X
Search Filters
Format Format
Subjects Subjects
Subjects Subjects
X
Sort by Item Count (A-Z)
Filter by Count
humans (88) 88
index medicus (73) 73
child (70) 70
hematology (67) 67
adolescent (62) 62
male (60) 60
children (59) 59
female (56) 56
sickle cell disease (56) 56
pediatrics (54) 54
child, preschool (50) 50
sickle cell anemia (39) 39
oncology (36) 36
article (33) 33
quality of life (31) 31
anemia, sickle cell - complications (30) 30
pain (26) 26
anemia, sickle cell - therapy (23) 23
adult (22) 22
adolescents (21) 21
hydroxyurea (20) 20
anemia (19) 19
anemia, sickle cell - psychology (19) 19
quality-of-life (19) 19
surveys and questionnaires (19) 19
cross-sectional studies (18) 18
health-related quality of life (18) 18
infant (16) 16
young adult (16) 16
analysis (15) 15
reliability (15) 15
retrospective studies (15) 15
disease (14) 14
health aspects (14) 14
pain - etiology (14) 14
risk-factors (14) 14
validity (14) 14
anemia, sickle cell - physiopathology (13) 13
care and treatment (13) 13
health status (13) 13
anemia, sickle cell - drug therapy (12) 12
feasibility (11) 11
generic core scales (11) 11
management (11) 11
parents (11) 11
pedsql (10) 10
united states (10) 10
adults (9) 9
cohort studies (9) 9
neuropathic pain (9) 9
patient-reported outcomes (9) 9
acute chest syndrome (8) 8
length of stay (8) 8
mortality (8) 8
silent cerebral infarcts (8) 8
vasoocclusive crises (8) 8
abridged index medicus (7) 7
asthma (7) 7
diseases (7) 7
health‐related quality of life (7) 7
hydroxyurea - therapeutic use (7) 7
infant, newborn (7) 7
prognosis (7) 7
risk (7) 7
stroke (7) 7
therapy (7) 7
treatment outcome (7) 7
age factors (6) 6
anemia, sickle cell - blood (6) 6
cancer (6) 6
family (6) 6
follow-up studies (6) 6
hospitalization (6) 6
module (6) 6
pain measurement (6) 6
patients (6) 6
risk factors (6) 6
wisconsin (6) 6
acute disease (5) 5
anemia, sickle cell - diagnosis (5) 5
antisickling agents - therapeutic use (5) 5
blood transfusion (5) 5
diagnosis (5) 5
health care sciences & services (5) 5
humanities (5) 5
hydroxyurea - adverse effects (5) 5
impact (5) 5
pain management (5) 5
pedsql-4.0 (5) 5
prospective studies (5) 5
pulmonary-hypertension (5) 5
randomized controlled-trial (5) 5
research (5) 5
responsiveness (5) 5
self report (5) 5
severity of illness index (5) 5
analgesics (4) 4
blood (4) 4
care (4) 4
care utilization (4) 4
more...
Language Language
Publication Date Publication Date
Click on a bar to filter by decade
Slide to change publication date range


Pediatric Blood and Cancer, ISSN 1545-5009, 08/2012, Volume 59, Issue 2, pp. 377 - 385
Journal Article
Hematology, ISSN 1520-4391, 2012, Volume 2012, Issue 1, pp. 284 - 289
The use of patient-reported outcomes to measure the health and well-being of patients from their perspective has become an acceptable method to determine the... 
Sickness Impact Profile | Humans | Child, Preschool | Infant | Treatment Outcome | Hemoglobinopathies - therapy | Anemia, Sickle Cell - therapy | Adolescent | Psychometrics - methods | Quality of Life | Adult | Hemoglobinopathies - psychology | Surveys and Questionnaires | Health Status | Child | Chronic Disease | Anemia, Sickle Cell - psychology
Journal Article
Blood, ISSN 0006-4971, 11/2018, Volume 132, Issue Supplement 1, pp. 161 - 161
Abstract Introduction: The Patient Reported Outcomes Measurement Information System (PROMIS) includes tools to assess pain interference and pain behavior for... 
Journal Article
Blood, ISSN 0006-4971, 11/2019, Volume 134, Issue Supplement_1, pp. 4673 - 4673
Objective: Published literature shows low and variable compliance with the recommended guidelines for care of children with sickle cell disease (SCD). Our... 
Journal Article
Journal of Pediatric Hematology/Oncology, ISSN 1077-4114, 2016, Volume 38, Issue 4, pp. 288 - 293
Patients with sickle cell disease (SCD) display significantly lower mean/median thermal and mechanical pain thresholds compared with controls. This suggests... 
Pain sensitivity | Sickle cell disease | Neuropathic pain | Cold Temperature | Anemia, Sickle Cell - physiopathology | Cross-Sectional Studies | Sensory Thresholds | Humans | Male | Hot Temperature | Case-Control Studies | Young Adult | Adolescent | Female | Pain Threshold | Mechanical Phenomena | Pain Measurement | Child | pain sensitivity | neuropathic pain | sickle cell disease
Journal Article
Blood, ISSN 0006-4971, 12/2015, Volume 126, Issue 23, pp. 3291 - 3291
Introduction: Children receiving treatment for cancer commonly experience symptoms during their course that impact patient function. Understanding limitations... 
Journal Article
Pediatric Blood & Cancer, ISSN 1545-5009, 10/2017, Volume 64, Issue 10, p. e26499
Journal Article
Blood, ISSN 0006-4971, 11/2019, Volume 134, Issue Supplement_1, pp. 4743 - 4743
BACKGROUND Overall survival for adolescent and young adult (AYA) cancer population, ages 15 to 39 years, demonstrated minimal improvement during the last... 
Journal Article
The Journal of Pediatrics, ISSN 0022-3476, 10/2019, Volume 213, pp. 30 - 37.e3
To determine parent preferences for discharge with home oxygen in infants with bronchopulmonary dysplasia. This was a prospective study of parents of infants... 
premature infants | parent preferences | bronchopulmonary dysplasia | neonatal intensive care | home oxygen | READMISSION | DEFINITION | DISCHARGE | PREDICTORS | REHOSPITALIZATION | PEDIATRICS | PRETERM INFANTS | HEALTH-CARE | BIRTH | INTENSIVE-CARE | CHRONIC LUNG-DISEASE | Infants (Newborn) | Bronchopulmonary dysplasia | Neonatal intensive care | Usage | Analysis
Journal Article
American Journal of Hematology, ISSN 0361-8609, 01/2010, Volume 85, Issue 1, pp. 77 - 78
Sickle-cell disease is not a reportable condition, making it difficult to ascertain the number of affected individuals. We estimated the number of people with... 
MORTALITY | HEMATOLOGY | CHILDREN | United States - epidemiology | Prevalence | Humans | Middle Aged | Hispanic Americans | African Americans | Anemia, Sickle Cell - ethnology | Child, Preschool | Male | Young Adult | Life Expectancy | Adolescent | Adult | Female | Aged | Child
Journal Article
Blood, ISSN 0006-4971, 12/2016, Volume 128, Issue 22, pp. 687 - 687
Abstract Introduction: Family relationships are the subjective experience of feeling involved, important and accepted in one's family. A new patient-reported... 
Journal Article
Quality of Life Research, ISSN 0962-9343, 03/2012, Volume 21, Issue 2, pp. 341 - 357
Journal Article
Blood, ISSN 0006-4971, 12/2015, Volume 126, Issue 23, pp. 526 - 526
Abstract Patients with sickle cell disease (SCD) display hypersensitivity to thermal and/or mechanical stimuli compared to healthy controls when assessed with... 
Journal Article
Pediatric Blood & Cancer, ISSN 1545-5009, 08/2012, Volume 59, Issue 2, pp. 377 - 385
Health‐related quality of life (HRQL) is defined as the patient's appraisal of how his/her well being and level of functioning, compared to the perceived... 
health‐related quality of life | sickle cell disease | well being | HYDROXYUREA | ORGAN DAMAGE | ADULTS | health-related quality of life | PISCES PROJECT | CHILDREN | PAIN | ONCOLOGY | ADOLESCENTS | CLINICAL-TRIAL CONSORTIUM | PEDIATRICS | ANEMIA | HEMATOLOGY | CARE UTILIZATION | Quality of Life | Anemia, Sickle Cell - therapy | Adult | Health Status | Child | Humans
Journal Article
The Journal of Pediatrics, ISSN 0022-3476, 10/2019, Volume 213, pp. 38 - 45.e3
To determine how infant illness and parent demographics are associated with parent health-related quality of life (HRQL) during and 3 months after... 
Health related quality of life | premature infants | NICU | MOTHERS | LOW-BIRTH-WEIGHT | CHILDREN BORN | PSYCHOLOGICAL DISTRESS | PEDIATRICS | PRETERM INFANTS | RACIAL DISPARITIES | MENTAL-HEALTH | TERM | OUTCOMES | FAMILY | Home care | Neonatal intensive care | Children | Insurance industry | Infants (Premature) | Diseases
Journal Article
Pediatrics, ISSN 0031-4005, 02/2016, Volume 137, Issue Supplement 3, pp. 87 - 87A
Journal Article
The New England Journal of Medicine, ISSN 0028-4793, 08/2014, Volume 371, Issue 8, pp. 699 - 710
Journal Article
Pediatric Blood & Cancer, ISSN 1545-5009, 04/2017, Volume 64, Issue 4, p. e26295
Journal Article
No results were found for your search.

Cannot display more than 1000 results, please narrow the terms of your search.