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European neuropsychopharmacology, ISSN 0924-977X, 2017, Volume 27, pp. S475 - S476
Journal Article
European journal of human genetics : EJHG, ISSN 1018-4813, 08/2019, Volume 27, Issue 8, pp. 1159 - 1167
Biochemistry & Molecular Biology | Genetics & Heredity | Life Sciences & Biomedicine | Science & Technology | Ethics | General Data Protection Regulation | Index Medicus | Policy | Health policy | Medicinsk rätt | Samhällsvetenskap | Social Sciences | Law | Law and Society | Medical law | Juridik och samhälle | GDPR | Juridik
Journal Article
European journal of human genetics : EJHG, ISSN 1018-4813, 06/2015, Volume 23, Issue 6, pp. 721 - 728
Biomedical research | Data collections | Genomics | Bioethics | Patients | Charters | Ethics | Privacy | Researchers | Information sharing | Genetics | Agreements | Public health | Cancer | Index Medicus
Journal Article
Nature reviews. Genetics, ISSN 1471-0056, 05/2012, Volume 13, Issue 5, pp. 371 - 376
Life Sciences & Biomedicine | Genetics & Heredity | Science & Technology | Fundamental and applied biological sciences. Psychology | Biological and medical sciences | Genetics of eukaryotes. Biological and molecular evolution | Privacy | Informed Consent - ethics | Biomedical Research - ethics | Computational Biology - ethics | Humans | Social Media - ethics | Medical research | Laws, regulations and rules | Medicine, Experimental | Influence | Forecasts and trends | Management | Informed consent (Medical law) | Social aspects | Medical ethics | Medical informatics | Index Medicus
Journal Article
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Ethics, Law and Governance of Biobanking
: National, European and International Approaches
2015, The international library of ethics, law and technology, ISBN 9789401795722, Volume 14, 275
eBook
6.
Full Text
Collaboration to Understand Complex Diseases: Preeclampsia and Adverse Pregnancy Outcomes
Hypertension (Dallas, Tex. 1979), ISSN 0194-911X, 04/2016, Volume 67, Issue 4, pp. 681 - 687
Peripheral Vascular Disease | Life Sciences & Biomedicine | Cardiovascular System & Cardiology | Science & Technology | Hypertension, Pregnancy-Induced - therapy | Pregnancy Complications, Cardiovascular - therapy | Severity of Illness Index | Global Health | Risk Assessment | Humans | Cooperative Behavior | Hypertension, Pregnancy-Induced - diagnosis | Pregnancy | Interdisciplinary Communication | Female | Pregnancy Complications, Cardiovascular - diagnosis | Pre-Eclampsia - therapy | Pregnancy Outcome | Pre-Eclampsia - diagnosis | Index Medicus
Journal Article
European journal of human genetics : EJHG, ISSN 1018-4813, 10/2016, Volume 24, Issue 10, pp. 1403 - 1408
Biochemistry & Molecular Biology | Genetics & Heredity | Life Sciences & Biomedicine | Science & Technology | Information Dissemination - ethics | Genome-Wide Association Study - ethics | Rare Diseases - psychology | European Union | United States | Humans | Knowledge of Results (Psychology) | Genome-Wide Association Study - standards | Health Knowledge, Attitudes, Practice | Databases, Factual | Qualitative research | Young adults | Genomics | Patients | Consortia | Researchers | Consent | Collaboration | Information sharing | Genetic research | Children | Research centers | Bioinformatics | Index Medicus
Journal Article
European journal of human genetics : EJHG, ISSN 1018-4813, 08/2016, Volume 24, Issue 9, pp. 1248 - 1254
Biochemistry & Molecular Biology | Genetics & Heredity | Life Sciences & Biomedicine | Science & Technology | Rare Diseases - genetics | European Union | Genetics, Medical - standards | Humans | Genetic Diseases, Inborn - genetics | Databases, Nucleic Acid - standards | Genetics, Medical - organization & administration | Informed Consent - standards | International Cooperation | Genetics, Medical - legislation & jurisprudence | Information Dissemination | Data collections | Genomics | Licenses | Consortia | Ethics | Privacy | Researchers | Collaboration | Information sharing | Genetics | Informed consent | Research centers | Public health | Index Medicus
Journal Article
BMC medical ethics, ISSN 1472-6939, 01/2017, Volume 18, Issue 1, pp. 4 - 4
Ethics | Dynamic consent | Biobank | Research communication | Clinical trials | Clinical research | Participant engagement | Software tools | Social Sciences | Social Sciences - Other Topics | Life Sciences & Biomedicine | Social Sciences, Biomedical | Medical Ethics | Biomedical Social Sciences | Science & Technology | Biomedical Research - ethics | Follow-Up Studies | Professional-Patient Relations | Humans | Data Collection - methods | Ethics, Research | Information Dissemination | Patient Selection | Informed Consent | Research Personnel | Biomedical Research - methods | Research Subjects | Research Design | Communication | Medicine, Experimental | Medical research | Forecasts and trends | Ethical aspects | Index Medicus | Bioethics
Journal Article
12/2017, Advances in Experimental Medicine and Biology, ISBN 9783319671420, Volume 1031
Book Chapter
Annals of internal medicine, ISSN 0003-4819, 2019, Volume 170, Issue 5, pp. 332 - 334
Medicine, General & Internal | Life Sciences & Biomedicine | General & Internal Medicine | Science & Technology | Biomedical Research - organization & administration | Computer Security - standards | European Union | Humans | Information Dissemination - methods | EU directives | Data collection | Scientific method | Regulation | Data integrity | Index Medicus | Abridged Index Medicus
Journal Article
Nature genetics, ISSN 1061-4036, 10/2019, Volume 51, Issue 10, pp. 1459 - 1474
Life Sciences & Biomedicine | Genetics & Heredity | Science & Technology | Liver - pathology | Hepatocyte Nuclear Factor 1-alpha - genetics | Kidney - pathology | Humans | Genetic Loci | Cardiovascular Diseases - genetics | Kidney - metabolism | Gout - epidemiology | Cardiovascular Diseases - blood | Cardiovascular Diseases - epidemiology | Uric Acid - blood | Gout - blood | Neoplasm Proteins - genetics | Genetic Predisposition to Disease | Genome-Wide Association Study | Signal Transduction | Liver - metabolism | ATP Binding Cassette Transporter, Subfamily G, Member 2 - genetics | Metabolic Diseases - epidemiology | Metabolic Diseases - blood | Hepatocyte Nuclear Factor 4 - genetics | Genetic Markers | Organ Specificity | Metabolic Diseases - genetics | Gout - genetics | Polymorphism, Single Nucleotide | Cohort Studies | Medical colleges | Analysis | Liver | Genomics | Genes | Genetic research | Genetic aspects | Genomes | Genetic transcription | Regulators | Transcription factors | Transcription | Gout | African Americans | Mapping | Databases | Genetic analysis | Population | Rheumatism | Hepatocyte nuclear factor 4 | Bioinformatics | Kidneys | Organs | Uric acid | Metabolism | Gene expression | Loci | Meta-analysis | Studies | Pleiotropy | Gene loci | Gene mapping | Transporter | Binding sites | Open access | Index Medicus | Medicin och hälsovetenskap
Journal Article
International journal of environmental research and public health, ISSN 1661-7827, 10/2018, Volume 15, Issue 10, p. 2072
Deep phenotyping | Genomic matchmaking | Undiagnosed rare diseases | Secondary findings | Diagnostic odyssey | Patient involvement | Next generation sequencing | Public, Environmental & Occupational Health | Environmental Sciences & Ecology | Life Sciences & Biomedicine | Science & Technology | Environmental Sciences | Rare Diseases - genetics | Social Justice | Global Health | Humans | Rare Diseases - diagnosis | Genotype | International Cooperation | Patient Preference | Patient Rights - ethics | Delayed Diagnosis - ethics | Phenotype | Patient Participation - methods | Delayed Diagnosis - prevention & control | Databases, Factual | Index Medicus | genomic matchmaking | undiagnosed rare diseases | next generation sequencing | patient involvement | Review | secondary findings | diagnostic odyssey | deep phenotyping
Journal Article