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Journal of Autism and Developmental Disorders, ISSN 0162-3257, 4/2017, Volume 47, Issue 4, pp. 1102 - 1112
Rett syndrome (RTT) requires total caregiver attention and leads to potential difficulties throughout life. The Caregiver Burden Inventory, designed for... 
MECP2 | Pediatrics | Child and School Psychology | Neurosciences | Public Health | Factor analysis | Psychology | Rett syndrome | Caregiver Inventory | BEHAVIOR PROBLEMS | PSYCHOLOGY, DEVELOPMENTAL | AGING PARENTS | AUTISM SPECTRUM DISORDER | DEVELOPMENTAL-DISABILITIES | FAMILY CAREGIVERS | MENTAL-HEALTH | CHILDREN | DOWN-SYNDROME | SOCIAL SUPPORT | QUALITY-OF-LIFE | Caregivers | Neurological Impairments | Developmental Disabilities | Factor Analysis | Test Reliability | Caregiver Attitudes | Test Validity | Genetic Disorders | Fatigue (Biology) | Measures (Individuals) | Predictor Variables | Work Environment | Statistical Analysis | Reproducibility of Results | Follow-Up Studies | Caregivers - psychology | Humans | Middle Aged | Rett Syndrome - psychology | Male | Emotions | Adult | Female | Surveys and Questionnaires - standards | Adaptation, Psychological | Rett Syndrome - therapy | Psychological aspects | Outcome and process assessment (Health Care) | Care and treatment | Analysis | Caretaker syndrome | Cerebral palsy | Epilepsy | Assessment | Families & family life | Burden | Carers | Scoliosis | Alzheimer's disease | Neurodegenerative diseases | Exploratory factor analysis | Down syndrome | Coefficient alpha | Stress | Quality of life | Children & youth | Autism | Government agencies | Gerontology | Mutation | Reliability | Developmental disabilities | Dementia | factor analysis
Journal Article
Journal Article
Journal Article
Journal Article
European Child & Adolescent Psychiatry, ISSN 1018-8827, 4/2019, Volume 28, Issue 4, pp. 505 - 520
Little longitudinal research has examined parental well-being in those with a child with specific genetic developmental disorder although the associated severe... 
Genetic disorder | Intellectual disability | Medicine & Public Health | Parental well-being | Child and Adolescent Psychiatry | Rett syndrome | Longitudinal study | SF-12 | Psychiatry | MOTHERS | SLEEP | PSYCHIATRY | PSYCHOLOGY, DEVELOPMENTAL | PHENOTYPE | DEVELOPMENTAL-DISABILITIES | MENTAL-HEALTH | CHILDREN | EXPERIENCES | FAMILIES | ADOLESCENTS | PEDIATRICS | OF-HOME PLACEMENT | Severity of Illness Index | Rett Syndrome - epidemiology | Mental Health - trends | Caregivers - psychology | Humans | Middle Aged | Rett Syndrome - psychology | Child, Preschool | Sleep Wake Disorders - therapy | Male | Sleep Wake Disorders - psychology | Australia - epidemiology | Caregivers - trends | Health Surveys - methods | Parents - psychology | Sleep Wake Disorders - epidemiology | Adolescent | Adult | Female | Surveys and Questionnaires | Child | Longitudinal Studies | Rett Syndrome - therapy | Psychological aspects | Parenting | Sleep disorders | Home care | Medical research | Nervous system diseases | Sleep | Gene mutations | Analysis | Medicine, Experimental | Caregivers | Caretaker syndrome | Adolescence | Intellectual disabilities | Sleep problems | Disabled children | Burden | Parents & parenting | Databases | Methyl-CpG binding protein | Children | Adolescents | Neurological disorders | Emotional-Behavioural problems | Emotionally disturbed children | Behaviour disordered children | Emotions | Feeding | Enteral feeding | Emotional well being | Emotional disturbance | MeCP2 protein | Point mutation | Adults | Caregiving | Behavioural problems
Journal Article
Value in Health : The Journal of the International Society for Pharmacoeconomics and Outcomes Research, ISSN 1098-3015, 05/2017, Volume 20, Issue 5, p. A226
OBJECTIVES: Rett syndrome is a rare neurological disorder, requiring lifelong 24-hour care. Beyond its clinical symptoms, it poses a significant physical,... 
Caregivers | Qualitative research | Health care | Medical personnel | Caretaker syndrome | Burden | Conceptual development | Conceptual models | Quality of life | Literature reviews | Health care expenditures | Rett syndrome | Questionnaires | Neurological disorders | Symptoms | Hand movements
Journal Article
Journal Article
Journal of the American Academy of Child & Adolescent Psychiatry, ISSN 0890-8567, 2016, Volume 55, Issue 10, pp. S188 - S188
Journal Article
Age and Ageing, ISSN 0002-0729, 09/2018, Volume 47, pp. v13 - v60
Journal Article
Journal of Autism and Developmental Disorders, ISSN 0162-3257, 9/2016, Volume 46, Issue 9, pp. 2979 - 2991
There has been limited study of the relationship between child attachment and caregiver wellbeing amongst children with autism spectrum disorder (ASD). This... 
Pediatrics | Child and School Psychology | Neurosciences | Public Health | Psychology | Attachment | Middle childhood | Parenting stress | Autism spectrum disorder | MATERNAL SENSITIVITY | PSYCHOLOGY, DEVELOPMENTAL | MOTHER ATTACHMENT | AUTISM SPECTRUM DISORDERS | CLOSE RELATIONSHIPS | INDEX-SHORT FORM | DOWN-SYNDROME | PSYCHIATRIC-DISORDERS | YOUNG-CHILDREN | DEVELOPMENTAL DISORDERS | Autism | Caregiver Child Relationship | Pervasive Developmental Disorders | Parents | Anxiety | Psychological Characteristics | Child Caregivers | Self Disclosure (Individuals) | Children | Asperger Syndrome | Attachment Behavior | Child Rearing | Object Attachment | Caregivers - psychology | Humans | Anxiety - psychology | Autism Spectrum Disorder | Male | Stress, Psychological - psychology | Case-Control Studies | Emotions | Parenting - psychology | Parents - psychology | Adolescent | Adult | Female | Parent-Child Relations | Child | Care and treatment | Pervasive developmental disorders | Research | Caretaker syndrome | Caregivers | High functioning | Mental health | Wellbeing | Child psychology | Parental attachment | Carers | Parents & parenting | Quality | Parenting style | Parental stress | Attachment style | Autistic spectrum disorders | Autistic children | Stress | Children & youth | Asperger's syndrome | Psychological distress | Anxieties | Social interaction | Psychiatry
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Journal Article
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