Health Affairs, ISSN 0278-2715, 09/2018, Volume 37, Issue 9, pp. 1530 - 1531
Journal Article
2001, Medicine & culture, ISBN 9780801867620, xvi, 183
Book
2011, ISBN 1421402718, x, 145
Book
1997, ISBN 9786610070732, 224
Written with poignancy and compassion, Do We Still Need Doctors? is a personal account from the front lines of the moral and political battles that are...
Medicine | Physician and patient | Medical care | Practice | Medical innovations | Philosophy | Medicine: General Issues | Sociology & Social Policy | United States
Medicine | Physician and patient | Medical care | Practice | Medical innovations | Philosophy | Medicine: General Issues | Sociology & Social Policy | United States
eBook
2015, Basic bioethics, ISBN 0262029596, x, 215
The United States has one of the highest rates of premature birth of any industrialized nation: 11.5%, nearly twice the rate of many European countries. In...
Premature Birth | Premature infants | Infant Mortality | Infant, Premature | Reproductive Behavior | Obstetrics | Premature labor | trends | Prenatal Care | etiology | Clinical & internal medicine | United States | Health Sciences | Infant, Premature - United States | Infants
Premature Birth | Premature infants | Infant Mortality | Infant, Premature | Reproductive Behavior | Obstetrics | Premature labor | trends | Prenatal Care | etiology | Clinical & internal medicine | United States | Health Sciences | Infant, Premature - United States | Infants
Book
The New England Journal of Medicine, ISSN 0028-4793, 11/2018, Volume 379, Issue 19, pp. 1851 - 1860
Technological advances have altered the boundary between viable and nonviable newborns and increased the need to consider quality of life in intervention...
PRENATAL CONSULTATION | MEDICINE, GENERAL & INTERNAL | INFORMED-CONSENT | LOW-BIRTH-WEIGHT | INFORMATION | INFANTS | PARENTS | MORAL DISTRESS | ANTENATAL CONSULTATIONS | INTENSIVE-CARE | PRETERM LABOR | Decision-making | Intensive care units | Dilemma | Analysis | Infants | Management | Health aspects | Methods | Neonates | Parents & parenting | Intensive care | Neonatal care | Decision making | Medical prognosis | Innovations | Families & family life | Bioethics | Medical ethics | Quality of life | Empowerment
PRENATAL CONSULTATION | MEDICINE, GENERAL & INTERNAL | INFORMED-CONSENT | LOW-BIRTH-WEIGHT | INFORMATION | INFANTS | PARENTS | MORAL DISTRESS | ANTENATAL CONSULTATIONS | INTENSIVE-CARE | PRETERM LABOR | Decision-making | Intensive care units | Dilemma | Analysis | Infants | Management | Health aspects | Methods | Neonates | Parents & parenting | Intensive care | Neonatal care | Decision making | Medical prognosis | Innovations | Families & family life | Bioethics | Medical ethics | Quality of life | Empowerment
Journal Article
JAMA, ISSN 0098-7484, 07/2016, Volume 316, Issue 4, pp. 396 - 398
Lantos talks trisomy 13 and 18 which were lethal congenital anomalies. Parents were told that these conditions were incompatible with life. There was a tacit...
MEDICINE, GENERAL & INTERNAL | ATTITUDES | Trisomy | Chromosomes, Human, Pair 18 | Surgical Procedures, Operative - mortality | Humans | Chromosomes, Human, Pair 13 | Female | Male | Treatment outcome | Care and treatment | Edwards' syndrome | Patau's syndrome | Analysis | Medical treatment | Congenital diseases | Prophecies
MEDICINE, GENERAL & INTERNAL | ATTITUDES | Trisomy | Chromosomes, Human, Pair 18 | Surgical Procedures, Operative - mortality | Humans | Chromosomes, Human, Pair 13 | Female | Male | Treatment outcome | Care and treatment | Edwards' syndrome | Patau's syndrome | Analysis | Medical treatment | Congenital diseases | Prophecies
Journal Article
Pediatrics, ISSN 0031-4005, 01/2019, Volume 143, Issue Suppl 1, pp. S33 - S36
Ethical controversies may arise when genome sequencing reveals a genetic variant that is thought to be pathogenic, but the patient has no symptoms. This could...
PEDIATRICS | KRABBE DISEASE | GENOMICS | Genotype & phenotype | Pediatrics | Genetic variance | Phenotypes | Genomes | Medical ethics | Gene sequencing
PEDIATRICS | KRABBE DISEASE | GENOMICS | Genotype & phenotype | Pediatrics | Genetic variance | Phenotypes | Genomes | Medical ethics | Gene sequencing
Journal Article
Pediatrics, ISSN 0031-4005, 01/2019, Volume 143, Issue Suppl 1, pp. S1 - S5
WGS raises different ethical issues than previous uses of genomics in newborns. In this article, I review some of the ethical issues that have arisen in the...
PEDIATRICS | TOO | LEGAL | CHALLENGES | Pediatrics | Neonates | Ethics | Bioethics | Genomes | Genetic screening | Gene sequencing
PEDIATRICS | TOO | LEGAL | CHALLENGES | Pediatrics | Neonates | Ethics | Bioethics | Genomes | Genetic screening | Gene sequencing
Journal Article
JAMA Pediatrics, ISSN 2168-6203, 2019, Volume 173, Issue 5, pp. 418 - 419
In this issue of JAMA Pediatrics, Brumbaugh et al1 show that infants born weighing less than 400 g can survive. In this study, when such infants were admitted...
PEDIATRICS | Intensive care units | Neonates | Pediatrics | Weighing | Hospitals | Health problems | Infants | Birth weight | Survival | Gestational age
PEDIATRICS | Intensive care units | Neonates | Pediatrics | Weighing | Hospitals | Health problems | Infants | Birth weight | Survival | Gestational age
Journal Article
JAMA PEDIATRICS, ISSN 2168-6203, 05/2019, Volume 173, Issue 5, pp. 411 - 412
This Viewpoint reviews the debate about germline gene editing in the context of previous debates about in vitro fertilization and other notable technologies.
PEDIATRICS | Bioethics | Genetic engineering | Genes | Genetic modification
PEDIATRICS | Bioethics | Genetic engineering | Genes | Genetic modification
Journal Article
JAMA Pediatrics, ISSN 2168-6203, 10/2017, Volume 171, Issue 10, pp. 935 - 936
Journal Article
Perspectives in Biology and Medicine, ISSN 0031-5982, 2017, Volume 60, Issue 3, pp. 390 - 399
This paper discusses the inevitable ambiguity of the language that we use to describe events that are rare and emotionally devastating. A search for precision...
Language and ethics | Frustration | MEDICINE, RESEARCH & EXPERIMENTAL | HISTORY & PHILOSOPHY OF SCIENCE | ALWAYS WRONG | CARE | Practice | Physicians | Analysis | Refusal to treat (Medicine) | Abandonment of care | Intensive care | Right to die | Transplants & implants | Decision making | Bioethics | Patients | Cardiopulmonary resuscitation--CPR | Emotions | Ethics | Hospitals | Language | Collaboration
Language and ethics | Frustration | MEDICINE, RESEARCH & EXPERIMENTAL | HISTORY & PHILOSOPHY OF SCIENCE | ALWAYS WRONG | CARE | Practice | Physicians | Analysis | Refusal to treat (Medicine) | Abandonment of care | Intensive care | Right to die | Transplants & implants | Decision making | Bioethics | Patients | Cardiopulmonary resuscitation--CPR | Emotions | Ethics | Hospitals | Language | Collaboration
Journal Article
Pediatrics, ISSN 0031-4005, 07/2015, Volume 136, Issue 1, pp. 170 - 176
Every year, 10 000 infants are born in the United States with sensorineural deafness. Deaf children of hearing (and nonsigning) parents are unique among all...
MOTHERS | HEARING-LOSS | PARENTAL INPUT | GESTURAL COMMUNICATION | COMMUNITY | ENGLISH | INFANTS | PEDIATRICS | COCHLEAR IMPLANTS | SPEECH | PLASTICITY | United States | Humans | Language Development | Parents | Persons With Hearing Impairments - rehabilitation | Infant | Cochlear Implants | Deafness - rehabilitation | Parent-Child Relations | Child | Sign Language | Sign language | Usage | Parent and child | Analysis | Pediatricians | Practice | Children, Deaf | Health aspects | Babies | Deafness | Pediatrics | Interpersonal communication | Risk assessment
MOTHERS | HEARING-LOSS | PARENTAL INPUT | GESTURAL COMMUNICATION | COMMUNITY | ENGLISH | INFANTS | PEDIATRICS | COCHLEAR IMPLANTS | SPEECH | PLASTICITY | United States | Humans | Language Development | Parents | Persons With Hearing Impairments - rehabilitation | Infant | Cochlear Implants | Deafness - rehabilitation | Parent-Child Relations | Child | Sign Language | Sign language | Usage | Parent and child | Analysis | Pediatricians | Practice | Children, Deaf | Health aspects | Babies | Deafness | Pediatrics | Interpersonal communication | Risk assessment
Journal Article
The New England Journal of Medicine, ISSN 0028-4793, 11/2014, Volume 371, Issue 22, pp. 2129 - 2130
The OHRP issued draft guidelines requiring disclosure of all risks of standard treatments in comparative-effectiveness research. The authors argue that such...
MEDICINE, GENERAL & INTERNAL | Clinical Trials as Topic - legislation & jurisprudence | Guidelines as Topic | Comparative Effectiveness Research - legislation & jurisprudence | United States | Ethics Committees, Research | Humans | Informed Consent - legislation & jurisprudence | Standard of Care - legislation & jurisprudence | Government Regulation | Risk | Medical policy | Medicine, Experimental | Treatment outcome | Medical research | Analysis | Human subjects | Comparative studies | Informed consent | Medical treatment | Risk factors
MEDICINE, GENERAL & INTERNAL | Clinical Trials as Topic - legislation & jurisprudence | Guidelines as Topic | Comparative Effectiveness Research - legislation & jurisprudence | United States | Ethics Committees, Research | Humans | Informed Consent - legislation & jurisprudence | Standard of Care - legislation & jurisprudence | Government Regulation | Risk | Medical policy | Medicine, Experimental | Treatment outcome | Medical research | Analysis | Human subjects | Comparative studies | Informed consent | Medical treatment | Risk factors
Journal Article
Pediatrics, ISSN 0031-4005, 07/2018, Volume 142, Issue 1, p. 1
Lantos discusses on what we think about survival rates for infants born at 22 or 23 weeks' gestational age is probably wrong. It is wrong because of some...
Babies | Survival analysis | Stillbirth | Data collection | Infants | Prenatal care | Gestational age
Babies | Survival analysis | Stillbirth | Data collection | Infants | Prenatal care | Gestational age
Journal Article
The New England Journal of Medicine, ISSN 0028-4793, 10/2015, Volume 373, Issue 15, pp. 1393 - 1395
A judge has dismissed a lawsuit alleging that fully informed consent was not obtained from parents of infants in the Surfactant, Positive Pressure, and...
MEDICINE, GENERAL & INTERNAL | Clinical Trials as Topic - legislation & jurisprudence | United States | Ethics Committees, Research | Humans | Informed Consent - legislation & jurisprudence | Infant, Premature, Diseases - etiology | Alabama | Infant, Extremely Premature - blood | Oxygen Inhalation Therapy | United States Office of Research Integrity | Oxygen - blood | Oxygen - administration & dosage | Retinopathy of Prematurity - prevention & control | Clinical Trials as Topic - ethics | Infant, Newborn | Negligence | Neonatologists | Parents | Clinical trials | Infants | Health aspects | Cases | Babies | Informed consent | Oxygenation | Premature birth | Litigation
MEDICINE, GENERAL & INTERNAL | Clinical Trials as Topic - legislation & jurisprudence | United States | Ethics Committees, Research | Humans | Informed Consent - legislation & jurisprudence | Infant, Premature, Diseases - etiology | Alabama | Infant, Extremely Premature - blood | Oxygen Inhalation Therapy | United States Office of Research Integrity | Oxygen - blood | Oxygen - administration & dosage | Retinopathy of Prematurity - prevention & control | Clinical Trials as Topic - ethics | Infant, Newborn | Negligence | Neonatologists | Parents | Clinical trials | Infants | Health aspects | Cases | Babies | Informed consent | Oxygenation | Premature birth | Litigation
Journal Article
The American Journal of Bioethics, ISSN 1526-5161, 11/2017, Volume 17, Issue 11, pp. 4 - 5
Journal Article
Acta Paediatrica, ISSN 0803-5253, 08/2012, Volume 101, Issue 8, pp. 800 - 804
When physicians are asked for a consult for women in premature labour, they face a complex set of challenges. Policy statements recommend that women be given...
Decision‐making | Peri‐viability guidelines | Ethics | Physician/patient/parent relationship | Prematurity | Extreme prematurity | Informed consent | Preterm labour | Outcomes of high‐risk infants | Emotions | Quality of life | Decision-making | parent relationship | INFORMATION | Outcomes of high-risk infants | Physician | RISK | CHILDREN | patient | BORN | INFANTS | Peri-viability guidelines | PEDIATRICS | WEIGHT | RESUSCITATION | LIFE | Decision Making | Premature Birth | Prognosis | Humans | Physician-Patient Relations | Infant, Premature, Diseases - mortality | Infant, Premature, Diseases - therapy | Pregnancy | Parents - psychology | Infant, Premature | Counseling - methods | Female | Infant, Newborn | Medical care | Infants (Premature) | Medical ethics | Quality management
Decision‐making | Peri‐viability guidelines | Ethics | Physician/patient/parent relationship | Prematurity | Extreme prematurity | Informed consent | Preterm labour | Outcomes of high‐risk infants | Emotions | Quality of life | Decision-making | parent relationship | INFORMATION | Outcomes of high-risk infants | Physician | RISK | CHILDREN | patient | BORN | INFANTS | Peri-viability guidelines | PEDIATRICS | WEIGHT | RESUSCITATION | LIFE | Decision Making | Premature Birth | Prognosis | Humans | Physician-Patient Relations | Infant, Premature, Diseases - mortality | Infant, Premature, Diseases - therapy | Pregnancy | Parents - psychology | Infant, Premature | Counseling - methods | Female | Infant, Newborn | Medical care | Infants (Premature) | Medical ethics | Quality management
Journal Article
PEDIATRICS, ISSN 0031-4005, 08/2019, Volume 144, Issue 2, p. e20190932
In this article, we examine 7 themes underlying parent-initiated digital media campaigns aimed at orchestrating public opposition to doctors' recommendations....
FUTILITY | PEDIATRICS | Parenting | Usage | Parent and child | Social media | Analysis | Pediatric research | Methods | Television and children | Medical personnel | Digital broadcasting | Public concern | Digital media | Public awareness | Doctors
FUTILITY | PEDIATRICS | Parenting | Usage | Parent and child | Social media | Analysis | Pediatric research | Methods | Television and children | Medical personnel | Digital broadcasting | Public concern | Digital media | Public awareness | Doctors
Journal Article
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