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1. Full Text Research participants' preferences for receiving genetic risk information: a discrete choice experiment
by Johansson, JV and Langenskiold, S and Segerdahl, P and Hansson, MG and Hosterey, UU and Gummesson, A and Veldwijk, J and Medicinska fakulteten and Medicinska och farmaceutiska vetenskapsområdet and Kardiologi and Centrum för forsknings- och bioetik and Uppsala universitet and Institutionen för medicinska vetenskaper and Institutionen för folkhälso- och vårdvetenskap
GENETICS IN MEDICINE, ISSN 1098-3600, 10/2019, Volume 21, Issue 10, pp. 2381 - 2389
Purpose: This study aims to determine research participants' preferences for receiving genetic risk information when participating in a scientific study that... 
genetic risk information | research participants | RETURN | BIOBANK | THINK ALOUD | DISCLOSURE | GENETICS & HEREDITY | incidental findings | secondary findings | CARE | preferences for genetic risk information | Basic Medicine | Medical and Health Sciences | Medicin och hälsovetenskap | Public Health, Global Health, Social Medicine and Epidemiology | Hälsovetenskaper | Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi | Medical Genetics | Medicinsk genetik | Medicinska och farmaceutiska grundvetenskaper | Health Sciences
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2. Full Text Stated product formulation preferences for HIV pre‐exposure prophylaxis among women in the VOICE‐D (MTN‐003D) study
by Luecke, Ellen H and Cheng, Helen and Woeber, Kubashni and Nakyanzi, Teopista and Mudekunye‐Mahaka, Imelda C and Straten, Ariane and MTN-003D Study Team and on behalf of the MTN-003D Study Team
Journal of the International AIDS Society, ISSN 1758-2652, 01/2016, Volume 19, Issue 1, pp. 20875 - n/a
Introduction The effectiveness of HIV pre‐exposure prophylaxis (PrEP) requires consistent and correct product use, thus a deeper understanding of women's... 
oral pre‐exposure prophylaxis | preferences | Africa | vaginal microbicides | product delivery forms | HIV prevention | women | Women | Vaginal microbicides | Product delivery forms | Oral pre-exposure prophylaxis | Preferences | INFECTIOUS DISEASES | AFRICAN WOMEN | MICROBICIDE | PREVENTION | PREP | ACCEPTABILITY | IMMUNOLOGY | oral pre-exposure prophylaxis | TRIAL | ANTIRETROVIRAL PROPHYLAXIS | INFECTION | PARTICIPANTS | TENOFOVIR | HIV Infections - prevention & control | Pre-Exposure Prophylaxis - methods | Humans | Patient Preference | Drug Compounding | Adult | Female | South Africa | Uganda | Zimbabwe | Vaginal Creams, Foams, and Jellies | Qualitative Research | Sexual Partners | Prevention | Drug therapy | HIV infection | Disease prevention | Studies | Plasma | Womens health | Human immunodeficiency virus--HIV | Clinical trials | Infections | Product development | Interviews
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3. Full Text Health research participants’ preferences for receiving research results
by Long, Christopher R and Stewart, M Kathryn and Cunningham, Thomas V and Warmack, T Scott and McElfish, Pearl A
Clinical Trials, ISSN 1740-7745, 12/2016, Volume 13, Issue 6, pp. 582 - 591
Background: Participants in health research studies typically express interest in receiving the results from the studies in which they participate. However,... 
participant registry | dissemination survey | participant preferences | Results' dissemination | results' communication | research results | dissemination | social media dissemination | disseminating results | ResearchMatch | MEDICINE, RESEARCH & EXPERIMENTAL | CLINICAL-TRIAL | CANCER | CHILDRENS ONCOLOGY GROUP | ATTITUDES | RETURN | DECISION-MAKING | ADOLESCENTS | GENETIC RESEARCH | FEEDBACK | Attitude to Health | Humans | Middle Aged | Male | Patient Preference | Disclosure | Information Dissemination | Young Adult | Adolescent | Aged, 80 and over | Adult | Biomedical Research | Female | Surveys and Questionnaires | Aged | Electronic Mail | Research Subjects | Communication | Clinical trials | Medical research | Participation | Researchers | Polls & surveys | results dissemination | results communication
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4. Full Text Do Decisions Shape Preference? Evidence From Blind Choice
by Tali Sharot and Cristina M. Velasquez and Raymond J. Dolan
Psychological Science, ISSN 0956-7976, 9/2010, Volume 21, Issue 9, pp. 1231 - 1235
Psychologists have long asserted that making a choice changes a person's preferences. Recently, critics of this view have argued that choosing simply reveals... 
Social psychology | Vacations | Cognitive dissonance | Experimentation | Nonsense | Participant observation | Data ranges | Observed choices | Cognitive psychology | Research Reports | preferences | cognitive dissonance | choice | decision making | PSYCHOLOGY, MULTIDISCIPLINARY | Decision Making | Young Adult | Choice Behavior | Humans | Adolescent | Cognitive Dissonance | Adult | Female | Male | Cognition | Studies | Cognition & reasoning | Preferences | Decision making
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5. Full Text Social transmission of face preferences among humans
by Benedict C Jones and Lisa M DeBruine and Anthony C Little and Robert P Burriss and David R Feinberg
Proceedings of the Royal Society B: Biological Sciences, ISSN 0962-8452, 03/2007, Volume 274, Issue 1611, pp. 899 - 903
Previous studies demonstrating mate choice copying effects among females in non-human species have led many researchers to propose that social transmission of... 
Mating behavior | Observational learning | Sexual selection | Social behavior | Facial expressions | Men | Male animals | Smiles | Participant observation | Female animals | Public information | Social learning | Facial attractiveness | Mate preferences | MENSTRUAL-CYCLE | mate preferences | GAZE DIRECTION | DIMORPHISM | POECILIA-RETICULATA | SEXUAL SELECTION | facial attractiveness | MATE-CHOICE | HUMAN FEMALE PREFERENCES | BIOLOGY | social learning | COTURNIX-JAPONICA | EXPRESSION | public information | Cues | Competitive Behavior | Choice Behavior | Humans | Face - anatomy & histology | Sex Factors | Facial Expression | Female | Male | Photic Stimulation | Interpersonal Relations
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6. Full Text Optimising the two‐stage randomised trial design when some participants are indifferent in their treatment preferences
by Walter, Stephen D and Turner, Robin M and Macaskill, Petra
Statistics in Medicine, ISSN 0277-6715, 06/2019, Volume 38, Issue 13, pp. 2317 - 2331
Outcomes in a clinical trial can be affected by any underlying preferences that its participants have for the treatments under comparison and by whether they... 
randomised trials | optimisation | participant preferences | design | MEDICINE, RESEARCH & EXPERIMENTAL | MANAGEMENT | MEDICAL INFORMATICS | TESTING TREATMENT | STATISTICS & PROBABILITY | ATTITUDES | CARE | VEGETARIAN DIET | CHOICE | IMPACT | PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH | CLINICAL-TRIALS | MATHEMATICAL & COMPUTATIONAL BIOLOGY | SELECTION | Clinical trials | Analysis
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7. Full Text Preferences for results delivery from exome sequencing/genome sequencing
by Wright, Martha F and Lewis, Katie L and Fisher, Tyler C and Hooker, Gillian W and Emanuel, Toby E and Biesecker, Leslie G and Biesecker, Barbara B
Genetics in Medicine, ISSN 1098-3600, 2014, Volume 16, Issue 6, pp. 442 - 447
Purpose: The aim of this study was to explore the implications of sequencing information and stated preferences for return of results among research... 
genome | preferences | expectations | results | sequencing | RETURN | GENETICS & HEREDITY | CLINSEQ | GENETIC RESEARCH | PARTICIPANTS | Genetic Counseling - psychology | Humans | Middle Aged | Male | Patient Preference | Random Allocation | Cardiovascular Diseases - genetics | Emotions | Exome | Female | Intention | Aged | Genetic Research - ethics | Genome, Human
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8. Full Text Societal preferences for the return of incidental findings from clinical genomic sequencing: A discrete-choice experiment
by Regier, Dean A and Peacock, Stuart J and Pataky, Reka and Van Der Hoek, Kimberly and Jarvik, Gail P and Hoch, Jeffrey and Veenstra, David
CMAJ, ISSN 0820-3946, 04/2015, Volume 187, Issue 6, pp. E190 - E197
Background: An important challenge with the application of next-generation sequencing technology is the possibility of uncovering incidental genomic findings.... 
MEDICINE, GENERAL & INTERNAL | WILLINGNESS-TO-PAY | TECHNOLOGIES | INFORMATION | PERSPECTIVES | DISABILITY | CONJOINT-ANALYSIS | GENETIC CAUSES | MEDICINE | PARTICIPANTS | PATIENT AUTONOMY | Genetic Predisposition to Disease - psychology | Severity of Illness Index | Genetic Testing | Choice Behavior | Cross-Sectional Studies | Humans | Middle Aged | Incidental Findings | Male | Penetrance | Patient Preference | Disclosure | Sequence Analysis, DNA | Young Adult | Canada | Health Care Costs | Adolescent | Aged, 80 and over | Adult | Female | Heterozygote | Surveys and Questionnaires | Aged | Genome | Evaluation | Health behavior | Informed consent (Medical law) | Incident reporting (Medical care) | Genetic screening | Methods | Standards | Experiments | Genomics | Research
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9. Full Text Public preferences regarding the return of individual genetic research results: Findings from a qualitative focus group study
by Bollinger, Juli Murphy and Scott, Joan and Dvoskin, Rachel and Kaufman, David
Genetics in Medicine, ISSN 1098-3600, 04/2012, Volume 14, Issue 4, pp. 451 - 457
Purpose: People are interested in receiving their individual research results in exchange for participating in genetic research. However, it is unclear whether... 
genetic | IRR | individual | results | research | BIOBANKS | CANCER | CLINICAL-RESEARCH | RESEARCH PARTICIPANTS | DISCLOSURE | PERSPECTIVES | GENETICS & HEREDITY | COHORT | SCIENCE | ETHICS | Genetics, Medical - ethics | Genetics, Medical - methods | Public Opinion | Risk Assessment | United States | Humans | Risk Factors | Genetic Research - ethics | Research Subjects | Focus Groups - methods | Truth Disclosure - ethics | Genetics, Medical - statistics & numerical data | Genetics | Research
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10. Full Text Old age and prosocial behavior: Social preferences or experimental confounds?
by Kettner, Sara Elisa and Waichman, Israel
Journal of Economic Psychology, ISSN 0167-4870, 04/2016, Volume 53, pp. 118 - 130
Experimental and field evidence indicate a positive link between social preferences and age, most strikingly between the elderly and young adults. However, it... 
Experimenter demand effect | Hypothetical bias | Participant pool | Dictator game | Age | Social preferences | Aged | Endowments
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11. Full Text Choice in experiential learning: True preferences or experimental artifacts?
by Ashby, Nathaniel J.S and Konstantinidis, Emmanouil and Yechiam, Eldad
Acta Psychologica, ISSN 0001-6918, 03/2017, Volume 174, pp. 59 - 67
The rate of selecting different options in the decisions-from-feedback paradigm is commonly used to measure preferences resulting from experiential learning.... 
Learning | Uncertainty | Confidence | Preference | Decisions-from-feedback | IOWA GAMBLING TASK | PERFORMANCE | REPRESENTATION | SOMATIC MARKER HYPOTHESIS | PSYCHOLOGY, EXPERIMENTAL | DECISION-MAKING | MODELS | FEEDBACK | PARTICIPANTS | PROSPECT-THEORY | Artifacts | Feedback, Psychological - physiology | Humans | Adult | Choice Behavior - physiology | Female | Male | Problem-Based Learning | Experiential learning | Autonomy
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12. Full Text Parents' Preferences for Return of Results in Pediatric Genomic Research
by Ziniel, S.I and Savage, S.K and Huntington, N and Amatruda, J and Green, R.C and Weitzman, E.R and Taylor, P and Holm, I.A
Public Health Genomics, ISSN 1662-4246, 04/2014, Volume 17, Issue 2, pp. 105 - 114
Background: The aim of this study was to ascertain parental preferences for the return of genetic research results on themselves and their children and their... 
Original Paper | Research results | DNA research bank | Survey | Preferences | Pediatric genomic research | INFORMATION | AUTONOMY | INCIDENTAL FINDINGS | RESEARCH PARTICIPANTS | PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH | RECOMMENDATIONS | GENETICS & HEREDITY | UTILITY | Genetic Testing | Genomics | Humans | Middle Aged | Hospitals, Pediatric | Male | Data Collection | Comprehension | Genome, Human - genetics | Young Adult | Health Education - methods | Motivation | Parents - psychology | Genetic Research | Adult | Female | Child | Boston | survey | preferences | research results | pediatric genomic research
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13. Full Text Current Smokers’ Preferences for Receiving Cessation Information in a Lung Cancer Screening Setting
by Carter-Harris, Lisa and Carter-Harris, Lisa and Schwindt, Rhonda and Schwindt, Rhonda and Bakoyannis, Giorgos and Bakoyannis, Giorgos and Ceppa, DuyKhanh Pham and Ceppa, DuyKhanh Pham and Rawl, Susan M and Rawl, Susan M
Journal of Cancer Education, ISSN 0885-8195, 10/2018, Volume 33, Issue 5, pp. 1120 - 1125
The purpose of this study was to identify current smokers’ communication format preferences for receiving smoking cessation information in a lung cancer... 
Smoking cessation | Cancer Research | Biomedicine | Pharmacology/Toxicology | Lung cancer screening | Health communication | UNITED-STATES | SMOKING-CESSATION | SERVICES | GUIDELINES | DOSE COMPUTED-TOMOGRAPHY | RANDOMIZED CONTROLLED-TRIAL | DEPENDENCE | PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH | ONCOLOGY | INTERVENTION | ASSOCIATION | EDUCATION, SCIENTIFIC DISCIPLINES | PARTICIPANTS | Smoking cessation programs | Medical colleges | Smokers | Lung cancer | Analysis | Oncology, Experimental | Research | Diagnosis | Cancer | Tomography | Preferences | Medical screening | Communication | smoking cessation | health communication | lung cancer screening
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14. Full Text Pediatric data sharing in genomic research: Attitudes and preferences of parents
by Burstein, Matthew D and Robinson, Jill Oliver and Hilsenbeck, Susan G and McGuire, Amy L and Lau, Ching C
Pediatrics, ISSN 0031-4005, 2014, Volume 133, Issue 4, pp. 690 - 697
OBJECTIVE:In the United States, data from federally funded genomics studies are stored in national databases, which may be accessible to anyone online (public... 
Restricted release | Tiered consent | Participant perspectives | Public release | Data sharing | Parents | TRIALS | tiered consent | MEDICINE | INFORMED-CONSENT | public release | participant perspectives | PERSPECTIVES | PEDIATRICS | SCALE | restricted release | data sharing | parents | PERCEPTIONS | Pediatrics | Genomics | Humans | Middle Aged | Male | Research | Health Knowledge, Attitudes, Practice | Information Dissemination | Young Adult | Parents - psychology | Adolescent | Adult | Female | Surveys and Questionnaires | Aged | Child | Medical records | Information management | Parent attitudes | Regression analysis | Preferences | Information sharing
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15. Full Text Public preferences for the return of research results in genetic research: A conjoint analysis
by Bollinger, Juli Murphy and Bridges, John F.P and Mohamed, Ateesha and Kaufman, David
Genetics in Medicine, ISSN 1098-3600, 12/2014, Volume 16, Issue 12, pp. 932 - 939
Purpose: Recent policies specifying criteria about which individual research results to return leave considerable discretion to researchers. This study... 
genetics | individual results | public preferences | research | conjoint analysis | VETERANS | BIOBANKS | INCIDENTAL FINDINGS | RESEARCH PARTICIPANTS | DISCLOSURE | PERSPECTIVES | GENETICS & HEREDITY | EXPECTATIONS | UTILITY | Public Policy | Choice Behavior | Public Opinion | United States | Humans | Middle Aged | Patient Participation | Access to Information | Male | Data Collection | Young Adult | Adolescent | Adult | Female | Aged | Genetic Research - legislation & jurisprudence | Research Design | Cohort Studies | genetic
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