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1. Full Text Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research
by Meredith C. Meacham and Helene Starks and Wylie Burke and Kelly Edwards
Journal of Empirical Research on Human Research Ethics: An International Journal, ISSN 1556-2646, 09/2010, Volume 5, Issue 3, pp. 31 - 41
information that is beyond the aims of the research study yet may be of clinical or personal interest to study participants. We conducted semi-structured... 
Managing Genetic Research Data | Incidental findings | Medical genetics | Colorectal cancer | Genetic research | Bioethics | Research ethics | Institutional review boards | Consent forms | Research studies | Human genetics | Qualitative research | Communication of results | Genetic studies | Decision-making processes | Disclosure | Vignette study | RETURN | disclosure | decision-making processes | vignette study | genetic studies | communication of results | DUTY | MEDICAL ETHICS | incidental findings | qualitative research | OWE | ETHICS | Guideline Adherence | Decision Making - ethics | United States | Humans | Problem Solving | Incidental Findings | Disclosure - ethics | Female | Male | Genetic Research - ethics | Qualitative Research | Researchers | Decision making | Professional ethics
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2. Full Text Secondary Variants in Individuals Undergoing Exome Sequencing: Screening of 572 Individuals Identifies High-Penetrance Mutations in Cancer-Susceptibility Genes
by Johnston, Jennifer J and Rubinstein, Wendy S and Facio, Flavia M and Ng, David and Singh, Larry N and Teer, Jamie K and Mullikin, James C and Biesecker, Leslie G
The American Journal of Human Genetics, ISSN 0002-9297, 07/2012, Volume 91, Issue 1, pp. 97 - 108
Genome- and exome-sequencing costs are continuing to fall, and many individuals are undergoing these assessments as research participants and patients. The... 
DATABASE | RECOMMENDATIONS | GENETICS & HEREDITY | GERMLINE MUTATIONS | CLASSIFICATION | E-CADHERIN MUTATIONS | MANAGING INCIDENTAL FINDINGS | BRCA1 | PREVALENCE | BREAST | DIFFUSE GASTRIC-CANCER | Genetic Predisposition to Disease | Atherosclerosis - genetics | Humans | Middle Aged | Incidental Findings | Male | Penetrance | Sequence Analysis, DNA | Exome | Genetic Variation | Algorithms | Neoplasms - genetics | Pedigree | Female | Aged | Mutation | Usage | Gene mutations | Genetic susceptibility | Exome sequencing | Causes of | Genetic aspects | Diagnosis | Research | Oncogenes | Cancer | Analysis | Genes | Genomics | Atherosclerosis | Disease susceptibility
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3. Full Text Return of Genomic Results to Research Participants: The Floor, the Ceiling, and the Choices In Between
by Jarvik, Gail P and Amendola, Laura M and Berg, Jonathan S and Brothers, Kyle and Clayton, Ellen W and Chung, Wendy and Evans, Barbara J and Evans, James P and Fullerton, Stephanie M and Gallego, Carlos J and Garrison, Nanibaa’ A and Gray, Stacy W and Holm, Ingrid A and Kullo, Iftikhar J and Lehmann, Lisa Soleymani and McCarty, Cathy and Prows, Cynthia A and Rehm, Heidi L and Sharp, Richard R and Salama, Joseph and Sanderson, Saskia and Van Driest, Sara L and Williams, Marc S and Williams, Janet and Wolf, Wendy A and Wolf, Susan M and Harley, John and Myers, Melanie and Namjou, Bahram and Vinks, Sander and Connolly, John and Keating, Brendan and Gerhard, Glenn and Sundaresan, Agnes and Tromp, Gerard and Crosslin, David and Leppig, Kathy and Wicklund, Cathy and Chute, Christopher and Lynch, John and De Andrade, Mariza and Heit, John and McCormick, Jen and Brilliant, Murray and Kitchner, Terrie and Ritchie, Marylyn and Böttinger, Erwin and Peter, Inga and Persell, Stephen and Rasmussen-Torvik, Laura and McGregor, Tracy and Roden, Dan and Antommaria, Armand and Chiavacci, Rosetta and Faucett, Andy and Ledbetter, David and Hartzler, Andrea and Vitek, Carolyn R. Rohrer and Frost, Norm and Ferryman, Kadija and Horowitz, Carol and Rhodes, Rosamond and Zinberg, Randi and Aufox, Sharon and Pan, Vivian and Long, Rochelle and Ramos, Erin and Odgis, Jackie and Wise, Anastasia and Hull, Sara and Gitlin, Jonathan and Green, Robert and Metterville, Danielle and McGuire, Amy and Kong, Sek Won and Trinidad, Sue and Veenstra, David and Roche, Myra and Skinner, Debra and Raspberry, Kelly and O’Daniel, Julianne and Parsons, Will and Eng, Christine and Hilsenbeck, Susan and Karavite, Dean and Conlin, Laura and Spinner, Nancy and Krantz, Ian and Falk, Marni and Santani, Avni and Dechene, Elizabeth and Dulik, Matthew and Bernhardt, Barbara and Schuetze, Scott and Everett, Jessica and Gornick, Michele Caroline and Wilfond, Ben and Tabor, Holly and Lemke, Amy A and Richards, Sue and ... and CERC Comm and CSER Act-ROR Working Grp and eMERGE Act-ROR Comm and eMERGE Act-ROR Committee and CERC Committee and CSER Act-ROR Working Group
The American Journal of Human Genetics, ISSN 0002-9297, 06/2014, Volume 94, Issue 6, pp. 818 - 826
As more research studies incorporate next-generation sequencing (including whole-genome or whole-exome sequencing), investigators and institutional review... 
CLINICAL GENOMICS | ISSUES | ACMG RECOMMENDATIONS | EXOME | WORKING GROUP | GENETICS & HEREDITY | MANAGING INCIDENTAL FINDINGS | CANCER | BREAST | PATIENT AUTONOMY | CHILDREN | Biomedical Research - ethics | Genetics, Medical - ethics | Patient Access to Records - ethics | Genetic Privacy | Humans | Societies, Scientific | Population Groups | High-Throughput Nucleotide Sequencing | Disclosure | Genome, Human | Genomics - ethics | Genetic research | Research | Nucleotide sequencing | Population genetics | DNA sequencing
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4. Full Text Patient decisions for disclosure of secondary findings among the first 200 individuals undergoing clinical diagnostic exome sequencing
by Shahmirzadi, Layla and Chao, Elizabeth C and Palmaer, Erika and Parra, Melissa C and Tang, Sha and Gonzalez, Kelly D. Farwell
Genetics in Medicine, ISSN 1098-3600, 2014, Volume 16, Issue 5, pp. 395 - 399
Purpose: Exome sequencing Of a single individual for a clinical indication may result in the identification of incidental deleterious variants unrelated to the... 
return of results | clinical exome sequencing | incidental findings | secondary findings | genetic testing in minors | VARIANTS | MANAGING INCIDENTAL FINDINGS | BIOBANKS | CHILDREN | ONSET CONDITIONS | GENOMIC RESEARCH | RETURN | RECOMMENDATIONS | GENETICS & HEREDITY | EXPECTATIONS | GENETIC RESEARCH | Humans | Middle Aged | Patient Participation | Child, Preschool | Incidental Findings | Infant | Patient Preference | Disclosure | Sequence Analysis, DNA | Young Adult | Exome - genetics | Adolescent | Adult | Aged | Retrospective Studies | Child | Original
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5. Full Text A Clinical Service to Support the Return of Secondary Genomic Findings in Human Research
by Darnell, Andrew J and Austin, Howard and Bluemke, David A and Cannon, Richard O and Fischbeck, Kenneth and Gahl, William and Goldman, David and Grady, Christine and Greene, Mark H and Holland, Steven M and Hull, Sara Chandros and Porter, Forbes D and Resnik, David and Rubinstein, Wendy S and Biesecker, Leslie G
The American Journal of Human Genetics, ISSN 0002-9297, 03/2016, Volume 98, Issue 3, pp. 435 - 441
Human genome and exome sequencing are powerful research tools that can generate secondary findings beyond the scope of the research. Most secondary genomic... 
EXOME | DUTY | PERSPECTIVES | GENETICS & HEREDITY | GENETICS PROFESSIONALS | MANAGING INCIDENTAL FINDINGS | PARTICIPANTS | Incidental Findings | Genetic Predisposition to Disease | Sequence Analysis | Genome, Human | Genomics - methods | Humans | Genetic research | Nucleotide sequencing | Methods | DNA sequencing
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6. Full Text Reflecting on earlier experiences with unsolicited findings: points to consider for next-generation sequencing and informed consent in diagnostics
by Rigter, T and Henneman, L and Kristoffersson, U and Hall, A and Yntema, H.G and Borry, P and Tonnies, H and Waisfisz, Q and Elting, M.W and Dondorp, W.J and Cornel, M.C
Human Mutation, ISSN 1059-7794, 2013, Volume 34, Issue 10, pp. 1322 - 1328
High-throughput nucleotide sequencing (often referred to as next-generation sequencing; NGS) is increasingly being chosen as a diagnostic tool for cases of... 
diagnosis | incidental findings | unsolicited findings | informed consent | high‐throughput nucleotide sequencing | Informed consent | Diagnosis | Unsolicited findings | High-throughput nucleotide sequencing | Incidental findings | CRITERIA | OBLIGATIONS | high-throughput nucleotide sequencing | MANAGING INCIDENTAL FINDINGS | IDENTIFICATION | GENOME | CHALLENGES | REPRODUCTIVE BENEFIT | DISEASE | GENETICS & HEREDITY | GENETIC RESEARCH | ETHICS | Decision Making - ethics | Patient Rights | Humans | Disclosure - ethics | Informed Consent - ethics | Genetic Testing - ethics | Genetic Testing - methods | High-Throughput Nucleotide Sequencing - ethics | Special
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7. Full Text Return of results and data to study participants
by Wolf, SM and Evans, BJ
SCIENCE, ISSN 0036-8075, 10/2018, Volume 362, Issue 6411, pp. 159 - 160
MULTIDISCIPLINARY SCIENCES | MANAGING INCIDENTAL FINDINGS | Access to Information - ethics | Biomedical Research - ethics | Confidentiality - ethics | Bioethical Issues | Humans
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8. Full Text The Responsibility to Recontact Research Participants after Reinterpretation of Genetic and Genomic Research Results
by Bombard, Yvonne and Brothers, Kyle B and Fitzgerald-Butt, Sara and Garrison, Nanibaa’ A and Jamal, Leila and James, Cynthia A and Jarvik, Gail P and McCormick, Jennifer B and Nelson, Tanya N and Ormond, Kelly E and Rehm, Heidi L and Richer, Julie and Souzeau, Emmanuelle and Vassy, Jason L and Wagner, Jennifer K and Levy, Howard P
The American Journal of Human Genetics, ISSN 0002-9297, 04/2019, Volume 104, Issue 4, pp. 578 - 595
The evidence base supporting genetic and genomic sequence-variant interpretations is continuously evolving. An inherent consequence is that a variant’s... 
genomics | recontact | genetics | genetics policy | research | participants | RETURN | INFORMED-CONSENT | RECLASSIFICATION | VARIANT CLASSIFICATION | DUTY | GUIDELINES | GENETICS & HEREDITY | LABORATORIES | MANAGING INCIDENTAL FINDINGS | BRCA1 | CLINICAL-PRACTICE | Genetic research | Research | Analysis | Human genetics | ASHG Position Statement
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9. Full Text 2016 SCCT/STR guidelines for coronary artery calcium scoring of noncontrast noncardiac chest CT scans: A report of the Society of Cardiovascular Computed Tomography and Society of Thoracic Radiology
by Hecht, Harvey S and Cronin, Paul and Blaha, Michael J and Budoff, Matthew J and Kazerooni, Ella A and Narula, Jagat and Yankelevitz, David and Abbara, Suhny
Journal of Cardiovascular Computed Tomography, ISSN 1934-5925, 2016, Volume 11, Issue 1, pp. 74 - 84
Abstract The Society of Cardiovascular Computed Tomography (SCCT) and the Society of Thoracic Radiology (STR) have jointly produced this document. Experts in... 
Cardiovascular | Computed tomography | Coronary artery calcium | Coronary artery disease | COMMITTEE II | CARDIAC & CARDIOVASCULAR SYSTEMS | WHITE PAPER | AMERICAN-COLLEGE | PELVIC CT | SUBCLINICAL ATHEROSCLEROSIS | MANAGING INCIDENTAL FINDINGS | HEART-DISEASE RISK | LUNG-CANCER | TASK-FORCE | CALCIFICATION | RADIOLOGY, NUCLEAR MEDICINE & MEDICAL IMAGING | Severity of Illness Index | Predictive Value of Tests | Reproducibility of Results | Tomography, X-Ray Computed - standards | Coronary Artery Disease - etiology | Prognosis | Risk Assessment | Humans | Middle Aged | Risk Factors | Incidental Findings | Vascular Calcification - diagnostic imaging | Radiography, Thoracic - standards | Consensus | Coronary Artery Disease - diagnostic imaging | Vascular Calcification - etiology | Adult | Radiography, Thoracic - methods | Aged
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10. Full Text Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations
by Wolf, Susan M and Branum, Rebecca and Koenig, Barbara A and Petersen, Gloria M and Berry, Susan A and Beskow, Laura M and Daly, Mary B and Fernandez, Conrad V and Green, Robert C and LeRoy, Bonnie S and Lindor, Noralane M and O'Rourke, P. Pearl and Breitkopf, Carmen Radecki and Rothstein, Mark A and Van Ness, Brian and Wilfond, Benjamin S
The Journal of Law, Medicine & Ethics, ISSN 1073-1105, 10/2015, Volume 43, Issue 3, pp. 440 - 463
Genomic research results and incidental findings with health implications for a research participant are of potential interest not only to the participant, but... 
LAW | MEDICINE, LEGAL | FAMILY-MEMBERS | HEREDITARY BREAST | MEDICAL ETHICS | MANAGING INCIDENTAL FINDINGS | OVARIAN-CANCER | BIOBANKS | CHALLENGES | DISCLOSURE | LEGAL | GENETIC RESEARCH | COMMUNICATION | ETHICS | Informed Consent | Humans | Adult | Disclosure - ethics | Family | Disclosure - legislation & jurisprudence | Child | Research Subjects - legislation & jurisprudence | Genomics - ethics | Genomics - legislation & jurisprudence | Access control | Privacy, Right of | Laws, regulations and rules | Genetic research | Medical records | Health aspects | Domestic relations | Families & family life | Bioethics | Ethics | Disclosure | Genomics | return of results | genomics | incidental findings | family | return after death
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11. Full Text Radiologic Pearls for Internists: A Case-Based Review
by McGettigan, Melissa J and Gatenby, Robert A
The American Journal of Medicine, ISSN 0002-9343, 01/2018, Volume 131, Issue 1, pp. 9 - 16
Modern technologic advances in medical imaging and the increasing use of imaging across all disciplines in medicine have led to a striking rise in incidental... 
Spleen | Pericardial | Liver | Cyst | Magnetic resonance imaging (MRI) | Ultrasound (US) | Computed tomography (CT) | Epididymal | Incidental | Kidney | Thyroid | WHITE PAPER | MANAGEMENT | MANAGING INCIDENTAL FINDINGS | THYROID-NODULES | COMPUTED-TOMOGRAPHY | FINDINGS COMMITTEE | MEDICINE, GENERAL & INTERNAL | FOCAL LIVER-LESIONS | SIMPLE RENAL CYSTS | PATHOLOGICAL CORRELATION
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