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2010, 1st ed., ISBN 9780061628337, 341
"Misha Angrist, who has a PhD in genetics and an MFA, brings us the first, inside story of the Personal Genome Project, its larger-than-life research subjects,... 
Human genome | Personal Genome Project
Book
Nature Reviews Genetics, ISSN 1471-0056, 08/2015, Volume 16, Issue 8, pp. 435 - 436
Personalized and precision medicine initiatives explicitly call for researchers to treat research participants as partners. One way to realize that goal is by... 
ACCESS | GENETICS & HEREDITY | Motivation | Humans | Information Dissemination - methods | Genetic Privacy - standards | Informed Consent - standards | Research Subjects | Precision Medicine - methods | Index Medicus
Journal Article
PLoS ONE, ISSN 1932-6203, 03/2014, Volume 9, Issue 3, pp. e92060 - e92060
"One can't be of an enquiring and experimental nature, and still be very sensible." - Charles Fort [1] As the costs of personal genetic testing... 
MULTIDISCIPLINARY SCIENCES | Crowdsourcing | Polymorphism, Single Nucleotide | Software | Genomics | Humans | Genetic screening | Repositories | Public domain | Science education | Databases | Surveillance | Genomes | Housing | Data bases | Deoxyribonucleic acid--DNA | Index Medicus | Deoxyribonucleic acid | DNA
Journal Article
Nature, ISSN 0028-0836, 02/2013, Volume 494, Issue 7435, pp. 7 - 7
Because information about individuals' health can be used to discriminate against them, the privacy provisions of the US Health Insurance Portability and... 
MULTIDISCIPLINARY SCIENCES | Genetic Privacy - ethics | Informed Consent | Risk Assessment | Genetic Privacy - trends | Humans | Adolescent | Adult | Genetic Privacy - standards | Male | Patient Advocacy | Studies | Health Insurance Portability & Accountability Act 1996-US | Biomedical research | Confidentiality | Science | Sperm donations | Genomes | Index Medicus
Journal Article
Personalized Medicine, ISSN 1741-0541, 11/2011, Volume 8, Issue 6, pp. 651 - 657
The rapid emergence of whole-genome and whole-exome sequencing of research participants has helped to revive the debate about whether genetic and other 'omic'... 
return of results | biobanking | genomic data | research ethics | INFORMATION | RISK | DISCOVERY | HEALTH-INSURANCE | GENOMICS | DISCLOSURE | GENETIC DISCRIMINATION | PROTECTIONS | PHARMACOLOGY & PHARMACY | PSYCHOLOGICAL IMPACT | PERCEPTIONS
Journal Article
Personalized Medicine, ISSN 1741-0541, 2009, Volume 6, Issue 6, pp. 691 - 699
I am a close observer of the Personal Genome Project (PGP) and one of the original ten participants. The PGP was originally conceived as a way to test novel... 
Informed consent | Open consent | Citizen science | Genetic privacy | Personal genome project | DNA sequencing | ANONYMITY | PARTICIPATORY RESEARCH | INFORMATION | genetic privacy | citizen science | RESEARCHERS | Personal Genome Project | informed consent | open consent | PHARMACOLOGY & PHARMACY | HEALTH | CONFIDENTIALITY | IDENTIFIABILITY | Human subjects | Privacy | Biomedical research | Genomics
Journal Article
Nature, ISSN 0028-0836, 05/2010, Volume 465, Issue 7297, pp. 518 - 518
Caffeine trafficking returned; gangs of kids were spotted with calculators, blinding yellow highlighters and dog-eared physics textbooks. [...] I said, "we... 
MULTIDISCIPLINARY SCIENCES | Engineers
Journal Article
Applied & Translational Genomics, ISSN 2212-0661, 09/2014, Volume 3, Issue 3, pp. 68 - 69
Journal Article
Nature, ISSN 0028-0836, 05/2010, Volume 465, Issue 7297, p. 518
Journal Article
Proceedings of the National Academy of Sciences of the United States of America, ISSN 0027-8424, 07/2012, Volume 109, Issue 30, pp. 11920 - 11927
Journal Article
PLoS ONE, 03/2014, Volume 9, Issue 3
"One can't be of an enquiring and experimental nature, and still be very sensible." - Charles Fort [1] As the costs of personal genetic testing... 
Journal Article
Molecular Diagnosis & Therapy, ISSN 1177-1062, 04/2010, Volume 14, Issue 2, pp. 67 - 72
Journal Article
Personalized Medicine, ISSN 1741-0541, 11/2011, Volume 8, Issue 6, p. 651
  The rapid emergence of whole-genome and whole-exome sequencing of research participants has helped to revive the debate about whether genetic and other... 
Journal Article
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