics, ISSN 0022-3476, 2009, Volume 154, Issue 4, pp. 592 - 595.e2
Pediatrics | Life Sciences & Biomedicine | Science & Technology | Biological and medical sciences | General aspects | Medical sciences | Sarcoidosis. Granulomatous diseases of unproved etiology. Connective tissue diseases. Elastic tissue diseases. Vasculitis | Appetite | Irritable Mood | Prevalence | Prospective Studies | Humans | Muscle Weakness - epidemiology | Diarrhea - epidemiology | Infant | Arthralgia - epidemiology | Mucocutaneous Lymph Node Syndrome - epidemiology | Abdominal Pain - epidemiology | Cough - epidemiology | Mucocutaneous Lymph Node Syndrome - diagnosis | North America - epidemiology | Vomiting - epidemiology | Rhinitis - epidemiology | Early Diagnosis | Immunoglobulins | Kawasaki disease | Medical examination | Corticosteroids | Children's hospitals | Diagnosis | Methylprednisolone | Sedimentation | Blood | Index Medicus | Abridged Index Medicus
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5. Full Text Survival data and predictors of functional outcome an average of 15years after the fontan procedure: The pediatric heart network fontan cohort
by Atz, Andrew M and Zak, Victor and Mahony, Lynn and Uzark, Karen and Shrader, Peter and Gallagher, Dianne and Paridon, Stephen M and Williams, Richard V and Breitbart, Roger E and Colan, Steven D and Kaltman, Jonathan R and Margossian, Renee and Pasquali, Sara K and Allen, Kerstin and Lai, Wyman W and Korsin, Rosalind and Marino, Bradley S and Mirarchi, Nicole and Mccrindle, Brian W
Congenital heart disease, ISSN 1747-079X, 01/2015, Volume 10, Issue 1, pp. E30 - E42
Heart defects | Pediatrics | Functional health status | Fontan procedure | Congenital | Genetic disorders | Health aspects | Analysis | Natriuretic peptides
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6. Full Text LONGITUDINAL ASSESSMENT OF SINGLE VENTRICLE PATIENTS IN THE PEDIATRIC HEART NETWORK FONTAN COHORT
by Atz, Andrew M and Zak, Victor and Mahony, Lynn and Burns, Kristin and Goldberg, David and Williams, Richard and Breitbart, Roger and Korsin, Rosalind and Colan, Steven and Marino, Bradley S and Margossian, Renee and Daniels, Kaitlyn and Uzark, Karen and Henderson, Heather and McCrindle, Brian
Journal of the American College of Cardiology, ISSN 0735-1097, 2015, Volume 65, Issue 10, pp. A486 - A486
Cardiovascular | Internal Medicine | Heart | Pediatrics | Genetic disorders | Analysis | Cardiac patients | Medical research | Exercise
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7. Full Text Assessment of Quality of Life in Young Patients with Single Ventricle after the Fontan Operation
by Uzark, Karen, PhD, CPNP and Zak, Victor, PhD and Shrader, Peter, MA and McCrindle, Brian W., MD, MPH and Radojewski, Elizabeth, RN and Varni, James W., PhD and Daniels, Kaitlyn, BSN, RN and Handisides, Jill, BSN and Hill, Kevin D., MD, MS and Lambert, Linda M., MSN, FNP and Margossian, Renee, MD and Pemberton, Victoria L., RNC, MS, CCRC and Lai, Wyman W., MD and Atz, Andrew M., MD and Pediatric Heart Network Investigators and Pediat Heart Network Investigators
The Journal of pediatrics, ISSN 0022-3476, 2015, Volume 170, pp. 166 - 172.e1
Pediatrics | Life Sciences & Biomedicine | Science & Technology | United States - epidemiology | Age Factors | Cross-Sectional Studies | Follow-Up Studies | Humans | Survivors | Fontan Procedure - psychology | Male | Young Adult | Adolescent | Quality of Life | Adult | Female | Surveys and Questionnaires | Health aspects | Analysis | Children | Index Medicus | Abridged Index Medicus | congenital heart disease | psychosocial | quality of life | PedsQL
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8. Full Text The Congenital Heart Disease Genetic Network Study: Rationale, Design, and Early Results
by Gelb, Bruce and Brueckner, Martina and Chung, Wendy and Goldmuntz, Elizabeth and Kaltman, Jonathan and Kaski, Juan Pablo and Kim, Richard and Kline, Jennie and Mercer-Rosa, Laura and Porter, George and Roberts, Amy and Rosenberg, Ellen and Seiden, Howard and Seidman, Christine and Sleeper, Lynn and Tennstedt, Sharon and Schramm, Charlene and Burns, Kristin and Pearson, Gail and Breitbart, Roger and Colan, Steven and Geva, Judith and Monafo, Angela and Stryker, Janice and McDonough, Barbara and Seidman, Jonathan and Edman, Sharon and Garbarini, Jennifer and Hakonarson, Hakon and Mitchell, Laura and Tusi, Jessica and White, Peter and Woyciechowski, Stacy and Warburton, Dorothy and Awad, Danielle and Celia, Katrina and Etwaru, Davina and Sond, Jaswinder Kaur and Korsin, Rosalind and Lanz, Alyssa and Marquez, Emma and Williams, Ismee and Wilpers, Abigail and Yee, Roslyn and Guevara, Denise and Julian, Ariel and Neal, Meghan Mac and Mintz, Cassie and Peter, Inga and Sachidanandam, Ravi and Romano-Adesman, Angela and Gruber, Dorota and Stellato, Nancy and Lifton, Richard and Cross, Nancy and Deanfield, John and Giardini, Alessandro and Flack, Karen and Taillie, Eileen and Tran, Nhu and Dandreo, Kimberly and Gallagher, Dianne and Lu, Minmin and Berlin, Dorit and Beiswanger, Christine and Italia, Mike and Brooks, Maria and Olive, Michelle and Botkin, Jeffrey and Dupuis, Josee and Garg, Vidu and Watson, Mike and Bristow, James and Evans, Todd and Kendziorski, Christina and Mardis, Elaine and Murray, Jeffrey and Saltz, Joel and Wong, Hector and Pediatric Cardiac Genomics Consort and Pediatric Cardiac Genomics Consortium and Core Laboratories for PCGC and Biorepository, Coriell Institutes and Clinical Sites and Data Hub, Children’s Hospital Philadelphia and Data Coordinating Center and Genotyping Array, Children’s Hospital Philadelphia and External Advisory Committee and Candidate Gene Evaluation and RNASeq, Harvard Medical School and Confirmation, Columbia University and Observational Study Monitoring Board and National Heart, Lung, and Blood Institute and Whole Genome Sequencing Harvard Medical School and Brigham & Women’s Hospital and Whole Exome Sequencing, Yale University and Writing Committee
Circulation research, ISSN 0009-7330, 02/2013, Volume 112, Issue 4, pp. 698 - 706
Congenital cardiac defects | Congenital heart disease | Genomic study | Human genetics | Genome-wide analysis | Cardiac & Cardiovascular Systems | Peripheral Vascular Disease | Life Sciences & Biomedicine | Hematology | Cardiovascular System & Cardiology | Science & Technology | Biological Specimen Banks - organization & administration | Prospective Studies | Follow-Up Studies | Outcome Assessment (Health Care) | United States | Genomics | Humans | Child, Preschool | Infant | Data Collection | National Heart, Lung, and Blood Institute (U.S.) - organization & administration | Patient Selection | Schools, Medical - organization & administration | Young Adult | Heart Defects, Congenital - genetics | DNA Mutational Analysis | Adult | Registries - ethics | Child | Infant, Newborn | Databases, Factual | Genetic Association Studies | Genotype | Clinical Trials as Topic | Gene Dosage | Interdisciplinary Communication | Translational Medical Research - organization & administration | Phenotype | Confidentiality | Adolescent | Heart Defects, Congenital - epidemiology | Hospitals, Pediatric - organization & administration | Index Medicus | congenital heart disease | human genetics | genomic study | genome-wide analysis | congenital cardiac defects
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9. Full Text Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome
by Handisides, Jill C and Hollenbeck-Pringle, Danielle and Uzark, Karen and Trachtenberg, Felicia L and Pemberton, Victoria L and Atz, Teresa W and Bradley, Timothy J and Cappella, Elizabeth and De Nobele, Sylvia and Groh, Georgeann Keh-Teng and Hamstra, Michelle S and Korsin, Rosalind and Levine, Jami C and Lindauer, Bergen and Liou, Aimee and Neal, Meghan K Mac and Markham, Larry W and Morrison, Tonia and Mussatto, Kathleen A and Olson, Aaron K and Pierpont, Mary Ella M and Pyeritz, Reed E and Radojewski, Elizabeth A and Roman, Mary J and Xu, Mingfen and Lacro, Ronald V and Pediatric Heart Network Investigators
The Journal of pediatrics, ISSN 1097-6833, 01/2019, Volume 204, p. 1
Kardiologi | Clinical Medicine | Pediatrics | Cardiac and Cardiovascular Systems | Medical and Health Sciences | Medicin och hälsovetenskap | Pediatrik | Klinisk medicin
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10. Full Text FEEDING PRACTICE VARIATION AND PREDICTORS OF INFANT WEIGHT FOLLOWING THE NORWOOD PROCEDURE: A REPORT FROM THE PEDIATRIC HEART NETWORK SINGLE VENTRICLE RECONSTRUCTION TRIAL
by Lambert, Linda M and Pike, Nancy and Medoff-Cooper, Barbara and zak, victor and Pemberton, Victoria and Young-Borkowski, Lisa and Clabby, Martha and Nelson, Kathryn and Ohye, Richard and Trainor, Bethany and Uzark, Karen and Rudd, Nancy and Bannister, Louise and Korsin, Rosalind and Cooper, David and Pizarro, christian and Zyblewski, Sinai and Bartle, Bronwyn and Williams, Richard
Journal of the American College of Cardiology, ISSN 0735-1097, 2012, Volume 59, Issue 13, pp. E746 - E746
Cardiovascular | Internal Medicine | Ostomy
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11. Full Text Frequency of Development of Aortic Cuspal Prolapse and Aortic Regurgitation in Patients With Subaortic Ventricular Septal Defect Diagnosed at <1 Year of Age
by Saleeb, Susan F., MD and Solowiejczyk, David E., MD and Glickstein, Julie S., MD and Korsin, Rosalind, RN and Gersony, Welton M., MD and Hsu, Daphne T., MD
The American journal of cardiology, ISSN 0002-9149, 2007, Volume 99, Issue 11, pp. 1588 - 1592
Cardiovascular | Cardiac & Cardiovascular Systems | Life Sciences & Biomedicine | Cardiovascular System & Cardiology | Science & Technology | Cardiology. Vascular system | Heart | Biological and medical sciences | Endocardial and cardiac valvular diseases | Congenital heart diseases. Malformations of the aorta, pulmonary vessels and vena cava | Medical sciences | Heart Septal Defects, Ventricular - epidemiology | Heart Valve Prosthesis Implantation | Follow-Up Studies | Humans | Infant | Male | Heart Septal Defects, Ventricular - surgery | Echocardiography, Doppler, Color | Incidence | Aortic Valve Prolapse - epidemiology | Cardiac Catheterization | Aortic Valve Prolapse - surgery | Female | Infant, Newborn | Severity of Illness Index | Heart Septal Defects, Ventricular - complications | Aortic Valve Insufficiency - diagnostic imaging | Aortic Valve Prolapse - etiology | Aortic Valve Insufficiency - etiology | Disease Progression | Aortic Valve Prolapse - diagnostic imaging | Aortic Valve Insufficiency - surgery | Heart Septal Defects, Ventricular - diagnostic imaging | New York - epidemiology | Aortic Valve Insufficiency - epidemiology | Medicine, Experimental | Pediatrics | Medical research | Development and progression | Ventricular septal defects | Aortic valve insufficiency | Babies | Cardiovascular disease | Congenital diseases | Medical diagnosis | Cardiology | Index Medicus | Abridged Index Medicus
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12. Full Text Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome
by Handisides, Jill C and Hollenbeck-Pringle, Danielle and Uzark, Karen and Trachtenberg, Felicia L and Pemberton, Victoria L and Atz, Teresa W and Bradley, Timothy J and Cappella, Elizabeth and De Nobele, Sylvia and Groh, Georgeann Keh-Teng and Hamstra, Michelle S and Korsin, Rosalind and Levine, Jami C and Lindauer, Bergen and Liou, Aimee and Neal, Meghan K. Mac and Markham, Larry W and Morrison, Tonia and Mussatto, Kathleen A and Olson, Aaron K and Pierpont, Mary Ella M and Pyeritz, Reed E and Radojewski, Elizabeth A and Roman, Mary J and Xu, Mingfen and Lacro, Ronald V and Pearson, Gail and Stylianou, Mario and Mahony, Lynn and Sleeper, Lynn and Tennstedt, Sharon and Colan, Steven and Klein, Gloria and Guey, Lin and Wruck, Lisa and Travison, Thomas and Chen, Shan and Gerstenberger, Eric and Olesker, Tanya and Teitel, David F and Newburger, Jane and King, Martha and Dunbar-Masterson, Carolyn and Posa, Andrea and Nang, Quincy and Hass, Cara and Hsu, Daphne and Lai, Wyman and Hellenbrand, William and Printz, Beth and Devereux, Richard and Sherwood, Greysi and Vetter, Victoria and Paridon, Stephen and Gleason, Marie and Mirarchi, Nicole and DiLullo, Sandra and Ejembi, Agbenu and Morgan, Ruth and Benson, D. Woodrow and Border, William and Cnota, James and Heydarian, Haleh and James, Jeanne and Hogan, Kathryn and Bogenschutz, Lois and Benham, Mary Pat and Barnard, Teresa and Anderson, Page A.W and Li, Jennifer S and Wechsler, Stephanie Burns and Cook, Amanda and Sang, Charles and Covitz, Wesley and Sutton, Lori Jo and Crawford, Kari and Roberts, Summer and Palmer, Deborah and Saul, J. Philip and Atz, Andrew and Forbus, Geoffrey and Infinger, Patricia and Choudhury, Aparna and Minich, LuAnn and Williams, Richard and Yetman, Angela and Shearrow, Marian and Robinson, Michelle and Porter, June and McCrindle, Brian and Russell, Jennifer and Colman, Jack and Khaikin, Svetlana and Slater, Nancy and Dietz, Harry C and Ravekes, William J and Rykiel, Mary and Sparks, Elisabeth and MacCarrick, Gretchen and Leadroot, Jennifer and ... and New England Research Institutes and Pediatric Heart Network Investigators and Pediat Heart Network Investigators
The Journal of pediatrics, ISSN 0022-3476, 01/2019, Volume 204, pp. 250 - 255.e1
neurodevelopmental disorders | patient-reported symptoms | yes | Life Sciences & Biomedicine | Pediatrics | Science & Technology | Severity of Illness Index | Marfan Syndrome - psychology | Health Status Indicators | Humans | Child, Preschool | Male | Antihypertensive Agents - therapeutic use | Young Adult | Atenolol - therapeutic use | Marfan Syndrome - drug therapy | Adolescent | Losartan - therapeutic use | Quality of Life | Adult | Female | Marfan Syndrome - complications | Child | Patient Reported Outcome Measures | Index Medicus | Abridged Index Medicus
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