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humans (19) 19
life sciences & biomedicine (19) 19
science & technology (19) 19
female (16) 16
male (16) 16
abridged index medicus (15) 15
cardiac & cardiovascular systems (14) 14
cardiovascular system & cardiology (14) 14
pediatrics (12) 12
quality of life (10) 10
child (9) 9
genetic disorders (9) 9
adolescent (8) 8
congenital heart disease (8) 8
follow-up studies (8) 8
respiratory system (8) 8
surgery (8) 8
infant, newborn (7) 7
retrospective studies (7) 7
analysis (6) 6
biological and medical sciences (6) 6
cardiology. vascular system (6) 6
heart (6) 6
heart defects, congenital - surgery (6) 6
heart diseases (6) 6
infant (6) 6
medical sciences (6) 6
risk factors (6) 6
cardiothoracic surgery (5) 5
cardiovascular (5) 5
children (5) 5
heart transplantation (5) 5
prognosis (5) 5
prospective studies (5) 5
treatment outcome (5) 5
anesthesia. intensive care medicine. transfusions. cell therapy and gene therapy (4) 4
children's hospitals (4) 4
cross-sectional studies (4) 4
health aspects (4) 4
heart defects, congenital - diagnosis (4) 4
heart defects, congenital - physiopathology (4) 4
heart ventricles - abnormalities (4) 4
infants (4) 4
medical colleges (4) 4
mortality (4) 4
transplantation (4) 4
young adult (4) 4
adult (3) 3
age (3) 3
cardiology (3) 3
cardiovascular disease (3) 3
child, preschool (3) 3
congenital diseases (3) 3
heart defects, congenital - mortality (3) 3
incidence (3) 3
internal medicine (3) 3
patients (3) 3
pneumology (3) 3
risk assessment (3) 3
studies (3) 3
surveys and questionnaires (3) 3
time factors (3) 3
united states - epidemiology (3) 3
adults (2) 2
anthropometry (2) 2
cardiac surgical procedures (2) 2
cardiology and cardiovascular medicine (2) 2
case-control studies (2) 2
child development - physiology (2) 2
congenital heart diseases. malformations of the aorta, pulmonary vessels and vena cava (2) 2
coronary heart disease (2) 2
diseases (2) 2
extracorporeal membrane oxygenation (2) 2
fontan procedure (2) 2
functional health status (2) 2
health status (2) 2
heart diseases - surgery (2) 2
hlhs (2) 2
hypoplastic left heart syndrome (2) 2
hypoplastic left heart syndrome - surgery (2) 2
medical care (2) 2
morphology (2) 2
motor skills - physiology (2) 2
norwood procedures (2) 2
norwood procedures - adverse effects (2) 2
parents - psychology (2) 2
patient outcomes (2) 2
pulmonary and respiratory medicine (2) 2
quality management (2) 2
regression analysis (2) 2
survival (2) 2
survivors (2) 2
united states (2) 2
ventricle (2) 2
waz (2) 2
weight gain (2) 2
abnormalities (1) 1
acquired heart disease (1) 1
activities of daily living (1) 1
adaptation, physiological - physiology (1) 1
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1. Full Text Health-Related Quality of Life Outcomes in Children and Adolescents with Congenital Heart Disease
by Mellion, Katelyn, MS and Uzark, Karen, PhD and Cassedy, Amy, PhD and Drotar, Dennis, PhD and Wernovsky, Gil, MD and Newburger, Jane W., MD, MPH and Mahony, Lynn, MD and Mussatto, Kathy, RN, PhD and Cohen, Mitchell, MD and Limbers, Christine, MS and Marino, Bradley S., MD, MPP, MSCE and Pediatric Cardiac Quality of Life Inventory Testing Study Consortium and Pediat Cardiac Quality Life Invent
The Journal of pediatrics, ISSN 0022-3476, 2014, Volume 164, Issue 4, pp. 781 - 788.e1
Pediatrics | Life Sciences & Biomedicine | Science & Technology | Heart Diseases - diagnosis | Cross-Sectional Studies | Humans | Adolescent | Quality of Life | Female | Heart Defects, Congenital - diagnosis | Male | Retrospective Studies | Heart Diseases - congenital | Child | Chronic Disease | Patient outcomes | Cardiac patients | Congenital heart disease | Children | Heart diseases | Health aspects | Diseases | Index Medicus | Abridged Index Medicus
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2. Full Text Challenges of Assessing Quality of Life in Congenital Heart Disease Globally
by Uzark, Karen
Journal of the American College of Cardiology, ISSN 0735-1097, 05/2016, Volume 67, Issue 19, pp. 2246 - 2248
global disease burden | pediatric cardiology | pediatric cardiology | Cardiac & Cardiovascular Systems | Life Sciences & Biomedicine | Cardiovascular System & Cardiology | Science & Technology | Studies | Heart | Congenital diseases | Mortality | Cardiovascular disease | Adults | Health care access | Quality assessment | Patients | Heart diseases | Coronary artery disease | Quality of life
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3. Full Text Longitudinal Outcomes of Patients With Single Ventricle After the Fontan Procedure
by Atz, Andrew M and Zak, Victor and Mahony, Lynn and Uzark, Karen and D’agincourt, Nicholas and Goldberg, David J and Williams, Richard V and Breitbart, Roger E and Colan, Steven D and Burns, Kristin M and Margossian, Renee and Henderson, Heather T and Korsin, Rosalind and Marino, Bradley S and Daniels, Kaitlyn and McCrindle, Brian W and Pediatric Heart Network Investigators and Pediat Heart Network Investigators
Journal of the American College of Cardiology, ISSN 0735-1097, 06/2017, Volume 69, Issue 22, pp. 2735 - 2744
functional health status | exercise | adult congenital heart disease | Fontan procedure | single ventricle | Cardiac & Cardiovascular Systems | Life Sciences & Biomedicine | Cardiovascular System & Cardiology | Science & Technology | United States - epidemiology | Echocardiography | Survival Rate - trends | Cross-Sectional Studies | Follow-Up Studies | Heart Defects, Congenital - surgery | Humans | Risk Factors | Male | Treatment Outcome | Fontan Procedure - methods | Forecasting | Heart Ventricles - diagnostic imaging | Young Adult | Heart Ventricles - abnormalities | Adolescent | Ontario - epidemiology | Quality of Life | Female | Heart Defects, Congenital - diagnosis | Heart Defects, Congenital - mortality | Retrospective Studies | Health Status | Child | Heart | Pediatrics | Physical training | Syngeneic grafts | Heart surgery | Cardiovascular disease | Transplantation | Risk factors | Clinical outcomes | Exercise | Allografts | Functional anatomy | Risk assessment | Xenografts | Heart diseases | Age | Brain natriuretic peptide | Oxygen | Congenital diseases | Health | Mortality | Heart transplantation | Test procedures | Time measurement | Regression analysis | Oxygen uptake | Risk analysis | Patients | Survival | Quality of life | Physical fitness | Morphology | Death | Ventricle
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4. Full Text Lower weight-for-age z score adversely affects hospital length of stay after the bidirectional Glenn procedure in 100 infants with a single ventricle
by Anderson, Jeffrey B., MD, MPH and Beekman, Robert H., MD and Border, William L., MBChB, MPH and Kalkwarf, Heidi J., PhD and Khoury, Philip R., MS and Uzark, Karen, PhD and Eghtesady, Pirooz, MD, PhD and Marino, Bradley S., MD, MPP, MSCE
The Journal of thoracic and cardiovascular surgery, ISSN 0022-5223, 2009, Volume 138, Issue 2, pp. 397 - 404.e1
Cardiothoracic Surgery | Cardiac & Cardiovascular Systems | Respiratory System | Life Sciences & Biomedicine | Cardiovascular System & Cardiology | Surgery | Science & Technology | Cardiology. Vascular system | Heart | Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy | Biological and medical sciences | Congenital heart diseases. Malformations of the aorta, pulmonary vessels and vena cava | Medical sciences | Pneumology | Length of Stay | Body Weight | Heart Defects, Congenital - surgery | Anthropometry | Humans | Infant | Male | Chest Tubes | Respiration, Artificial | Birth Weight | Heart Ventricles - abnormalities | Cardiovascular Surgical Procedures | Aorta - surgery | Female | Nutritional Status | Nutritional Support | Postoperative Complications | Congenital heart disease | Infants | Hospitals | Genetic disorders | Coronary heart disease | Index Medicus | Abridged Index Medicus
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5. Full Text Berlin Heart EXCOR Pediatric ventricular assist device Investigational Device Exemption study: Study design and rationale
by Almond, Christopher S., MD, MPH and Buchholz, Holger, MD and Massicotte, Patricia, MD, MSc and Ichord, Rebecca, MD and Rosenthal, David N., MD and Uzark, Karen, PhD and Jaquiss, Robert D.B., MD and Kroslowitz, Robert, CCP and Kepler, Mary Beth, MBA and Lobbestael, Aaron, PhD and Bellinger, David, PhD and Blume, Elizabeth D., MD and Fraser, Charles D., MD and Bartlett, Robert H., MD and Thiagarajan, Ravi, MD, MPH and Jenkins, Kathy, MD, MPH and Berlin Heart Study Investigators
The American heart journal, ISSN 0002-8703, 2011, Volume 162, Issue 3, pp. 425 - 435.e6
Cardiovascular | Cardiac & Cardiovascular Systems | Life Sciences & Biomedicine | Cardiovascular System & Cardiology | Science & Technology | Cardiology. Vascular system | Biological and medical sciences | Intensive care medicine | Medical sciences | Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy | Emergency and intensive cardiocirculatory care. Cardiogenic shock. Coronary intensive care | Single-Blind Method | Prospective Studies | Ventricular Function - physiology | Follow-Up Studies | Humans | Heart Failure - physiopathology | Child, Preschool | Heart Transplantation | Infant | Male | Treatment Outcome | Heart Failure - therapy | Extracorporeal Membrane Oxygenation | Adolescent | Recovery of Function - physiology | Female | Heart Failure - diagnosis | Preoperative Care - instrumentation | Child | Heart-Assist Devices | Infant, Newborn | Medical equipment | Physiological apparatus | Heart failure | Pediatrics | Stroke | Disease | Transplants & implants | Weaning | Cardiomyopathy | Mortality | FDA approval | Cardiopulmonary resuscitation--CPR | Studies | Respiratory distress syndrome | Human immunodeficiency virus--HIV | Drug therapy | Index Medicus | Abridged Index Medicus
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6. Full Text Variation in Feeding Practices following the Norwood Procedure
by Lambert, Linda M., MSN-FNP and Pike, Nancy A., PhD, CPNP-AC and Medoff-Cooper, Barbara, RN, PhD, FAAN and Zak, Victor, PhD and Pemberton, Victoria L., RN, MS and Young-Borkowski, Lisa, MSN, RN and Clabby, Martha L., MD and Nelson, Kathryn N., DNP, CPNP and Ohye, Richard G., MD and Trainor, Bethany, RN, BSN and Uzark, Karen, PhD, CPNP and Rudd, Nancy, CPNP-AC/PC and Bannister, Louise, RD and Korsin, Rosalind, RN, BSN and Cooper, David S., MD, MPH and Pizarro, Christian, MD and Zyblewski, Sinai C., MD and Bartle, Bronwyn H., MSN-CPNP and Williams, Richard V., MD and Pediatric Heart Network Investigators and Pediat Heart Network Investigators
The Journal of pediatrics, ISSN 0022-3476, 2014, Volume 164, Issue 2, pp. 237 - 242.e1
Pediatrics | Gastrostomy or gastrojejunostomy tube | WAZ | Weight-for-age z score | G-tube | Hypoplastic left heart syndrome | Nasojejunal or nasogastric tube | N-tube | Pediatric Heart Network Single Ventricle Reconstruction Trial | Principal investigator | HLHS | SVR | Life Sciences & Biomedicine | Science & Technology | Enteral Nutrition - methods | Follow-Up Studies | Humans | Hypoplastic Left Heart Syndrome - surgery | Male | Treatment Outcome | Norwood Procedures | Gastrostomy - methods | Length of Stay - trends | Female | Retrospective Studies | Patient Discharge - trends | Weight Gain | Infant, Newborn | Medical colleges | Children's hospitals | Genetic disorders | Index Medicus | Abridged Index Medicus | nutrition | growth | practice variation | hypoplastic left heart syndrome
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7. Full Text Assessment of Quality of Life in Young Patients with Single Ventricle after the Fontan Operation
by Uzark, Karen, PhD, CPNP and Zak, Victor, PhD and Shrader, Peter, MA and McCrindle, Brian W., MD, MPH and Radojewski, Elizabeth, RN and Varni, James W., PhD and Daniels, Kaitlyn, BSN, RN and Handisides, Jill, BSN and Hill, Kevin D., MD, MS and Lambert, Linda M., MSN, FNP and Margossian, Renee, MD and Pemberton, Victoria L., RNC, MS, CCRC and Lai, Wyman W., MD and Atz, Andrew M., MD and Pediatric Heart Network Investigators and Pediat Heart Network Investigators
The Journal of pediatrics, ISSN 0022-3476, 2015, Volume 170, pp. 166 - 172.e1
Pediatrics | Life Sciences & Biomedicine | Science & Technology | United States - epidemiology | Age Factors | Cross-Sectional Studies | Follow-Up Studies | Humans | Survivors | Fontan Procedure - psychology | Male | Young Adult | Adolescent | Quality of Life | Adult | Female | Surveys and Questionnaires | Health aspects | Analysis | Children | Index Medicus | Abridged Index Medicus | congenital heart disease | psychosocial | quality of life | PedsQL
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8. Full Text Quality of life in pediatric heart transplant recipients: A comparison with children with and without heart disease
by Uzark, Karen, PhD, CPNP and Griffin, Lisa, BSN, CCTC and Rodriguez, Rose, MSN and Zamberlan, Meg, MS, CPNP and Murphy, Paula, RN, MBA and Nasman, Colleen, BSN and Dupuis, Joanne, MSN and Rodgers, Sherrie, MSN and Limbers, Christine A., PhD and Varni, James W., PhD
The Journal of heart and lung transplantation, ISSN 1053-2498, 2012, Volume 31, Issue 6, pp. 571 - 578
Surgery | congenital heart disease | psychosocial impact | quality of life | children | transplant outcomes | pediatric heart transplant | Cardiac & Cardiovascular Systems | Life Sciences & Biomedicine | Cardiovascular System & Cardiology | Respiratory System | Transplantation | Science & Technology | Cardiology. Vascular system | Biological and medical sciences | Medical sciences | Surgery (general aspects). Transplantations, organ and tissue grafts. Graft diseases | Surgery of the heart | Severity of Illness Index | Follow-Up Studies | Outcome Assessment (Health Care) | Humans | Psychology | Risk Factors | Self Report | Male | Case-Control Studies | Cardiac Surgical Procedures | Heart Diseases - psychology | Heart Transplantation - psychology | Parents - psychology | Transplantation - psychology | Adolescent | Female | Proxy - psychology | Quality of Life - psychology | Child | Heart Diseases - surgery | Heart | Pediatrics | Genetic disorders | Analysis | Organ transplant recipients | Transplantation of organs, tissues, etc | Congenital heart disease | Children | Cardiovascular diseases | Heart diseases | Diseases | Index Medicus
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9. Full Text Predictors of Poor Weight Gain in Infants with a Single Ventricle
by Anderson, Jeffrey B., MD, MPH and Beekman, Robert H., MD and Eghtesady, Pirooz, MD, PhD and Kalkwarf, Heidi J., PhD and Uzark, Karen, PhD and Kehl, Jack E., BS and Marino, Bradley S., MD, MPP, MSCE
The Journal of pediatrics, ISSN 0022-3476, 2010, Volume 157, Issue 3, pp. 407 - 413.e1
Pediatrics | BTS | CDC | Hypoplastic left heart syndrome | BDG | FTT | Weight-for-age z-score | Necrotizing enterocolitis | Congenital heart disease | Bidirectional Glenn | SGA | NEC | PVR | HLHS | CCHMC | WAZ | Failure to thrive | Centers for Disease Control and Prevention | Cincinnati Children's Hospital Medical Center | Nasogastric | Small for gestational age | Pulmonary vascular resistance | Blalock-Taussig shunt | CHD | Life Sciences & Biomedicine | Science & Technology | Cardiology. Vascular system | Heart | Biological and medical sciences | General aspects | Congenital heart diseases. Malformations of the aorta, pulmonary vessels and vena cava | Medical sciences | Heart Ventricles - abnormalities | Prognosis | Humans | Female | Infant | Male | Heart Defects, Congenital - physiopathology | Retrospective Studies | Weight Gain | Infants (Newborn) | Genetic disorders | Coronary heart disease | Personal video recorders | Index Medicus | Abridged Index Medicus
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10. Full Text Infant Motor Skills After a Cardiac Operation: The Need for Developmental Monitoring and Care
by Uzark, Karen, PhD, CPNP and Smith, Cynthia, BSN and Donohue, Janet, MPH and Yu, Sunkyung, MS and Romano, Jennifer C., MD, MS
The Annals of thoracic surgery, ISSN 0003-4975, 2017, Volume 104, Issue 2, pp. 681 - 686
Surgery | Cardiothoracic Surgery | Cardiac & Cardiovascular Systems | Respiratory System | Life Sciences & Biomedicine | Cardiovascular System & Cardiology | Science & Technology | Prognosis | Heart Defects, Congenital - surgery | Humans | Infant | Male | Incidence | Cardiac Surgical Procedures | Time Factors | Female | Child Development - physiology | Infant, Newborn | Motor Skills Disorders - etiology | Developmental Disabilities - physiopathology | Reproducibility of Results | Motor Skills - physiology | Developmental Disabilities - etiology | Postoperative Period | Motor Skills Disorders - epidemiology | Disease Progression | Developmental Disabilities - epidemiology | Neuropsychological Tests | Monitoring, Physiologic - methods | Heart Defects, Congenital - physiopathology | Motor Skills Disorders - physiopathology | Michigan - epidemiology | Index Medicus | Abridged Index Medicus
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