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1. Genomics and environmental regulation
: science, ethics, and law
by Sharp, Richard R. (Richard Roy) and Marchant, Gary Elvin, 1958 and Grodsky, Jamie A
2008, ISBN 9780801890222, xxiv, 364
Public Policy | Law and legislation | Genomics | Environmental health | Genetic toxicology | Government Regulation | Moral and ethical aspects | legislation & jurisprudence | ethics
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2. Full Text Certain new plant breeding techniques and their marketability in the context of EU GMO legislation – recent developments
by Zimny, Tomasz and Sowa, Sławomir and Tyczewska, Agata and Twardowski, Tomasz
New BIOTECHNOLOGY, ISSN 1871-6784, 07/2019, Volume 51, pp. 49 - 56
The comparatively low adoption rate of GMO products in the European Union (EU) market seems to be connected with the strictness of authorization regulations... 
New breeding techniques | Targeted mutagenesis | CRISPR | Marketability | Law | GMO | Genome editing | SAFETY | BIOTECHNOLOGY & APPLIED MICROBIOLOGY | BIOCHEMICAL RESEARCH METHODS | OPPORTUNITIES | GENOME | Genomics | Analysis | Methods | Regulations | Plant breeding | Mutagenesis | Legislation | Genetically modified organisms | Socio-economic aspects | Social factors | Jurisprudence
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3. Intellectual property and emerging technologies
: the new biology
by Rimmer, Matthew and McLennan, Alison
2012, Queen Mary studies in intellectual property, ISBN 1849802467, xv, 482
Biotechnology | Law and legislation | Intellectual property
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4. Full Text Legislation governing genetically modified and genome‐edited crops in Europe: the need for change
by Halford, Nigel G
Journal of the Science of Food and Agriculture, ISSN 0022-5142, 01/2019, Volume 99, Issue 1, pp. 8 - 12
The European Commission's assessment and approval process for genetically modified (GM) crops has resulted in only two GM crop varieties being licensed for... 
genome editing | plant biotechnology | genetic modification | regulation | crop composition | POTATO | FOOD SCIENCE & TECHNOLOGY | AGRICULTURE, MULTIDISCIPLINARY | PLANTS | CHEMISTRY, APPLIED | Crop Production - legislation & jurisprudence | Plants, Genetically Modified - genetics | European Union | Europe | Humans | Plants, Genetically Modified - chemistry | Food Safety | Crops, Agricultural - chemistry | Crops, Agricultural - genetics | Food, Genetically Modified | Genome, Plant | Crop Production - organization & administration | Agricultural industry | Agricultural biotechnology | Genomics | Plant genetics | Genetically modified organisms | Organic chemistry | Biotechnology | Genetically altered foods | Cultivation | Crops | Legislation | Genomes | Agriculture | New technology | Genetic modification
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5. Full Text Regulation: The FDA is overcautious on consumer genomics
by Green, Robert C and Farahany, Nita A
Nature, ISSN 0028-0836, 01/2014, Volume 505, Issue 7483, pp. 286 - 287
Hereditary Breast and Ovarian Cancer Syndrome - genetics | Genetic Counseling - psychology | Genetics, Medical - ethics | Genetic Counseling - legislation & jurisprudence | Genetic Testing - standards | Genetic Testing - statistics & numerical data | Genetics, Medical - standards | United States | Genetic Testing - legislation & jurisprudence | Humans | Genomics - standards | Genetic Testing - ethics | Genetics, Medical - legislation & jurisprudence | Genetic Counseling - ethics | United States Food and Drug Administration - legislation & jurisprudence | Genomics - ethics | Consumer Advocacy - legislation & jurisprudence | Genetic Counseling - standards | Female | Genes, BRCA1 | Stress, Psychological - etiology | Genomics - legislation & jurisprudence
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6. Full Text A Welcome Proposal to Amend the GMO Legislation of the EU
by Eriksson, Dennis and Harwood, Wendy and Hofvander, Per and Jones, Huw and Rogowsky, Peter and Stöger, Eva and Visser, Richard G.F
Trends in Biotechnology, ISSN 0167-7799, 2018, Volume 36, Issue 11, pp. 1100 - 1103
Is the European Union (EU) regulatory framework for genetically modified organisms (GMOs) adequate for emerging techniques, such as genome editing? This has... 
GMO | new plant breeding techniques | gene editing | EU Directive | CISGENESIS | POTATO | BIOTECHNOLOGY & APPLIED MICROBIOLOGY | BARLEY | Genomics | Cells | Genetically modified organisms | CRISPR | Barley | Seeds | Legislation | Crops | Genes | Genomes | Research | Climate change | Acids | Mutagenesis | Regulation | Genetic engineering | Crop diseases | Mutation | Genetic modification | Genetically engineered organisms
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7. Full Text Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape
by Kalokairinou, L and Kalokairinou, L and Howard, H C and Howard, H C and Slokenberga, S and Slokenberga, S and Fisher, E and Fisher, E and Flatscher-Thöni, M and Flatscher-Thöni, M and Hartlev, M and Hartlev, M and van Hellemondt, R and van Hellemondt, R and Juškevičius, J and Juškevičius, J and Kapelenska-Pregowska, J and Kapelenska-Pregowska, J and Kováč, P and Kováč, P and Lovrečić, L and Lovrečić, L and Nys, H and Nys, H and de Paor, A and de Paor, A and Phillips, A and Phillips, A and Prudil, L and Prudil, L and Rial-Sebbag, E and Rial-Sebbag, E and Romeo Casabona, C M and Romeo Casabona, C M and Sándor, J and Sándor, J and Schuster, A and Schuster, A and Soini, S and Soini, S and Søvig, K H and Søvig, K H and Stoffel, D and Stoffel, D and Titma, T and Titma, T and Trokanas, T and Trokanas, T and Borry, P and Borry, P and Medicinska fakulteten and Medicinska och farmaceutiska vetenskapsområdet and Humanistisk-samhällsvetenskapliga vetenskapsområdet and Centrum för forsknings- och bioetik and Juridiska fakulteten and Uppsala universitet and Institutionen för folkhälso- och vårdvetenskap and Juridiska institutionen
Journal of Community Genetics, ISSN 1868-310X, 4/2018, Volume 9, Issue 2, pp. 117 - 132
Despite the increasing availability of direct-to-consumer (DTC) genetic testing, it is currently unclear how such services are regulated in Europe, due to the... 
Human Genetics | Gene Function | Public Health | Biomedicine | Direct-to-consumer genetic tests | In vitro diagnostic medical devices | Gene Therapy | Informed consent | Regulation | Medical supervision | Epidemiology | Genetic counselling | Laws, regulations and rules | Analysis | Genetic screening | Original | Medicinsk rätt | Medical and Health Sciences | Medicin och hälsovetenskap | Medicinsk etik | Hälsovetenskaper | Medical Ethics | Medical Law | Health Sciences
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8. Full Text Conclusion: harmonisation in genomic and health data sharing for research: an impossible dream?
by Townend, David
Human Genetics, ISSN 0340-6717, 8/2018, Volume 137, Issue 8, pp. 657 - 664
There are clear benefits from genomics and health data sharing in research and in therapy for individuals across societies. At the same time, citizens have... 
Human Genetics | Gene Function | Molecular Medicine | Biomedicine | Metabolic Diseases | PRIVACY | GENETICS & HEREDITY | Computer Security - ethics | Artificial Intelligence - ethics | Artificial Intelligence - standards | Humans | Bioethics | Computer Security - legislation & jurisprudence | Computer Security - standards | Information Dissemination - legislation & jurisprudence | Genetic Privacy - ethics | Genetic Privacy - standards | Genetic Privacy - legislation & jurisprudence | Genetic Research - ethics | Genetic Research - legislation & jurisprudence | Artificial Intelligence - legislation & jurisprudence | Genetic research | Human rights | Data security | Laws, regulations and rules | Genomics | Research | Artificial intelligence | Information sharing | Legislation | Review
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9. Full Text Ethical and legal implications of whole genome and whole exome sequencing in African populations
by Wright, Galen E. B and Koornhof, Pieter G. J and Adeyemo, Adebowale A and Tiffin, Nicki
BMC Medical Ethics, ISSN 1472-6939, 2013, Volume 14, Issue 1, pp. 21 - 21
Background: Rapid advances in high throughput genomic technologies and next generation sequencing are making medical genomic research more readily accessible... 
and societal issues | legal | Whole genome and whole exome sequencing | Ethical | Next generation sequencing | African populations | SOCIAL SCIENCES, BIOMEDICAL | SUSCEPTIBILITY | Ethical, legal, and societal issues | MEDICAL ETHICS | MEDICINE | INCIDENTAL FINDINGS | RESEARCH PARTICIPANTS | RETURN | INFORMED-CONSENT | DISEASE | COMMUNITY ENGAGEMENT | HEALTH | GENETIC RESEARCH | ETHICS | Computer Security - ethics | United States | Humans | Computer Security - legislation & jurisprudence | Informed Consent - ethics | Educational Status | Vulnerable Populations | Genetic Privacy - ethics | National Institutes of Health (U.S.) | Research Personnel - ethics | Community-Based Participatory Research - legislation & jurisprudence | Genetic Privacy - legislation & jurisprudence | Genetic Research - ethics | Retrospective Studies | African Continental Ancestry Group - genetics | Genomics - legislation & jurisprudence | Information Dissemination - ethics | Informed Consent - legislation & jurisprudence | Africa | Incidental Findings | Sequence Analysis, DNA - ethics | United Kingdom | Information Dissemination - legislation & jurisprudence | Genome, Human - genetics | Research Subjects - legislation & jurisprudence | Genomics - ethics | Research Support as Topic | Confidentiality - ethics | Exome - genetics | Genetic Research - legislation & jurisprudence | Community-Based Participatory Research - ethics | Confidentiality - legislation & jurisprudence | Human genome | Laws, regulations and rules | Genomics | Analysis | Nucleotide sequencing | Ethical aspects | DNA sequencing | Medicine, Experimental | Medical research
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10. Full Text Going, going, gone: evidence for loss of an endemic species pair of threespine sticklebacks (Gasterosteus aculeatus) with implications for protection under species-at-risk legislation
by Taylor, Eric B and Taylor, Eric B and Piercey, Rebecca S and Piercey, Rebecca S
Conservation Genetics, ISSN 1566-0621, 4/2018, Volume 19, Issue 2, pp. 297 - 308
Genomic extinction occurs when the unique combination of genetic traits that characterize distinct phenotypes are eliminated by introgressive hybridization... 
Species-at-Risk Act | Microsatellites | Plant Genetics and Genomics | Species pairs | Ecology | Genomic extinction | Biodiversity | Life Sciences | Threespine sticklebacks | Morphology | Conservation Biology/Ecology | Evolutionary Biology | Animal Genetics and Genomics | ENOS LAKE | TROPHIC MORPHOLOGY | FRESH-WATER | SYMPATRIC STICKLEBACKS | EVOLUTION | BRITISH-COLUMBIA | 3-SPINED STICKLEBACKS | SPECIATION | GENETICS & HEREDITY | ECOLOGY | GENETIC-EVIDENCE | BIODIVERSITY CONSERVATION | Zoology | Wildlife conservation | Endemic species | Reproductive isolation | Endangered species | Legislation | Biological evolution | Species extinction | Population number | Hybridization | Clustering | Population genetics | Genetic analysis | Lakes | Fish | Deoxyribonucleic acid--DNA
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11. Full Text Ethical, Legal, and Counseling Challenges Surrounding the Return of Genetic Results in Oncology
by Martijn P. Lolkema and Christa G. Gadellaa-van Hooijdonk and Annelien L. Bredenoord and Peter Kapitein and Nancy Roach and Edwin Cuppen and Nine V. Knoers and Emile E. Voest
Journal of Clinical Oncology, ISSN 0732-183X, 05/2013, Volume 31, Issue 15, pp. 1842 - 1848
In the last decade, an overwhelming number of genetic aberrations have been discovered and linked to the development of treatment for cancer. With the rapid... 
CELL LUNG-CANCER | BREAST-CANCER | INCIDENTAL FINDINGS | DECEASED PARTICIPANTS RELATIVES | QUALIFIED DISCLOSURE POLICY | ONCOLOGY | GENOMIC PRIVACY | INFORMATION | STATEMENT UPDATE | AMERICAN-SOCIETY | BRCA2 MUTATION | Medical Oncology - methods | Genetic Predisposition to Disease - genetics | Genetic Counseling - psychology | Genetic Counseling - legislation & jurisprudence | Genetic Testing - legislation & jurisprudence | Humans | Genetic Testing - ethics | Neoplasms - psychology | Disclosure - legislation & jurisprudence | Genetic Counseling - ethics | Medical Oncology - legislation & jurisprudence | Confidentiality - ethics | Confidentiality - psychology | Medical Oncology - ethics | Neoplasms - genetics | Disclosure - ethics | Mutation | Confidentiality - legislation & jurisprudence
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12. Full Text The Tension Between Data Sharing and the Protection of Privacy in Genomics Research
by Kaye, Jane
Annual Review of Genomics and Human Genetics, ISSN 1527-8204, 9/2012, Volume 13, Issue 1, pp. 415 - 431
Next-generation sequencing and global data sharing challenge many of the governance mechanisms currently in place to protect the privacy of research... 
research participants | public trust | global | e-governance | research ethics committees | governance | BIOBANK | PROJECT | INFORMATION | CHALLENGES | SOCIETY | CONSORTIUM | POLICY | GENETICS & HEREDITY | CONSENT | SCIENCE | ASSOCIATION | Information Dissemination - ethics | Tissue Banks - ethics | Humans | Informed Consent - legislation & jurisprudence | Informed Consent - ethics | International Cooperation | Ethics Committees | Information Dissemination - legislation & jurisprudence | Sequence Analysis, DNA | Tissue Banks - legislation & jurisprudence | Genomics - ethics | Genetic Privacy - ethics | Ethical Review | Tissue Banks - organization & administration | Genetic Privacy - legislation & jurisprudence | Genome, Human | Genomics - legislation & jurisprudence | Genetic research | Privacy | Information management | Analysis | Ethical aspects | Indexing in process
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13. Biobanks
: governance in comparative perspective
by Gottweis, Herbert, 1958 and Petersen, Alan R., Ph. D
2008, ISBN 9780415427388, xi, 234
In recent years, a number of large population-based biobanks - genetic databases that combine genetic information derived from blood samples with personal data... 
Moral and ethical aspects | Databases | Government policy | Political aspects | Human genetics | Biobanks | Medicine: General Issues | Politics & Technology | Sociology of Health and Illness | The Body & Identity | New Genetics | Sociology of Science & Technology | Databases, Genetic - ethics
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14. Full Text Clinical Implementation of Pharmacogenomics for Personalized Precision Medicine: Barriers and Solutions
by Klein, Michelle E and Parvez, Md Masud and Shin, Jae-Gook
Journal of Pharmaceutical Sciences, ISSN 0022-3549, 09/2017, Volume 106, Issue 9, pp. 2368 - 2379
Clinical implementation of pharmacogenomics (PGx) leads to personalized medicine, which improves the efficacy, safety, and cost-effectiveness of treatments.... 
clinical implementation | pharmacogenomics | pharmacogenetics | personalized medicine | SYSTEM | DESIGN | CHEMISTRY, MEDICINAL | INFORMATION | OPPORTUNITIES | MODEL | PRACTICAL CHALLENGES | CHEMISTRY, MULTIDISCIPLINARY | GENOMIC MEDICINE | DECISION-SUPPORT | ELECTRONIC HEALTH RECORDS | PHARMACOLOGY & PHARMACY | PROGRAM | Pharmacogenetics - methods | Pharmacogenetics - education | Health Plan Implementation - methods | Humans | Precision Medicine - economics | Health Plan Implementation - economics | Patient Care Management - methods | Patient Care Management - economics | Health Plan Implementation - legislation & jurisprudence | Decision Support Systems, Clinical - legislation & jurisprudence | Genomics - education | Pharmacogenetics - economics | Pharmacogenetics - legislation & jurisprudence | Decision Support Systems, Clinical - economics | Genomics - economics | Patient Care Management - legislation & jurisprudence | Biomedical Research | Genomics - methods | Precision Medicine - methods | Genomics - legislation & jurisprudence
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