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The lancet oncology, ISSN 1470-2045, 2013, Volume 14, Issue 2, pp. 109 - 110
...The definition of a rare cancer has not been agreed internationally. In Europe, rare diseases are often defined as those with a prevalence of less than 50 per... 
Hematology, Oncology and Palliative Medicine | ONCOLOGY | Neoplasms - therapy | Rare Diseases - therapy | Humans | Rare Diseases - epidemiology | Clinical Trials as Topic | International Cooperation | Neoplasms - epidemiology
Journal Article
European Journal of Cancer, ISSN 0959-8049, 2015, Volume 51, Issue 3, pp. 271 - 281
Journal Article
Expert Opinion on Orphan Drugs, ISSN 2167-8707, 05/2014, Volume 2, Issue 5, pp. 433 - 440
.... The International rare cancer initiative (IRCI) was formed in 2011 with the aim of stimulating and facilitating the development of international clinical trials for patients... 
international rare cancer initiative | clinical trials | rare cancers | regulatory | Clinical trials | Regulatory | Rare cancers | International rare cancer initiative | PHARMACOLOGY & PHARMACY | EORTC
Journal Article
by Saunders, Edward J and Dadaev, Tokhir and Leongamornlert, Daniel A and Jugurnauth-Little, Sarah and Tymrakiewicz, Malgorzata and Wiklund, Fredrik and Al Olama, Ali Amin and Benlloch, Sara and Neal, David E and Hamdy, Freddie C and Donovan, Jenny L and Giles, Graham G and Severi, Gianluca and Gronberg, Henrik and Aly, Markus and Haiman, Christopher A and Schumacher, Fredrick and Henderson, Brian E and Lindstrom, Sara and Kraft, Peter and Hunter, David J and Gapstur, Susan and Chanock, Stephen and Berndt, Sonja I and Albanes, Demetrius and Andriole, Gerald and Schleutker, Johanna and Weischer, Maren and Nordestgaard, Børge G and Canzian, Federico and Campa, Daniele and Riboli, Elio and Key, Tim J and Travis, Ruth C and Ingles, Sue A and John, Esther M and Hayes, Richard B and Pharoah, Paul and Khaw, Kay-Tee and Stanford, Janet L and Ostrander, Elaine A and Signorello, Lisa B and Thibodeau, Stephen N and Schaid, Daniel and Maier, Christiane and Kibel, Adam S and Cybulski, Cezary and Cannon-Albright, Lisa and Brenner, Hermann and Park, Jong Y and Kaneva, Radka and Batra, Jyotsna and Clements, Judith A and Teixeira, Manuel R and Xu, Jianfeng and Mikropoulos, Christos and Goh, Chee and Govindasami, Koveela and Guy, Michelle and Wilkinson, Rosemary A and Sawyer, Emma J and Morgan, Angela and Easton, Douglas F and Muir, Ken and Eeles, Rosalind A and Kote-Jarai, Zsofia and UK Genetic Prostate Canc Study and UK ProtecT Study Collaborators and COGS-CRUK GWAS-ELLIPSE Initiative and PRACTICAL Consortium and The PRACTICAL Consortium and COGS-CRUK GWAS-ELLIPSE (Part of GAME-ON) Initiative and The UK Genetic Prostate Cancer Study Collaborators and The UK ProtecT Study Collaborators
PLoS Genetics, ISSN 1553-7390, 02/2014, Volume 10, Issue 2, p. e1004129
.... Here, we report detection of a novel common, low penetrance prostate cancer association at the HOXB locus at ch17q and show that this signal can actually be attributed to a previously identified rare... 
METAANALYSIS | GENETICS | GENETICS & HEREDITY | G84E MUTATION | GENOME-WIDE SCAN | RISK | LOCI | LINKAGE | CARCINOMA | SUSCEPTIBILITY GENES | INTERNATIONAL CONSORTIUM | Genetic aspects | Research | Demographic aspects | Prostate cancer | Patient outcomes | Studies | Haplotypes | Medical research | Disease | Genes | Mortality | Tumors
Journal Article
Cancer science, ISSN 1347-9032, 2018, Volume 109, Issue 5, pp. 1731 - 1737
This article discusses current obstacles to the rapid development of safe and effective treatments for rare cancers, and considers measures required to overcome these challenges... 
cancer registry | rare subtype of cancer | rare cancer | evaluation method | therapeutic development | EUROPE | ONCOLOGY | ADENOCARCINOMA | SARCOMAS | CONCORDANCE | Medicine, Experimental | Medical research | Health aspects | Cancer | Studies | Accuracy | Disease | Biobanks | Population | International standards | Clinical medicine | Pharmaceutical industry | Health risk assessment | Patients | Cancer therapies | Morbidity | Report
Journal Article
Journal Article
European Journal of Surgical Oncology, ISSN 0748-7983, 01/2019, Volume 45, Issue 1, pp. 22 - 30
Rare cancers are not so rare, their incidence is increasing and, as a group, they have worse survival than the common cancers... 
Observational study | International collaborations | Population-based registry | Rare cancer | Evidence based-medicine | Clinical trial | Genomic | SURGERY | DIAGNOSIS | PROPENSITY SCORE | EUROPE | BASKET TRIALS | ONCOLOGY | BIG DATA | ERA | CLINICAL-TRIALS | SARCOMA | BURDEN | REAL-WORLD EVIDENCE
Journal Article
Nature genetics, ISSN 1061-4036, 01/2020, Volume 52, Issue 1, pp. 21 - 26
.... Many clinicians do not recognize people with rare diseases or are unaware of available resources for advanced diagnosis and treatment. [...]there is an opportunity for change: the issues of rare-disease awareness and genomic literacy6 must be raised among healthcare providers, patients and the public. 
Medical personnel | Initiatives | Populations | Congenital diseases | Medical treatment | Genomics | Research | Medical diagnosis | Patients | Diseases | Consortia | Disease prevention | Genetic counseling | Surveillance | Collaboration | Health care access | International
Journal Article