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by Green, Robert C and Green, Robert and Goddard, Katrina and Goddard, Katrina A.B and Jarvik, Gail P and Amendola, Laura M and Amendola, Laura and Appelbaum, Paul S and Berg, Jonathan S and Bernhardt, Barbara A and Biesecker, Barbara B and Biesecker, Leslie G and Biswas, Sawona and Blout, Carrie L and Bowling, Kevin M and Brothers, Kyle B and Burke, Wylie and Caga-anan, Charlisse F and Chinnaiyan, Arul M and Chung, Wendy K and Chung, Wendy and Clayton, Ellen and Clayton, Ellen W and Cooper, Greg M and Cooper, Gregory M and East, Kelly and East, Kelly M and Evans, James P and Evans, Barbara and Fullerton, Stephanie M and Garraway, Levi A and Garrett, Jeremy R and Gray, David E and Gray, Stacy W and Henderson, Gail E and Hindorff, Lucia A and Holm, Ingrid A and Lewis, Michelle and Lewis, Katie and Lewis, Michelle Huckaby and Hutter, Carolyn M and Janne, Pasi A and Joffe, Steve and Joffe, Steven and Kaufman, Dave and Kaufman, David and Knoppers, Bartha and Knoppers, Bartha M and Koenig, Barbara A and Krantz, Ian and Krantz, Ian D and Manolio, Teri A and McCullough, Laurence and McEwen, Jean and McGuire, Amy and Muzny, Donna and Myers, Richard M and Nickerson, Deborah A and Ou, Jeffrey and Parsons, Will and Parsons, Donald W and Petersen, Gloria and Petersen, Gloria M and Plon, Sharon and Plon, Sharon E and Rehm, Heidi L and Roberts, Scott and Roberts, J. Scott and Robinson, Marguerite E and Robinson, Jill O and Robinson, Dan and Salama, Joseph and Salama, Joseph S and Scollon, Sarah and Sharp, Richard R and Shirts, Brian and Shirts, Brian H and Spinner, Nancy B and Tabor, Holly K and Tarczy-Hornoch, Peter and Veenstra, David L and Wagle, Nikhil and Weck, Karen and Wilfond, Ben and Wilfond, Benjamin S and Wilhelmsen, Kirk C and Wilhelmsen, Kirk and Wolf, Susan M and Wynn, Julia and Yu, Joon-Ho and Amaral, Michelle and Aronson, Samuel J and Arora, Shubhangi and Azzariti, Danielle R and Barsh, Greg S and Bebin, E.M and Brown, Brian L and Burt, Amber A and Byers, Peter H and Calikoglu, Muge G and ... and CSER Consortium
The American Journal of Human Genetics, ISSN 0002-9297, 06/2016, Volume 98, Issue 6, pp. 1051 - 1066
Journal Article
The Journal of Law, Medicine & Ethics, ISSN 1073-1105, 4/2015, Volume 43, Issue 1_suppl, pp. 32 - 35
Journal Article
The Journal of Law, Medicine & Ethics, ISSN 1073-1105, 10/2015, Volume 43, Issue 3, pp. 559 - 568
Journal Article
Paediatric Respiratory Reviews, ISSN 1526-0542, 2013, Volume 14, Issue 1, pp. 2 - 5
Journal Article
by Green, Robert C and Green, Robert and Goddard, Katrina and Goddard, Katrina A.B and Jarvik, Gail P and Amendola, Laura and Amendola, Laura M and Appelbaum, Paul S and Berg, Jonathan S and Bernhardt, Barbara A and Biesecker, Barbara B and Biesecker, Leslie G and Biswas, Sawona and Blout, Carrie L and Bowling, Kevin M and Brothers, Kyle B and Burke, Wylie and Caga-anan, Charlisse F and Chinnaiyan, Arul M and Chung, Wendy and Chung, Wendy K and Clayton, Ellen and Clayton, Ellen W and Cooper, Greg M and Cooper, Gregory M and East, Kelly and East, Kelly M and Evans, James P and Evans, Barbara and Fullerton, Stephanie M and Garraway, Levi A and Garrett, Jeremy R and Gray, David E and Gray, Stacy W and Henderson, Gail E and Hindorff, Lucia A and Holm, Ingrid A and Lewis, Michelle and Lewis, Katie and Lewis, Michelle Huckaby and Hutter, Carolyn M and Janne, Pasi A and Joffe, Steve and Joffe, Steven and Kaufman, Dave and Kaufman, David and Knoppers, Bartha M and Knoppers, Bartha and Koenig, Barbara A and Krantz, Ian and Krantz, Ian D and Manolio, Teri A and McCullough, Laurence and McEwen, Jean and McGuire, Amy and Muzny, Donna and Myers, Richard M and Nickerson, Deborah A and Ou, Jeffrey and Parsons, Will and Parsons, Donald W and Petersen, Gloria M and Petersen, Gloria and Plon, Sharon and Plon, Sharon E and Rehm, Heidi L and Roberts, Scott and Roberts, J. Scott and Robinson, Dan and Robinson, Jill O and Robinson, Marguerite E and Salama, Joseph S and Salama, Joseph and Scollon, Sarah and Sharp, Richard R and Shirts, Brian and Shirts, Brian H and Spinner, Nancy B and Tabor, Holly K and Tarczy-Hornoch, Peter and Veenstra, David L and Wagle, Nikhil and Weck, Karen and Wilfond, Ben and Wilfond, Benjamin S and Wilhelmsen, Kirk C and Wilhelmsen, Kirk and Wolf, Susan M and Wynn, Julia and Yu, Joon-Ho and Amaral, Michelle and Aronson, Samuel J and Arora, Shubhangi and Azzariti, Danielle R and Barsh, Greg S and Bebin, E.M and Brown, Brian L and Burt, Amber A and Byers, Peter H and Calikoglu, Muge G and ... and CSER Consortium
The American Journal of Human Genetics, ISSN 0002-9297, 07/2016, Volume 99, Issue 1, pp. 246 - 246
Journal Article
Pediatrics, ISSN 0031-4005, 02/2014, Volume 133, Issue 2, pp. e410 - e417
Journal Article
Science Translational Medicine, ISSN 1946-6234, 11/2012, Volume 4, Issue 159, pp. 159cm12 - 159cm12
Retention and use, without explicit parental permission, of residual dried blood samples from newborn screening has generated public controversy over concerns... 
MEDICINE, RESEARCH & EXPERIMENTAL | RETENTION | SPOTS | CELL BIOLOGY | Biomedical Research - legislation & jurisprudence | Legislation as Topic | Blood Specimen Collection | Blood Preservation | Humans | Public Health - legislation & jurisprudence | Neonatal Screening - legislation & jurisprudence | Infant, Newborn | Index Medicus
Journal Article
AMA journal of ethics, 09/2018, Volume 20, Issue 9, p. E819
Scientists are beginning to understand more about the role of host genetics in individuals' responses to influenza virus exposure. This fictional case... 
Journal Article
by Green, Robert C and Goddard, Katrina A.B and Jarvik, Gail P and Amendola, Laura M and Appelbaum, Paul S and Berg, Jonathan S and Bernhardt, Barbara A and Biesecker, Leslie G and Biswas, Sawona and Blout, Carrie L and Bowling, Kevin M and Brothers, Kyle B and Burke, Wylie and Caga-anan, Charlisse F and Chinnaiyan, Arul M and Chung, Wendy K and Clayton, Ellen W and Cooper, Gregory M and East, Kelly and Evans, James P and Fullerton, Stephanie M and Garraway, Levi A and Garrett, Jeremy R and Gray, Stacy W and Henderson, Gail E and Hindorff, Lucia A and Holm, Ingrid A and Lewis, Michelle Huckaby and Hutter, Carolyn M and Janne, Pasi A and Joffe, Steven and Kaufman, David and Knoppers, Bartha M and Koenig, Barbara A and Krantz, Ian D and Manolio, Teri A and McCullough, Laurence and McEwen, Jean and McGuire, Amy and Muzny, Donna and Myers, Richard M and Nickerson, Deborah A and Ou, Jeffrey and Parsons, Donald W and Petersen, Gloria M and Plon, Sharon E and Rehm, Heidi L and Roberts, J. Scott and Robinson, Dan and Salama, Joseph S and Scollon, Sarah and Sharp, Richard R and Shirts, Brian and Spinner, Nancy B and Tabor, Holly K and Tarczy-Hornoch, Peter and Veenstra, David L and Wagle, Nikhil and Weck, Karen and Wilfond, Benjamin S and Wilhelmsen, Kirk and Wolf, Susan M and Wynn, Julia and Yu, Joon-Ho and Amaral, Michelle and Amendola, Laura and Appelbaum, Paul S and Aronson, Samuel J and Arora, Shubhangi and Azzariti, Danielle R and Barsh, Greg S and Bebin, E.M and Biesecker, Barbara B and Biesecker, Leslie G and Biswas, Sawona and Blout, Carrie L and Bowling, Kevin M and Brothers, Kyle B and Brown, Brian L and Burt, Amber A and Byers, Peter H and Caga-anan, Charlisse F and Calikoglu, Muge G and Carlson, Sara J and Chahin, Nizar and Chinnaiyan, Arul M and Christensen, Kurt D and Chung, Wendy and Cirino, Allison L and Clayton, Ellen and Conlin, Laura K and Cooper, Greg M and Crosslin, David R and Davis, James V and Davis, Kelly and Deardorff, Matthew A and Devkota, Batsal and De Vries, Raymond and Diamond, Pamela and Dorschner, Michael O and ...
American Journal of Human Genetics, ISSN 0002-9297, 07/2016, Volume 99, Issue 1, p. 246
(The American Journal of Human Genetics 98, 1051–1066; June 2, 2016) In the originally published version of this article, the first name of Christian R.... 
Journal Article
09/2019, 1, Oxford Handbooks, ISBN 0190245190
The purpose of newborn screening is to identify and treat infants with certain conditions prior to the onset of symptoms in order to reduce morbidity and... 
public health ethics | residual dried blood samples | parental permission | genomic sequencing | newborn screening
Book Chapter
Circulation, ISSN 0009-7322, 05/2012, Volume 125, Issue 17, pp. 2081 - 2091
Background-Survivors of the Norwood procedure may experience neurodevelopmental impairment. Clinical trials to improve outcomes have focused primarily on... 
Congenital cardiac defects | Congenital heart disease | Hypoplastic left heart syndrome | Cardiac surgery | Heart defects, congenital | ALPHA-STAT | CARDIAC & CARDIOVASCULAR SYSTEMS | hypoplastic left heart syndrome | GREAT-ARTERIES | PH-STAT STRATEGIES | AGE 8 YEARS | RANDOMIZED-TRIAL | CARDIOPULMONARY BYPASS | NEURODEVELOPMENTAL OUTCOMES | DEVELOPING BRAIN | congenital cardiac defects | HYPOTHERMIC CIRCULATORY ARREST | congenital heart disease | cardiac surgery | heart defects, congenital | PERIPHERAL VASCULAR DISEASE | NORWOOD PROCEDURE | Postoperative Complications - etiology | Prospective Studies | Humans | Hypoplastic Left Heart Syndrome - complications | Hypoplastic Left Heart Syndrome - surgery | Child, Preschool | Infant | Male | Pulmonary Artery - surgery | Norwood Procedures | Socioeconomic Factors | Brain Damage, Chronic - rehabilitation | Postoperative Complications - rehabilitation | Abnormalities, Multiple - epidemiology | Early Intervention (Education) | Female | Psychomotor Disorders - rehabilitation | Child | Psychomotor Disorders - epidemiology | Infant, Newborn | Vascular Grafting - methods | Hypoxia, Brain - psychology | Developmental Disabilities - etiology | Risk Factors | Hypoxia, Brain - etiology | Postoperative Complications - epidemiology | Psychomotor Disorders - etiology | Developmental Disabilities - epidemiology | Neuropsychological Tests | Brain Damage, Chronic - etiology | Developmental Disabilities - rehabilitation | Heart Ventricles - surgery | Blalock-Taussig Procedure | Brain Damage, Chronic - epidemiology | Brain Damage, Chronic - prevention & control | Heart | Care and treatment | Usage | Surgery | Risk factors | Ventricular fibrillation | Index Medicus | Abridged Index Medicus
Journal Article