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1. Full Text Congenital Heart Defects in Europe Prevalence and Perinatal Mortality, 2000 to 2005
by Dolk, Helen and Loane, Maria and Garne, Ester and European Surveillance Congenital A and European Surveillance of Congenital Anomalies (EUROCAT) Working Group and a European Surveillance of Congenital Anomalies (EUROCAT) Working Group
Circulation, ISSN 0009-7322, 03/2011, Volume 123, Issue 8, pp. 841 - U46
Background-This study determines the prevalence of Congenital Heart Defects (CHD), diagnosed prenatally or in infancy, and fetal and perinatal mortality... 
epidemiology | prevalence | perinatal mortality | Europe | congenital heart defects | POPULATION | CARDIAC & CARDIOVASCULAR SYSTEMS | ANOMALIES | RISK | TRENDS | BIRTH PREVALENCE | NOMENCLATURE | MORBIDITY | DISEASE | PERIPHERAL VASCULAR DISEASE | HEMATOLOGY | PRENATAL-DIAGNOSIS | REGISTRY | Perinatal Mortality - trends | Prevalence | Humans | Europe - epidemiology | Heart Defects, Congenital - epidemiology | Registries | Survival Rate | Heart Defects, Congenital - mortality | Retrospective Studies | Infant, Newborn | Congenital heart disease | Infants | Research | Statistics | Patient outcomes | Distribution | Index Medicus | Abridged Index Medicus
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2. Full Text Mortality resulting from congenital heart disease among children and adults in the United States, 1999 to 2006
by Gilboa, Suzanne M and Salemi, Jason L and Nembhard, Wendy N and Fixler, David E and Correa, Adolfo
Circulation, ISSN 0009-7322, 11/2010, Volume 122, Issue 22, pp. 2254 - 2263
Background-Previous reports suggest that mortality resulting from congenital heart disease (CHD) among infants and young children has been decreasing. There is... 
mortality | epidemiology | heart defects, congenital | vital statistics | race | METROPOLITAN ATLANTA | REGISTRY DATA | POPULATION | heart defects | CARDIAC & CARDIOVASCULAR SYSTEMS | GREAT-ARTERIES | INFANT-MORTALITY | congenital | BIRTH-DEFECTS | DEATH STATISTICS | PERIPHERAL VASCULAR DISEASE | 1ST-YEAR SURVIVAL | YOUNG-ADULT | HEMATOLOGY | PRENATAL-DIAGNOSIS | United States - epidemiology | African Continental Ancestry Group - ethnology | Humans | Middle Aged | Child, Preschool | Infant | Male | Survival Rate | European Continental Ancestry Group - ethnology | Incidence | Young Adult | Adolescent | Heart Defects, Congenital - epidemiology | Adult | Female | Aged | Heart Defects, Congenital - mortality | Retrospective Studies | Child | Heart Defects, Congenital - ethnology | Causes of | Death | Congenital heart disease | Prognosis | Diagnosis | Children | Index Medicus | Abridged Index Medicus
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3. Full Text Changing Mortality in Congenital Heart Disease
by Khairy, Paul, MD, PhD and Ionescu-Ittu, Raluca, MSc and Mackie, Andrew S., MD, SM and Abrahamowicz, Michal, PhD and Pilote, Louise, MD, MPH, PhD and Marelli, Ariane J., MD
JACC (Journal of the American College of Cardiology), ISSN 0735-1097, 2010, Volume 56, Issue 14, pp. 1149 - 1157
Objectives This study sought to characterize temporal trends in all-cause mortality in patients with congenital heart disease (CHD). Background Historically,... 
Cardiovascular | Internal Medicine | congenital heart disease | mortality | epidemiology | population | UNITED-STATES | DEFECTS | CARDIAC & CARDIOVASCULAR SYSTEMS | ADULTS | RISK | PREVALENCE | TRENDS | SUDDEN CARDIAC DEATH | OUTCOMES | PRENATAL-DIAGNOSIS | Prognosis | Age Factors | Heart Defects, Congenital - surgery | Humans | Middle Aged | Quebec | Child, Preschool | Infant | Male | Cardiac Surgical Procedures - mortality | Cause of Death | Young Adult | Adolescent | Sex Factors | Survival Analysis | Female | Heart Defects, Congenital - diagnosis | Aged | Cardiac Surgical Procedures - methods | Heart Defects, Congenital - mortality | Retrospective Studies | Child | Infant, Newborn | Cohort Studies | Genetic disorders | Analysis | Cardiac patients | Mortality | Congenital heart disease | Coronary heart disease | Health aspects | Heart diseases | Epidemiology | Heart | Health insurance | Codes | Medicare | Health care policy | Cardiovascular disease | Hospitalization | Patients | Data bases | Defects | Hospitals | Population | Age | Index Medicus | Abridged Index Medicus
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4. Full Text Mortality in adult congenital heart disease
by Verheugt, Carianne L and Uiterwaal, Cuno S. P. M and van der Velde, Enno T and Meijboom, Folkert J and Pieper, Petronella G and van Dijk, Arie P. J and Vliegen, Hubert W and Grobbee, Diederick E and Mulder, Barbara J. M
European heart journal, ISSN 0195-668X, 2010, Volume 31, Issue 10, pp. 1220 - 1229
Mortality in adults with congenital heart disease is known to be increased, yet its extent and the major mortality risks are unclear. The Dutch CONCOR national... 
Heart defects | Prognosis | Congenital | Epidemiology | Mortality | POPULATION | CARDIAC & CARDIOVASCULAR SYSTEMS | MANAGEMENT | PULMONARY ARTERIAL-HYPERTENSION | FALLOT | DEATH | TETRALOGY | REPAIR | AORTIC COARCTATION | MARFAN-SYNDROME | VENTRICULAR ARRHYTHMIAS | Age Distribution | Humans | Middle Aged | Netherlands - epidemiology | Male | Young Adult | Epidemiologic Methods | Adolescent | Sex Distribution | Adult | Female | Aged | Heart Defects, Congenital - mortality | Index Medicus
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5. Full Text Cause of death in adults with congenital heart disease — An analysis of the German National Register for Congenital Heart Defects
by Engelings, Claudia C and Helm, Paul C and Abdul-Khaliq, Hashim and Asfour, Boulos and Bauer, Ulrike M.M and Baumgartner, Helmut and Kececioglu, Deniz and Körten, Marc-Andre and Diller, Gerhard-Paul and Tutarel, Oktay
International Journal of Cardiology, ISSN 0167-5273, 2015, Volume 211, pp. 31 - 36
Abstract Background Due to the great advances in the care of patients with congenital heart disease (CHD), mortality has decreased significantly over the last... 
Cardiovascular | Adult congenital heart disease | Mortality | Register study | SURVIVAL | CARDIAC & CARDIOVASCULAR SYSTEMS | MANAGEMENT | FOLLOW-UP | PREVALENCE | Follow-Up Studies | Humans | Middle Aged | Adult | Cause of Death - trends | Female | Heart Defects, Congenital - diagnosis | Male | Registries | Heart Defects, Congenital - mortality | Cohort Studies | Germany - epidemiology | Genetic disorders | Analysis | Cardiac patients | Adults | Congenital heart disease | Heart diseases | Index Medicus
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6. Full Text The Society of Thoracic Surgeons Congenital Heart Surgery Database Mortality Risk Model: Part 2—Clinical Application
by Jacobs, Jeffrey P., MD and O’Brien, Sean M., PhD and Pasquali, Sara K., MD and Gaynor, J. William, MD and Mayer, John E., MD and Karamlou, Tara, MD and Welke, Karl F., MD and Filardo, Giovanni, PhD and Han, Jane M., MSW and Kim, Sunghee, PhD and Quintessenza, James A., MD and Pizarro, Christian, MD and Tchervenkov, Christo I., MD and Lacour-Gayet, Francois, MD and Mavroudis, Constantine, MD and Backer, Carl L., MD and Austin, Erle H., MD and Fraser, Charles D., MD and Tweddell, James S., MD and Jonas, Richard A., MD and Edwards, Fred H., MD and Grover, Frederick L., MD and Prager, Richard L., MD and Shahian, David M., MD and Jacobs, Marshall L., MD
Annals of Thoracic Surgery, ISSN 0003-4975, 2015, Volume 100, Issue 3, pp. 1063 - 1070
Background The empirically derived 2014 Society of Thoracic Surgeons Congenital Heart Surgery Database Mortality Risk Model incorporates adjustment for... 
Surgery | Cardiothoracic Surgery | SURGERY | CARDIAC & CARDIOVASCULAR SYSTEMS | OPERATIONS | RESPIRATORY SYSTEM | CARDIAC-SURGERY | DISEASE | OUTCOMES | EMPIRICALLY BASED TOOL | Hospital Mortality | Risk Assessment | Heart Defects, Congenital - surgery | Humans | Child, Preschool | Infant | Thoracic Surgical Procedures | Models, Statistical | Thoracic Surgery | Young Adult | Societies, Medical | Adolescent | Adult | Heart Defects, Congenital - mortality | Child | Infant, Newborn | Databases, Factual | Medical colleges | Genetic disorders | Physicians | Risk assessment | Children's hospitals | Mortality | Health aspects | Risk factors | Trade and professional associations | Index Medicus | Abridged Index Medicus
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7. Full Text Specialized Adult Congenital Heart Disease Care: The Impact of Policy on Mortality
by Mylotte, Darren and Pilote, Louise and Ionescu-Ittu, Raluca and Abrahamowicz, Michal and Khairy, Paul and Therrien, Judith and Mackie, Andrew S and Marelli, Ariane
Circulation, ISSN 0009-7322, 05/2014, Volume 129, Issue 18, pp. 1804 - 1812
BACKGROUND—Clinical guidelines recommend specialized care for adult congenital heart disease (ACHD) patients. In reality, few patients receive such dedicated... 
mortality | referral and consultation | congenital | treatment outcome | heart diseases | UNITED-STATES | YOUNG-ADULTS | POPULATION | CARDIAC & CARDIOVASCULAR SYSTEMS | PRACTICE GUIDELINES | MANAGEMENT | CONSENSUS CONFERENCE | PREVALENCE | CHILDREN | HOSPITAL VOLUME | PERIPHERAL VASCULAR DISEASE | SEX-DIFFERENCES | Quebec - epidemiology | Hospital Mortality | Outcome Assessment (Health Care) | Humans | Middle Aged | Databases, Factual - statistics & numerical data | Kaplan-Meier Estimate | Proportional Hazards Models | Male | Referral and Consultation - statistics & numerical data | Case-Control Studies | Incidence | Young Adult | Cardiology - statistics & numerical data | Adult | Female | Heart Defects, Congenital - mortality | Heart Defects, Congenital - therapy | Health Policy | Medical policy | Care and treatment | Patient outcomes | Mortality | Influence | Congenital heart disease | Diagnosis | Research | Index Medicus | Abridged Index Medicus
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8. Full Text Trends in Mortality of Congenital Heart Defects
by Jortveit, Jarle and Øyen, Nina and Leirgul, Elisabeth and Fomina, Tatiana and Tell, Grethe S and Vollset, Stein Emil and Eskedal, Leif and Døhlen, Gaute and Birkeland, Sigurd and Holmstrøm, Henrik
Congenital Heart Disease, ISSN 1747-079X, 03/2016, Volume 11, Issue 2, pp. 160 - 168
ObjectiveThe aim of the present nationwide cohort study was to describe trends in 1-year mortality in live-born children with congenital heart defects in... 
Congenital Heart Defects | Termination of Pregnancies | Mortality | SURVIVAL | CARDIAC & CARDIOVASCULAR SYSTEMS | CARDIOVASCULAR MALFORMATIONS | DISEASE | INFANTS | BIRTH PREVALENCE | Congenital heart disease | Genetic disorders | Health aspects | Pregnancy | Heart | Medical equipment | Pain | Trends | Abortion | Defects
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9. Full Text Temporal trends in survival to adulthood among patients born with congenital heart disease from 1970 to 1992 in Belgium
by Moons, Philip and Bovijn, Lore and Budts, Werner and Belmans, Ann and Gewillig, Marc
Circulation, ISSN 0009-7322, 11/2010, Volume 122, Issue 22, pp. 2264 - 2272
Background-Over the past decades, the life expectancy of individuals with congenital heart disease (CHD) has increased significantly. However, precise... 
mortality | epidemiology | heart defects, congenital | pediatrics | POPULATION | DEFECTS | CARDIAC & CARDIOVASCULAR SYSTEMS | ANOMALIES | PREVALENCE | CARE | DELIVERY | EUROPE | PROGRAMS | PERIPHERAL VASCULAR DISEASE | HEMATOLOGY | REGISTRY | BIRTHS | Severity of Illness Index | Heart Defects, Congenital - classification | Belgium - epidemiology | Humans | Kaplan-Meier Estimate | Child, Preschool | Infant | Male | Survival Rate | Incidence | Young Adult | Regression Analysis | Adolescent | Heart Defects, Congenital - epidemiology | Adult | Female | Heart Defects, Congenital - mortality | Retrospective Studies | Child | Congenital heart disease | Life expectancy | Research | Patient outcomes | Index Medicus | Abridged Index Medicus
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10. Full Text Mortality associated with congenital heart defects in the United States: Trends and racial disparities, 1979-1997
by Boneva, Roumiana S and Botto, Lorenzo D and Moore, Cynthia A and Yang, Quanhe and Correa, Adolfo and Erickson, J. David
Circulation, ISSN 0009-7322, 05/2001, Volume 103, Issue 19, pp. 2376 - 2381
Background-Surgical series and some population-based studies have documented a decrease in mortality from heart defects. Recent population-based data for the... 
Heart defects | Congenital | Mortality | Race | Vital statistics | POPULATION | SURGICAL REPAIR | CARDIAC & CARDIOVASCULAR SYSTEMS | race | PREVALENCE | CARDIAC MALFORMATION | DEATH CERTIFICATES | vital statistics | CARDIOVASCULAR MALFORMATIONS | MORBIDITY | OPERATION | DISEASE | mortality | heart defects, congenital | PERIPHERAL VASCULAR DISEASE | HEMATOLOGY | EPIDEMIOLOGY | United States - epidemiology | Humans | Middle Aged | Child, Preschool | European Continental Ancestry Group - statistics & numerical data | Infant | Male | Mortality - trends | African Americans - statistics & numerical data | Adolescent | Adult | Centers for Disease Control and Prevention (U.S.) - statistics & numerical data | Female | Aged | Heart Defects, Congenital - mortality | Child | Infant Mortality - trends | Infant, Newborn | Heart Defects, Congenital - ethnology | Index Medicus | Abridged Index Medicus
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11. Full Text The Society of Thoracic Surgeons Congenital Heart Surgery Database Mortality Risk Model: Part 1—Statistical Methodology
by O’Brien, Sean M., PhD and Jacobs, Jeffrey P., MD and Pasquali, Sara K., MD, MHS and Gaynor, J. William, MD and Karamlou, Tara, MD and Welke, Karl F., MD and Filardo, Giovanni, PhD and Han, Jane M., MSW and Kim, Sunghee, PhD and Shahian, David M., MD and Jacobs, Marshall L., MD
Annals of Thoracic Surgery, ISSN 0003-4975, 2015, Volume 100, Issue 3, pp. 1054 - 1062
Background This study’s objective was to develop a risk model incorporating procedure type and patient factors to be used for case-mix adjustment in the... 
Surgery | Cardiothoracic Surgery | SURGERY | CARDIAC & CARDIOVASCULAR SYSTEMS | RESPIRATORY SYSTEM | SURGICAL REGISTRY DATABASE | ADJUSTMENT | EACTS | PREOPERATIVE FACTORS | Hospital Mortality | Risk Assessment | Heart Defects, Congenital - surgery | Humans | Child, Preschool | Infant | Male | Thoracic Surgical Procedures | Models, Statistical | Statistics as Topic - methods | Thoracic Surgery | Young Adult | Societies, Medical | Adolescent | Adult | Female | Heart Defects, Congenital - mortality | Child | Infant, Newborn | Databases, Factual | Medical colleges | Genetic disorders | Physicians | Children's hospitals | Mortality | Risk factors | Databases | Risk assessment | Children | Health aspects | Methods | Trade and professional associations | Index Medicus | Abridged Index Medicus
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12. Full Text Achievements in Congenital Heart Defect Surgery: A Prospective, 40-Year Study of 7038 Patients
by Erikssen, Gunnar and Liestøl, Knut and Seem, Egil and Birkeland, Sigurd and Saatvedt, Kjell Johan and Hoel, Tom Nilsen and Døhlen, Gaute and Skulstad, Helge and Svennevig, Jan Ludvig and Thaulow, Erik and Lindberg, Harald Lauritz
Circulation, ISSN 0009-7322, 01/2015, Volume 131, Issue 4, pp. 337 - 346
BACKGROUND—This article presents an update of the results achieved by modern surgery in congenital heart defects (CHDs) over the past 40 years regarding... 
reoperation | heart defects, congenital | thoracic surgery | survival | MORTALITY | ARTERIOSUS | CARDIAC & CARDIOVASCULAR SYSTEMS | OPERATIONS | EMPIRICALLY BASED TOOL | REPAIR | PEDIATRIC CARDIAC-SURGERY | DISEASE | PERIPHERAL VASCULAR DISEASE | ARISTOTLE SCORE | TEMPORAL TRENDS | Prospective Studies | Survival Rate - trends | Follow-Up Studies | Heart Defects, Congenital - surgery | Humans | Child, Preschool | Infant | Male | Treatment Outcome | Time Factors | Norway - epidemiology | Adolescent | Female | Heart Defects, Congenital - diagnosis | Registries | Heart Defects, Congenital - mortality | Achievement | Child | Heart | Care and treatment | Usage | Congenital heart disease | Surgery | Patient outcomes | Index Medicus | Abridged Index Medicus
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13. Full Text Temporal trends in survival among infants with critical congenital heart defects
by Oster, Matthew E and Lee, Kyung A and Honein, Margaret A and Riehle-Colarusso, Tiffany and Shin, Mikyong and Correa, Adolfo
Pediatrics, ISSN 0031-4005, 05/2013, Volume 131, Issue 5, pp. e1502 - e1508
OBJECTIVE: To evaluate the trends in survival for infants with critical congenital heart defects (CCHDs) and to examine the potential impact of timing of... 
Screening | Neonatal | Pulse oximetry | Survival rate | Congenital heart disease/defects | Epidemiology | pulse oximetry | MORTALITY | METROPOLITAN ATLANTA | DIAGNOSIS | screening | GREAT-ARTERIES | neonatal | PREVALENCE | TRANSPOSITION | epidemiology | CARDIOVASCULAR MALFORMATIONS | CARDIAC-SURGERY | DISEASE | survival rate | PEDIATRICS | congenital heart disease/defects | Survival Rate - trends | Follow-Up Studies | Risk Assessment | Heart Defects, Congenital - surgery | Humans | Kaplan-Meier Estimate | Proportional Hazards Models | Survivors | Infant | Male | Neonatal Screening - methods | Cause of Death | Critical Illness - mortality | Analysis of Variance | Time Factors | Statistics, Nonparametric | Female | Heart Defects, Congenital - diagnosis | Heart Defects, Congenital - mortality | Retrospective Studies | Infant, Newborn | Cohort Studies | Care and treatment | Usage | Analysis | Congenital heart disease | Infants | Diagnosis | Medical screening | Health aspects | Survival analysis | Pediatrics | Congenital diseases | Medical prognosis | Cardiovascular disease | Infant mortality | Medical diagnosis | Index Medicus | Abridged Index Medicus | defects | congenital heart disease
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