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1. Full Text Burden and centralised treatment in Europe of rare tumours: results of RARECAREnet—a population-based study
by Gatta, Gemma and Capocaccia, Riccardo and Botta, Laura and Mallone, Sandra and De Angelis, Roberta and Ardanaz, Eva and Comber, Harry and Dimitrova, Nadya and Leinonen, Maarit K and Siesling, Sabine and van der Zwan, Jan M and Van Eycken, Liesbet and Visser, Otto and Žakelj, Maja P and Anderson, Lesley A and Bella, Francesca and Kaire, Innos and Otter, Renée and Stiller, Charles A and Trama, Annalisa and Hackl, Monika and Henau, Kris and Van Damme, Nancy and Valerianova, Zdravka and Sekerija, Mario and Dušek, Ladislav and Mägi, Margit and Paapsi, Keiu and Malila, Nea and Velten, Michel and Troussard, Xavier and Bouvier, Veronique and Bouvier, Anne-Marie and Guizard, Anne-Valérie and Arveux, Patrick and Maynadié, Marc and Woronoff, Anne-Sophie and Robaszkiewicz, Michel and Baldi, Isabelle and Monnereau, Alain and Tretarre, Brigitte and Colonna, Marc and Molinié, Florence and Bara, Simona and Schvartz, Claire and Lapôtre-Ledoux, Bénédicte and Grosclaude, Pascale and Stabenow, Roland and Luttmann, Sabine and Nennecke, Alice and Engel, Jutta and SchubertFritschle, Gabriele and Heidrich, Jan and Holleczek, Bernd and Jónasson, Jón Gunnlaugur and Clough-Gorr, Kerri and Mazzoleni, Guido and Giacomin, Adriano and Sardo, Antonella Sutera and Barchielli, Alessandro and Serraino, Diego and Collarile, Paolo and Pannozzo, Fabio and Ricci, Paolo and Autelitano, Mariangela and Spagnoli, Gianbattista and Fusco, Mario and Usala, Mario and Vitale, Francesco and Michiara, Maria and Tumino, Rosario and Mangone, Lucia and Falcini, Fabio and Ferretti, Stefano and Filiberti, Rosa Angela and Marani, Enza and Caiazzo, Anna Luisa and Iannelli, Arturo and Sensi, Flavio and Piffer, Silvano and Gentilini, Maria and Madeddu, Anselmo and Colanino, Antonino Ziino and Maspero, Sergio and Candela, Pina and Stracci, Fabrizio and Tagliabue, Giovanna and Rugge, Massimo and Baili, Paolo and Minicozzi, Pamela and Sant, Milena and Tereanu, Carmen and Francisci, Silvia and Tavilla, Andrea and Pierannunzio, Daniela and Rossi, Silvia and Santaquilani, Mariano and Knijn, Arnold and Pildava, Santa and Smailyte, Giedre and ... and RARECAREnet Working Grp and RARECAREnet working group
The Lancet Oncology, ISSN 1470-2045, 08/2017, Volume 18, Issue 8, pp. 1022 - 1039
Rare cancers pose challenges for diagnosis, treatments, and clinical decision making. Information about rare cancers is scant. The RARECARE project defined... 
CANCER SURVIVAL | HEAD | IMPACT | QUALITY | ONCOLOGY | EUROCARE-5 | NECK-CANCER | EPIDEMIOLOGY | Rare Diseases - mortality | Humans | Europe - epidemiology | Hospitalization - statistics & numerical data | Neoplasms - mortality | Rare Diseases - epidemiology | Male | Survival Rate | Cancer Care Facilities | Incidence | Neoplasms - therapy | Rare Diseases - therapy | Delivery of Health Care | Female | Registries | Neoplasms - epidemiology | Life Sciences
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2. Full Text Incidence of advanced colorectal cancer in Germany: comparing claims data and cancer registry data
by Oppelt, KA and Luttmann, S and Kraywinkel, K and Haug, U
BMC MEDICAL RESEARCH METHODOLOGY, ISSN 1471-2288, 07/2019, Volume 19, Issue 1, pp. 142 - 9
BackgroundIncidence rates of advanced cancer stages are important, e.g., for monitoring cancer screening programs. However, information from cancer registries... 
SURVIVAL | DIAGNOSIS | IDENTIFY | neoplasm staging | COUNTRIES | STAGE | MEDICARE CLAIMS | Colorectal neoplasms | BREAST | healthcare | HEALTH CARE SCIENCES & SERVICES | neoplasm metastasis | administrative claims | PROGRAM | Analysis | Oncology, Experimental | Tumor staging | Colorectal cancer | Online databases | Metastasis | Research | Diagnosis | Cancer | administrative claims, healthcare
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3. Full Text Survival in patients with acute myeloblastic leukemia in Germany and the United States: Major differences in survival in young adults
by Pulte, Dianne and Jansen, Lina and Castro, Felipe A and Krilaviciute, Agne and Katalinic, Alexander and Barnes, Benjamin and Ressing, Meike and Holleczek, Bernd and Luttmann, Sabine and Brenner, Hermann and GEKID Canc Survival Working Grp and GEKID Cancer Survival Working Group
International Journal of Cancer, ISSN 0020-7136, 09/2016, Volume 139, Issue 6, pp. 1289 - 1296
Previous epidemiologic studies on AML have been limited by the rarity of the disease. Here, we present population level data on survival of patients with AML... 
acute myeloblastic leukemia | survival | period analysis | Period analysis | Survival | Acute myeloblastic leukemia | UP-TO-DATE | CANCER SURVIVAL | POPULATION | LONG-TERM SURVIVAL | ACUTE MYELOID-LEUKEMIA | TRENDS | ONCOLOGY | EMPIRICAL-EVALUATION | HEMATOLOGIC MALIGNANCIES | AGE | United States - epidemiology | SEER Program | Age Factors | Humans | Leukemia, Myeloid, Acute - epidemiology | Middle Aged | Male | Survival Rate | Germany - epidemiology | Leukemia, Myeloid, Acute - mortality | Young Adult | Leukemia, Myeloid, Acute - diagnosis | Adolescent | Sex Factors | Survival Analysis | Aged, 80 and over | Adult | Female | Registries | Aged | Youth | Teenagers | Epidemiology | Analysis | Leukemia | Mortality | Young adults
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4. Full Text Survival among adolescents and young adults with cancer in Germany and the United States: An international comparison
by Gondos, Adam and Hiripi, Eva and Holleczek, Bernd and Luttmann, Sabine and Eberle, Andrea and Brenner, Hermann and GEKID Canc Survival Working Grp and GEKID Cancer Survival Working Group
International Journal of Cancer, ISSN 0020-7136, 11/2013, Volume 133, Issue 9, pp. 2207 - 2215
Serious concern arose in the scientific literature about the state of and progress in cancer survival among adolescent and young adult (AYA) patients in the... 
AYA | USA | Germany | cancer survival | UP-TO-DATE | PSYCHOSOCIAL CARE | PERIOD ANALYSIS | EARLY 21ST-CENTURY | BREAST-CANCER | COLON-CANCER | ONCOLOGY | ACUTE LYMPHOBLASTIC-LEUKEMIA | CLINICAL-TRIALS | PATIENT SURVIVAL | AGE | Prognosis | Age Factors | Follow-Up Studies | United States | Humans | Middle Aged | Neoplasms - mortality | Male | Survival Rate | Neoplasms - diagnosis | Young Adult | International Agencies | Registries - statistics & numerical data | Adolescent | Adult | Female | Youth | Teenagers | Analysis | Cancer | Breast cancer | Medical treatment | Mortality | Age
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5. Full Text Perspektiven für ein bundesweites Mortalitätsregister: Erfahrungen mit dem Bremer Mortalitätsindex
by Luttmann, Sabine and Eberle, Andrea and Kibele, Eva and Ahrens, Wolfgang
Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz, ISSN 1436-9990, 12/2019, Volume 62, Issue 12, pp. 1500 - 1509
Der Todeszeitpunkt und die zum Tode führenden Erkrankungen sind wichtige Informationen für gesundheitswissenschaftliche Studien und Krankheitsregister. Sie... 
Public Health | Deutschland | Medicine & Public Health | Register | Mortality | Todesbescheinigung | Death certificate | General Practice / Family Medicine | Index | Registry | Germany | Mortalität
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6. Full Text Survival of patients with hepatobiliary tract and duodenal cancer sites in Germany and the United States in the early 21st century
by Pulte, Dianne and Weberpals, Janick and Schröder, Chloé Charlotte and Emrich, Katharina and Holleczek, Bernd and Katalinic, Alexander and Luttmann, Sabine and Sirri, Eunice and Jansen, Lina and Brenner, Hermann and GEKID Cancer Survival Working Grp and GEKID Cancer Survival Working Group
International Journal of Cancer, ISSN 0020-7136, 07/2018, Volume 143, Issue 2, pp. 324 - 332
Hepatobiliary tract cancers (HBTCs) are a heterogeneous group of cancers with high mortality. Because most of these cancers, with the exception of... 
cancer | hepatobiliary tract | population‐based | survival | population-based | UP-TO-DATE | POPULATION | STATISTICS | GUIDELINES | PERIOD ANALYSIS | RATES | HEPATOCELLULAR-CARCINOMA | ONCOLOGY | EMPIRICAL-EVALUATION | COMMON | United States - epidemiology | Carcinoma, Hepatocellular - epidemiology | Carcinoma, Hepatocellular - mortality | SEER Program | Age Distribution | Duodenal Neoplasms - mortality | Humans | Middle Aged | Duodenal Neoplasms - epidemiology | Biliary Tract Neoplasms - epidemiology | Male | Biliary Tract Neoplasms - mortality | Liver Neoplasms - mortality | Germany - epidemiology | Young Adult | Liver Neoplasms - epidemiology | Adolescent | Survival Analysis | Adult | Female | Aged | Databases, Factual | Medicine, Experimental | Medical research | Epidemiology | Mortality | Analysis | Biliary tract | Databases | Hepatocellular carcinoma | Survival | Patients | Data bases
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7. Full Text Risk of second primary cancers in women diagnosed with endometrial cancer in German and Swedish cancer registries
by Chen, Tianhui and Brenner, Hermann and Fallah, Mahdi and Jansen, Lina and Castro, Felipe A and Geiss, Karla and Holleczek, Bernd and Katalinic, Alexander and Luttmann, Sabine and Sundquist, Kristina and Ressing, Meike and Xu, Leiting and Hemminki, Kari and GEKID Canc Survival Working Grp and GEKID Cancer Survival Working Group and Family Medicine and Clinical Epidemiology and Lund University and Allmänmedicin och klinisk epidemiologi and Family Medicine, Cardiovascular Epidemiology and Lifestyle and EpiHealth: Epidemiology for Health and Lunds universitet and Allmänmedicin, kardiovaskulär epidemiologi och levnadsvanor
International Journal of Cancer, ISSN 0020-7136, 12/2017, Volume 141, Issue 11, pp. 2270 - 2280
Along with the increasing incidence and favorable prognosis, more women diagnosed with endometrial cancer may develop second primary cancers (SPCs). We aimed... 
endometrial cancer | cancer registry | second primary cancer | etiology | SURVIVAL | SUBSEQUENT PRIMARY MALIGNANCIES | PATTERNS | EARLY 21ST-CENTURY | OVARIAN MALIGNANCY | DATABASE | ONCOLOGY | COMMON | COHORT | Humans | Middle Aged | Risk Factors | Sweden - epidemiology | Germany - epidemiology | Incidence | Neoplasms, Second Primary - epidemiology | Young Adult | Adolescent | Aged, 80 and over | Adult | Endometrial Neoplasms - pathology | Female | Registries | Aged | Prevention | Development and progression | Endometrial cancer | Risk factors | Cancer | Kidneys | Prognosis | Preservation | Health risks | Histology | Ovaries | Patients | Medical prognosis | Surgery | Kidney cancer | Hormone replacement therapy | Health risk assessment | Endometrium | Kidney transplantation | Clinical Medicine | Medical and Health Sciences | Medicin och hälsovetenskap | Klinisk medicin | Cancer and Oncology | Cancer och onkologi
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8. Full Text Response: Methods for second primary cancers evaluation have to be standardized
by Chen, Tianhui and Brenner, Hermann and Fallah, Mahdi and Jansen, Lina and Castro, Felipe A and Geiss, Karla and Holleczek, Bernd and Katalinic, Alexander and Luttmann, Sabine and Sundquist, Kristina and Ressing, Meike and Xu, Leiting and Hemminki, Kari and GEKID Canc Survival Working Grp and GEKID Cancer Survival Working Group and Family Medicine and Clinical Epidemiology and Lund University and Allmänmedicin och klinisk epidemiologi and Family Medicine, Cardiovascular Epidemiology and Lifestyle and EpiHealth: Epidemiology for Health and Lunds universitet and Allmänmedicin, kardiovaskulär epidemiologi och levnadsvanor
International Journal of Cancer, ISSN 0020-7136, 03/2018, Volume 142, Issue 6, pp. 1286 - 1287
REGISTRIES | ONCOLOGY | RISK | LYMPHOMA | GERMAN | TUMORS | MALIGNANT NEOPLASMS | Risk | Neoplasms, Second Primary | Humans | Risk Factors | Incidence | Analysis | Methods | Cancer | Clinical Medicine | Medical and Health Sciences | Klinisk medicin | Cancer and Oncology | Medicin och hälsovetenskap | Cancer och onkologi
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9. Full Text Trends in survival of chronic lymphocytic leukemia patients in Germany and the USA in the first decade of the twenty-first century
by Pulte, Dianne and Castro, Felipe A and Jansen, Lina and Luttmann, Sabine and Holleczek, Bernd and Nennecke, Alice and Ressing, Meike and Katalinic, Alexander and Brenner, Hermann and GEKID Canc Survival Working Grp and GEKID Cancer Survival Working Group
Journal of Hematology and Oncology, ISSN 1756-8722, 03/2016, Volume 9, Issue 1, pp. 28 - 8
Background: Recent population-based studies in the United States of America (USA) and other countries have shown improvements in survival for patients with... 
UP-TO-DATE | CANCER SURVIVAL | POPULATION | THERAPY | ONCOLOGY | LONG-TERM SURVIVAL | RITUXIMAB | DISEASE | PERIOD ANALYSIS | HEMATOLOGY | FLUDARABINE | EXPRESSION | Outcome Assessment (Health Care) - methods | United States - epidemiology | Prognosis | Age Factors | Humans | Middle Aged | Male | Germany - epidemiology | Young Adult | Leukemia, Lymphocytic, Chronic, B-Cell - therapy | Outcome Assessment (Health Care) - statistics & numerical data | Registries - statistics & numerical data | Adolescent | Survival Analysis | Adult | Female | Aged | Leukemia, Lymphocytic, Chronic, B-Cell - mortality | Outcome Assessment (Health Care) - trends | SEER Program - statistics & numerical data | Leukemia, Lymphocytic, Chronic, B-Cell - diagnosis
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10. Survival for patients with rare haematologic malignancies: Changes in the early 21st century
by Dianne Pulte and Janick Weberpals and Lina Jansen and Sabine Luttmann and Bernd Holleczek and Alice Nennecke and Meike Ressing and Alexander Katalinic and Hermann Brenner
European Journal of Cancer, ISSN 0959-8049, 10/2017, Volume 84, p. 81
Introduction: Population-level survival has improved for common haematologic malignancies in the early 21st century. However, relatively few population-level... 
Cell survival | Mycosis | Leukemia | Mycosis fungoides | Malignancy | Patients | Survival | Epidemiology | Lymphoma | Burkitt's lymphoma | Survival analysis | Mantle cell lymphoma | Lymphomas | Blood diseases | Mantle | Cancer
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11. Full Text Comparative analysis of premature mortality among urban immigrants in Bremen, Germany: a retrospective register-based linkage study
by Makarova, Nataliya and Brand, Tilman and Brünings-Kuppe, Claudia and Pohlabeln, Hermann and Luttmann, Sabine
BMJ Open, ISSN 2044-6055, 03/2016, Volume 6, Issue 3, p. e007875
ObjectivesThe main objective of this study was to explore differences in mortality patterns among two large immigrant groups in Germany: one from Turkey and... 
MIGRATION | FORMER SOVIET-UNION | LIFE LOST | DISEASE MORTALITY | DEATH | Premature mortality | IDENTIFICATION | MEDICINE, GENERAL & INTERNAL | Access and quality in healthcare | Turkey | Migrant health | MIGRANTS | AVOIDABLE MORTALITY | RUSSIA | HEALTH | Former Soviet Union | EPIDEMIOLOGY | Age Distribution | USSR - ethnology | Humans | Middle Aged | Child, Preschool | Infant | Male | Turkey - ethnology | Death Certificates | Emigrants and Immigrants - statistics & numerical data | Germany - epidemiology | Young Adult | Mortality, Premature - ethnology | Adolescent | Sex Distribution | Adult | Cause of Death - trends | Female | Retrospective Studies | Child | Population Surveillance | Infant, Newborn
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12. Full Text Population Level Survival for Patients with Rare Hematologic Malignancies in the United States in the Early 21st Century
by Pulte, Dianne and Weberpals, Janick and Jansen, Lina and Katalinic, Alexander and Nennecke, Alice and Holleczek, Bernd and Ressing, Meike and Luttmann, Sabine and Brenner, Hermann
Blood, ISSN 0006-4971, 12/2016, Volume 128, Issue 22, pp. 2416 - 2416
Abstract Introduction: Population level survival has increased for most of the more common hematologic malignancies in the early 21st century. However, less... 
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13. Full Text Survival of Patients with Rare Plasma Cell or Lymphoplasmacytoid Malignancies in Germany and the United States in the Early 21st Century
by Pulte, Dianne and Weberpals, Janick and Jansen, Lina and Katalinic, Alexander and Nennecke, Alice and Bernd, Holleczek and Meike, Ressing and Sabine, Luttmann and Brenner, Hermann
Blood, ISSN 0006-4971, 12/2016, Volume 128, Issue 22, pp. 4767 - 4767
Abstract Background: Population level survival has improved for myeloma in the early 21st century, but it is unknown whether a similar improvement has occurred... 
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14. Full Text Survival of patients with hepatobiliary tract and duodenal cancer sites in Germany and the United States in the early 21st century
: Hepatobiliary tract cancer patient survival
by Pulte, Dianne and Weberpals, Janick and Schröder, Chloé Charlotte and Emrich, Katharina and Holleczek, Bernd and Katalinic, Alexander and Luttmann, Sabine and Sirri, Eunice and Jansen, Lina and Brenner, Hermann and for the GEKID Cancer Survival Working Group
International Journal of Cancer, ISSN 0020-7136, 07/2018, Volume 143, Issue 2, pp. 324 - 332
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15. Full Text Response: Methods for second primary cancers evaluation have to be standardized
: Letter to the editor
by Chen, Tianhui and Brenner, Hermann and Fallah, Mahdi and Jansen, Lina and Castro, Felipe A and Geiss, Karla and Holleczek, Bernd and Katalinic, Alexander and Luttmann, Sabine and Sundquist, Kristina and Ressing, Meike and Xu, Leiting and Hemminki, Kari and GEKID Cancer Survival Working Group
International Journal of Cancer, ISSN 0020-7136, 03/2018, Volume 142, Issue 6, pp. 1286 - 1287
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16. Full Text Survival of patients with lymphoplasmacytic lymphoma and solitary plasmacytoma in Germany and the United States of America in the early 21 st century
by Weberpals, Janick and Pulte, Dianne and Jansen, Lina and Luttmann, Sabine and Holleczek, Bernd and Nennecke, Alice and Ressing, Meike and Katalinic, Alexander and Merz, Maximilian and Brenner, Hermann and GEKID Cancer Survival Working Group
Haematologica, ISSN 0390-6078, 06/2017, Volume 102, Issue 6, pp. e229 - e232
United States - epidemiology | SEER Program | Waldenstrom Macroglobulinemia - epidemiology | Humans | Middle Aged | Male | Survival Rate | Germany - epidemiology | Plasmacytoma - diagnosis | Plasmacytoma - epidemiology | Young Adult | Adolescent | Plasmacytoma - mortality | Adult | Female | Registries | Aged | Waldenstrom Macroglobulinemia - mortality | Population Surveillance | Waldenstrom Macroglobulinemia - diagnosis
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17. Full Text Risk of second primary cancers in women diagnosed with endometrial cancer in G erman and S wedish cancer registries
by Chen, Tianhui and Brenner, Hermann and Fallah, Mahdi and Jansen, Lina and Castro, Felipe A and Geiss, Karla and Holleczek, Bernd and Katalinic, Alexander and Luttmann, Sabine and Sundquist, Kristina and Ressing, Meike and Xu, Leiting and Hemminki, Kari and GEKID Cancer Survival Working Group
International Journal of Cancer, ISSN 0020-7136, 12/2017, Volume 141, Issue 11, pp. 2270 - 2280
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18. Full Text Data from Population-based Cancer Registration for Secondary Data Analysis: Methodological Challenges and Perspectives
by Arndt, Volker and Holleczek, Bernd and Kajüter, Hiltraud and Luttmann, Sabine and Nennecke, Alice and Zeissig, Sylke Ruth and Kraywinkel, Klaus and Katalinic, Alexander
Das Gesundheitswesen, ISSN 0941-3790, 10/2019
Abstract Population-based cancer registries have a long-standing role in cancer monitoring. Scientific use of cancer registry data is one important purpose of... 
Übersichtsarbeit
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19. Full Text Trends in survival of multiple myeloma patients in Germany and the United States in the first decade of the 21st century
by Pulte, Dianne and Jansen, Lina and Castro, Felipe A and Emrich, Katharina and Katalinic, Alexander and Holleczek, Bernd and Brenner, Hermann and GEKID Canc Survival Working Grp and GEKID Cancer Survival Working Group and the GEKID Cancer Survival Working Group
British Journal of Haematology, ISSN 0007-1048, 10/2015, Volume 171, Issue 2, pp. 189 - 196
Summary Multiple myeloma is a chronic, incurable but highly treatable neoplasm. Recent population‐based studies have shown improvements in survival for... 
myeloma | period analysis | survival | Period analysis | Myeloma | Survival | UP-TO-DATE | CANCER SURVIVAL | LONG-TERM SURVIVAL | LENALIDOMIDE PLUS DEXAMETHASONE | INITIAL TREATMENT | BORTEZOMIB | PREDNISONE | IMPROVEMENT | HEMATOLOGY | MELPHALAN | United States - epidemiology | Age Distribution | Multiple Myeloma - mortality | Humans | Middle Aged | Male | Mortality - trends | Germany - epidemiology | Young Adult | Adolescent | Survival Analysis | Sex Distribution | Adult | Female | Aged | Cohort Studies | Patient outcomes | Analysis | Multiple myeloma
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