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1. Full Text Level of agreement between adolescents’ self‐assessment and parent proxy report of health‐related quality of life in adolescents with sickle cell disease
by Blake, Alphanso and Guthrie‐Dixon, Natalie and Grindley, Marlyn and Barton‐Gooden, Antoinette and Knight‐Madden, Jennifer and Asnani, Monika
Pediatric blood & cancer, ISSN 1545-5009, 04/2020, Volume 67, Issue 4, pp. e28198 - n/a
health‐related quality of life | level of agreement | PedsQL‐SCD | Jamaica | adolescents | sickle cell disease | health-related quality of life | PedsQL-SCD | Pediatrics | Oncology | Life Sciences & Biomedicine | Hematology | Science & Technology | Teenagers | Agreements | Adolescents | Sickle cell disease | Quality of life | Index Medicus
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2. Comparison of Patient- and Parent-Reported Quality of Life for Patients Treated for Persistent Obstructive Sleep Apnea
by Bergeron, Mathieu and Duggins, Angela L and Cohen, Aliza P and Ishman, Stacey L
Otolaryngology--head and neck surgery, ISSN 0194-5998, 10/2018, Volume 159, Issue 4, pp. 789 - 795
obstructive sleep apnea | tonsillectomy | infant | OSA | persistent | quality of life | parent report | PedsQL | pediatric
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3. Full Text Patient-reported outcomes of occipitocervical and atlantoaxial fusions in children
by Vedantam, Aditya and Vedantam, Aditya and Hansen, Daniel and Hansen, Daniel and Briceño, Valentina and Briceño, Valentina and Brayton, Alison and Brayton, Alison and Jea, Andrew and Jea, Andrew
Journal of neurosurgery. Pediatrics, ISSN 1933-0707, 01/2017, Volume 19, Issue 1, pp. 85 - 90
occipitocervical fusion | patient-reported outcomes | surgical outcomes | IONM = intraoperative neuromonitoring | pediatric neurosurgery | HRQOL = health-related quality of life | health-related quality of life | spine | traumatic atlantooccipital dislocation | ASIA = American Spinal Injury Association | atlantoaxial fusion | ChildPedsQL = child-reported PedsQL | NDI = Neck Disability Index | PCS = Physical Component Summary | PRO = patient-reported outcome | MCS = Mental Component Summary | PedsQL = Pediatric Quality of Life Inventory | ParentPedsQL = parent-reported PedsQL | SRS-22 = Scoliosis Research Society Outcomes Measure–22 | Pediatrics | Clinical Neurology | Neurosciences & Neurology | Life Sciences & Biomedicine | Surgery | Science & Technology | Follow-Up Studies | Humans | Child, Preschool | Infant | Male | Treatment Outcome | Atlanto-Axial Joint - surgery | Cervical Vertebrae - surgery | Occipital Bone - surgery | Adolescent | Spinal Fusion - psychology | Female | Quality of Life - psychology | Retrospective Studies | Spinal Fusion - trends | Child | Patient Reported Outcome Measures | Index Medicus
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4. Full Text Cyclic bisphosphonate therapy reduces pain and improves physical functioning in children with osteogenesis imperfecta 11 Medical and Health Sciences 1103 Clinical Sciences
by Garganta, Melissa D and Jaser, Sarah S and Lazow, Margot A and Schoenecker, Jonathan G and Cobry, Erin and Hays, Stephen R and Simmons, Jill H
BMC musculoskeletal disorders, 09/2018, Volume 19, Issue 1
Pediatrics | Bisphosphonate | Pain | Osteogenesis imperfecta | Zoledronic acid | Pamidronate | PedsQL | Faces | Quality of life
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5. Full Text Factors Associated with Health-Related Quality of Life in Children with Intestinal Failure
by Neam, Victoria C and Oron, Assaf P and Nair, Deepthi and Edwards, Todd and Horslen, Simon P and Javid, Patrick J
The Journal of pediatrics, ISSN 0022-3476, 01/2020, Volume 216, pp. 13 - 18.e1
intestinal rehabilitation | intestinal failure | quality of life | PedsQL | short bowel syndrome | Life Sciences & Biomedicine | Pediatrics | Science & Technology | Index Medicus | Abridged Index Medicus
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6. Full Text Effect of monotherapy with methotrexate, etanercept and their combination on the quality of life in children with early and late juvenile idiopathic arthritis: A prospective study
by Alexeeva, Ekaterina I and Fetisova, Anna N and Dvoryakovskaya, Tatyana M and Chernikov, Vladislav V and Vinyarskaya, Irina V and Denisova, Rina V and Soloshenko, Margarita A and Isaeva, Ksenia B and Mamutova, Anna V
Voprosy sovremennoĭ pediatrii, ISSN 1682-5527, 2018, Volume 17, Issue 4, pp. 289 - 300
PedsQL generic core scale | Etanercept | HUI3 | Children | PedsQL rheumatology module | Methotrexate | Juvenile idiopathic arthritis | Quality of life | children | etanercept | hui3 | pedsql generic core scale | methotrexate | pedsql rheumatology module | juvenile idiopathic arthritis | quality of life
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7. Full Text Is obesity associated with decreased health-related quality of life in school-age children?-Results from a survey in Vietnam
by Ha, Nguyen Thanh and Trang, Do Thi Hanh and Ha, Le Thi Thu and Hanoi University of Public health, 1A Duc Thang street, North Tu Liem District, Hanoi, Vietnam
AIMS public health, ISSN 2327-8994, 2018, Volume 5, Issue 4, pp. 338 - 351
health-related quality of life| obese children| PedsQL 4.0
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8. Full Text Health-Related Quality of Life in Pediatric Patients with Functional and Organic Gastrointestinal Diseases
by Varni, James W., PhD and Bendo, Cristiane B., PhD and Nurko, Samuel, MD and Shulman, Robert J., MD and Self, Mariella M., PhD and Franciosi, James P., MD and Saps, Miguel, MD and Pohl, John F., MD and Pediatric Quality of Life Inventory (PedsQL) Gastrointestinal Symptoms Module Testing Study Consortium and Pediat Qual Life Inventory PedsQL
The Journal of pediatrics, ISSN 0022-3476, 2015, Volume 166, Issue 1, pp. 85 - 90.e2
Pediatrics | FD Functional dyspepsia | PedsQL Pediatric Quality of Life Inventory | CC Chronic constipation | CD Crohn's disease | GI Gastrointestinal | FGID Functional gastrointestinal disorder | HRQOL Health-related quality of life | IBS Irritable bowel syndrome | FAP Functional abdominal pain | Life Sciences & Biomedicine | Science & Technology | Severity of Illness Index | Gastrointestinal Diseases - psychology | Humans | Adolescent | Child, Preschool | Cost of Illness | Female | Male | Surveys and Questionnaires | Quality of Life - psychology | Health Status | Child | Medical colleges | Children | Health aspects | Orthodontics | Gastrointestinal diseases | Index Medicus | Abridged Index Medicus
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9. Full Text Fatigue perception in a cohort of children with chronic immune thrombocytopenia and their caregivers using the PedsQL MFS: Real-life multicenter experience of the Italian Association of Pediatric Hematology and Oncology (AIEOP)
by Lassandro, Giuseppe and Palmieri, Viviana Valeria and Barone, Angelica and Farruggia, Piero and Giona, Fiorina and Licciardello, Maria and Marinoni, Maddalena and Marzollo, Antonio and Notarangelo, Lucia Dora and Palumbo, Giuseppe and Ramenghi, Ugo and Russo, Giovanna and Saracco, Paola and Spinelli, Marco and Tolva, Alessandra and Tornesello, Assunta and Palladino, Valentina and Noviello, Domenico and Giordano, Paola
Pediatric blood & cancer, ISSN 1545-5009, 2020, pp. e28840 - e28840
fatigue | PedsQL Multidimensional Fatigue Scale | health-related quality of life | immune thrombocytopenia | Pediatrics | Oncology | Life Sciences & Biomedicine | Hematology | Science & Technology | Index Medicus
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10. Full Text The 6‐minute walk test and other clinical endpoints in duchenne muscular dystrophy: Reliability, concurrent validity, and minimal clinically important differences from a multicenter study
by McDonald, Craig M and Henricson, Erik K and Abresch, R. Ted and Florence, Julaine and Eagle, Michelle and Gappmaier, Eduard and Glanzman, Allan M and Spiegel, Robert and Barth, Jay and Elfring, Gary and Reha, Allen and Peltz, Stuart W and PTC124-GD-007-DMD Study Grp and PTC124-GD-007-DMD Study Group and Sahlgrenska akademin and Institute of Clinical Sciences, Department of Pediatrics and Göteborgs universitet and Gothenburg University and Institutionen för kliniska vetenskaper, Avdelningen för pediatrik and Sahlgrenska Academy
Muscle & nerve, ISSN 0148-639X, 09/2013, Volume 48, Issue 3, pp. 357 - 368
6‐minute walk test | muscular dystrophy | ambulation | Duchenne muscular dystrophy | timed function test | energy expenditure index | myometry | natural history | PedsQL | 6-minute walk test | Ambulation | Myometry | Energy expenditure index | Timed function test | Muscular dystrophy | Natural history | Neurosciences | Clinical Neurology | Neurosciences & Neurology | Life Sciences & Biomedicine | Science & Technology | Reproducibility of Results | Muscular Dystrophy, Duchenne - drug therapy | Humans | Male | Disease Progression | Oxadiazoles - therapeutic use | Walking - physiology | Heart Rate - drug effects | Exercise Test | Time Factors | Muscular Dystrophy, Duchenne - physiopathology | Heart Rate - physiology | Outcome Assessment, Health Care | Muscular Dystrophy, Duchenne - diagnosis | Validity | Index Medicus | Main | Heart Rate | Oxadiazoles | Other Medical Sciences | drug therapy | Outcome Assessment (Health Care) | physiology | drug effects | diagnosis | Walking | physiopathology | Annan medicin och hälsovetenskap | Duchenne | Muscular Dystrophy | therapeutic use
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11. Full Text Assessment of Quality of Life in Young Patients with Single Ventricle after the Fontan Operation
by Uzark, Karen, PhD, CPNP and Zak, Victor, PhD and Shrader, Peter, MA and McCrindle, Brian W., MD, MPH and Radojewski, Elizabeth, RN and Varni, James W., PhD and Daniels, Kaitlyn, BSN, RN and Handisides, Jill, BSN and Hill, Kevin D., MD, MS and Lambert, Linda M., MSN, FNP and Margossian, Renee, MD and Pemberton, Victoria L., RNC, MS, CCRC and Lai, Wyman W., MD and Atz, Andrew M., MD and Pediatric Heart Network Investigators and Pediat Heart Network Investigators
The Journal of pediatrics, ISSN 0022-3476, 2015, Volume 170, pp. 166 - 172.e1
Pediatrics | Life Sciences & Biomedicine | Science & Technology | United States - epidemiology | Age Factors | Cross-Sectional Studies | Follow-Up Studies | Humans | Survivors | Fontan Procedure - psychology | Male | Young Adult | Adolescent | Quality of Life | Adult | Female | Surveys and Questionnaires | Health aspects | Analysis | Children | Index Medicus | Abridged Index Medicus | congenital heart disease | psychosocial | quality of life | PedsQL
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12. Full Text The impact of maintenance therapy on sleep-wake rhythms and cancer-related fatigue in pediatric acute lymphoblastic leukemia
by Steur, L. M. H and Kaspers, G. J. L and van Someren, E. J. W and van Eijkelenburg, N. K. A and van der Sluis, I. M and Dors, N and van den Bos, C and Tissing, W. J. E and Grootenhuis, M. A and van Litsenburg, R. R. L
Supportive care in cancer, ISSN 0941-4355, 04/2020, Volume 28, Issue 12, pp. 5983 - 5993
Dexamethasone | CHILD SLEEP | Actigraphy | PATTERNS | RELIABILITY | Cancer-related fatigue | PREDNISONE | PEDSQL(TM) | Sleep | Acute lymphoblastic leukemia | ADOLESCENTS | QUALITY-OF-LIFE | Pediatric | VALIDITY
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13. Full Text PedsQL™ Cognitive Functioning Scale in youth with epilepsy: Reliability and validity
by Varni, James W and Junger, Katherine F and Kellermann, Tanja and Grossman, Lauren Barrett and Wagner, Janelle and Mucci, Grace A and Guilfoyle, Shanna M and Smith, Gigi and Zupanc, Mary L and Modi, Avani C
Epilepsy & behavior, ISSN 1525-5050, 02/2020, Volume 103, Issue Pt A, pp. 106850 - 106850
Pediatrics | Patient-reported outcomes | Cognitive functioning | Executive functioning | PedsQL | Epilepsy | Clinical Neurology | Neurosciences & Neurology | Life Sciences & Biomedicine | Psychiatry | Behavioral Sciences | Science & Technology | Index Medicus
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